The latest news from The Brain Tumour Charity about our work and what our amazing supporters are doing to raise vital funds for us.
Supporting our Patron, Tom Daley
Today we’re immensely proud to support our Patron, Tom Daley, following the important video he posted on his YouTube channel earlier today (Monday 2 December 2013).
Ground-breaking discovery on chemotherapy delivery
Research funded by The Brain Tumour Charity at The University of Nottingham has discovered that a substance originally designed to help mend broken bones could be successful in delivering chemotherapy drugs directly to the brains of patients suffering from a brain tumour.
Survivors of childhood brain tumours can suffer reduced IQ and clinical apathy
Research funded by The Brain Tumour Charity and conducted by Dr Howard Ring and his team at the University of Cambridge has shown that long-term survivors of early childhood brain tumours often have reduced IQ and an increased risk of significant clinical apathy compared with their siblings who were not diagnosed with a brain tumour.
A truly special night for Jon Brookes
At the Royal Albert Hall on Friday 18 October, The Charlatans played a gig in celebration of their drummer Jon Brookes who tragically lost his life to a brain tumour in August. They were joined by Liam Gallagher, James Dean Bradfield from the Manic Street Preachers, The Chemical Brothers, members of New Order and The Vaccines for a truly special concert in front of 5,000 fans.
The Brain Tumour Charity wins with HeadSmart again
For the second time in three weeks, we are delighted to have won a prestigious award for our HeadSmart campaign to raise awareness of the symptoms of brain tumours in children. The Charity Times Award was announced at a ceremony in London last night (Wednesday 16 October).
Pioneering scanning technique gives doctors potential new insight
Research conducted at the University of Nottingham and funded by The Brain Tumour Charity has shown that a scanning technique called magnetic resonance spectroscopy (MRS) may help doctors diagnose and monitor childhood low grade gliomas by providing key information on how the tumours are likely to change following diagnosis.
Could you contribute to a new book about low grade brain tumours?
Our supporter Gideon Burrows is writing a new book about living with a low grade brain tumour diagnosis. He is seeking low grade brain tumour patients, former low grade patients and their loved ones to share their experiences with him for possible inclusion in the book as short case studies and quotes.
Bumper weekend of fundraising for The Brainy Bunch
September 14 – 15 2013 saw one of the busiest weekends of fundraising ever seen by The Brain Tumour Charity with hundreds of people joining the fight against brain tumours by running, walking, cycling and holding events.
Funding for future research leaders
The Brain Tumour Charity is pleased to announced a new research co-funding partnership with the Medical Research Council, the government funder of medical research, which will create a number of Clinical Research Training Fellowships.
MPs call for action at Westminster debate to support HeadSmart
Health minister asked to help roll out the campaign across the country with three simple steps. Dominic Raab MP for Esher and Walton, who led the debate, was joined by HeadSmart Community Champion, Sacha Langton-Gilks (pictured far right), who lost her son, DD, to a brain tumour last August.
Parliament to debate HeadSmart rollout into schools and homes
The Brain Tumour Charity’s award-winning awareness campaign, HeadSmart, is to be discussed in a debate at Westminster to encourage action at central and local government level to raise awareness of the symptoms of brain tumours in children and young people.
Support and Information survey launched - we need your views
At The Brain Tumour Charity we are passionate about making a difference for people affected by a brain tumour. To help us achieve this aim, we are currently seeking the views of patients and carers who have come into contact with our charity and used the services that we provide.
Two star supporters from Northwich
Eileen and Stephen Sharman from Northwich have raised thousands of pounds for The Brain Tumour Charity over about ten years. In this feature, we share some of their fundraising ideas so others can be inspired too.
HeadSmart highly commended at Communiqué Awards
The Brain Tumour Charity’s HeadSmart campaign to raise awareness of the symptoms of brain tumours in children was highly commended at the prestigious Communiqué Awards on Thursday 4 July 2013.
East Sussex County Council gets behind HeadSmart
East Sussex County Council has agreed to distribute HeadSmart symptoms cards from The Brain Tumour Charity to schools in the county, ensuring that parents, carers and teachers are all aware of the symptoms of a brain tumour in a child and can get the appropriate medical attention if required.
Song for DD launched
A charity single has been released, recorded by serving UK prisoners, who were touched by the story of 16 year-old David “DD” Langton-Gilks, who battled a brain tumour for five years. ‘Song for DD’ is a moving tribute to the brave teenager.
Brain tumour statistics published
The latest statistics collated by Cancer Research UK show that in 2010 over 9,000 people in the UK were diagnosed with a primary tumour originating in the brain, other CNS or intracranial site and that an estimated 445,000 such tumours are diagnosed each year world-wide.
Flipping the switches on childhood brain tumours
Research funded by The Brain Tumour Charity at the Institute of Cancer Research and the University of Cambridge has identified potential targets for new treatments in childhood glioblastoma and medulloblastoma tumours. 29 May 2013
Response to the National Cancer Intelligence Network (NCIN) ‘Routes to Diagnosis’ report
The Brain Tumour Charity welcomes The National Cancer Intelligence Network’s report on ‘Routes to Diagnosis’, released today (Thursday 2 May), and the attention it brings to the delays in diagnosis of young adults and the important issue of diagnosis pathways. We support the National Cancer Intelligence Network’s calls for further investigation to understand why these delays occur and what can be done to reduce them.
Vaccine against brain tumours shows promise in early trials
News of positive results in an early trial of a vaccine designed to increase survival times in adults diagnosed with recurrent glioblastoma brain tumours was released on 1 May 2013 by researchers at the American Association of Neurological Surgeons scientific meeting in New Orleans.
Brain tumour lecture in London
The Brain Tumour Charity hosted its inaugral lecture into brain tumours by Dr Colin Watts on March 21st as part of Brain Tumour Awareness Month.
Fundraisers walk on fire for research
A brave group of fundraisers took part in a Firewalk at Rushmoor Fire Station in Hampshire on Wednesday 20 March to raise funds for The Brain Tumour Charity. With temperatures reaching 1200°F underfoot it was a truly exceptional challenge.
Street Spice festival in Newcastle
Today, Saturday 2 March, is the last day of the Street Spice festival in Newcastle organised by Sachins restaurant in memory of musician Kuly Ral who sadly died from a brain tumour last year. The event is raising money for The Brain Tumour Charity.
The Brain Tumour Charity is pleased to be supporting the AllTrials petition. The initiative is calling for all clinical trials to be registered and data to be published.
The Brain Tumour Charity welcomes HEFCE announcement
Earlier in February, the Higher Education Funding Council for England (HEFCE) published its annual grant letter. It includes funding of £198m for the Charity Research Support Fund (CRSF) – the same total as last year.
HeadSmart wins major NHS Innovation award
We are delighted to announce that the HeadSmart campaign, launched in June 2011, has won a prestigious NHS Innovation Challenge Prize worth £100,000 in the Earlier Cancer Diagnosis category.
Silver bullion bar raffle to raise funds for research
Our supporter, Kevin, has been helping us raise funds for research by holding a series of raffles. The prize each time is a beautiful 200g silver bullion bar. The current raffle ends on January 8 and tickets are £2.50 each.
Getting to know the England rugby team
In October we nominated a series of young people who have been personally affected by a brain tumour for the Sky Sports Dreams Come True award. We were delighted when we heard that our supporter, Rafe Walker, had won a prize.
Potential new combination therapy for glioblastoma multiforme
With the support of The Brain Tumour Charity, researchers at the University of Wolverhampton have discovered a potential new combination therapy for glioblastoma multiforme. This high grade tumour frequently develops drug resistance and has a very poor prognosis but this result offers the potential of an effective treatment.
Glioma Conference 2012 – sharing brain tumour research
In October The Brain Tumour Charity was pleased to sponsor and attend the third annual Glioma Conference. It was co-organised by Professor Paolo Salomoni, Programme Lead at our UCL Centre of Research Excellence, and Professor Silvia Marino of Barts and the London School of Medicine and Dentistry.
Tom Daley and Chris Hollins confirm Gala Dinner attendance
We are delighted to announce that The Brain Tumour Charity Patron and Olympian Tom Daley will be attending our Gala Dinner on Friday 30 November and taking part in a Q&A. He will be joining BBC presenter and Strictly Come Dancing star Chris Hollins who is hosting the event.
Great North Run success
Eleven runners represented The Brain Tumour Charity at the Great North Run on Sunday 16 September, raising an amazing £5000 for world class brain tumour research.
Remember A Charity Week
Remember A Charity Week takes place from 17 – 23 September 2012. The Brain Tumour Charity are very proud to be part of the consortium who are working together to make legacy giving a social norm.
International research and collaboration
A busy summer saw two major international conferences in Canada. The 19th International Conference on Brain Tumor Research and Therapy (also known as the Asilomar Meeting) was held on 21 – 24 June, and the International Symposium on Pediatric Neuro-Oncology (ISPNO) was held in Toronto from 24 – 27 June.
Paediatric research breakthrough
Research funded by The Brain Tumour Charity at The University of Nottingham has identified three sets of genetic markers that could potentially pave the way for new diagnostic tools for a deadly type of brain tumour that mainly targets children.
Fun in the sun at celebrity cricket day
The weather was kind to our Cricknic on Sunday 19 August as Darren Gough led the fundraising efforts for The Brain Tumour Charity in memory of Alex Bolt and Simon Massey.
Sad news about David Langton-Gilks – HeadSmart inspiration
We are deeply saddened to hear that David (DD) Langton-Gilks, an inspirational supporter of the HeadSmart campaign to reduce diagnosis times of childhood brain tumours, has this morning lost his battle with cancer. Our thoughts and deepest sympathy are with DD’s family and friends.
The Brain Tumour Charity moves to Farnborough
After 15 years we bid a fond farewell to Yateley as we move to larger offices in Farnborough to accommodate our growing staff and plans for the future of brain tumour research, fundraising and support.
The Brain Tumour Charity Family Day
Mix a bunch of kids together, throw in some parents, a great location and a whole lot of mud and what do you get? The annual Family Day from The Brain Tumour Charity, that’s what!
Alex Bolt research fellowship
The Brain Tumour Charity Alex Bolt Fund, one of our dedicated support groups, recently presented a cheque for £85,000 to fund The Alex Bolt Research Fellowship
Parliamentary Brain Tumour Lobby 2012
Brain tumour patients and carers and staff from The Brain Tumour Charity joined a mass lobby asking MPs to join them in the fight against brain tumours.
National conference brings hope for the future
The Brain Tumour Charity team recently attended BNOS, the annual conference of the British Neuro-oncology Society. This year’s conference entitled ‘Challenges and Controversies’ was held in Manchester and saw a range of world-class brain tumour research presented, including work funded by The Brain Tumour Charity.