The latest news from The Brain Tumour Charity about our work and what our amazing supporters are doing to raise vital funds for us.
Scientists map out how childhood brain tumours relapse
Researchers have discovered the unique genetic paths that the childhood brain tumour medulloblastoma follows when the disease comes back, according to research* published in Cancer Cell today (Thursday 18 December 2014).
British Journal of Nursing features HeadSmart
This month, the British Journal of Nursing featured HeadSmart – our early diagnosis campaign for childhood brain tumours – in a paper on the importance of early identification of brain tumours in children. (Wednesday 17 December 2014)
Shadow Health Secretary makes cancer awareness pledge
At the Britain Against Cancer Conference in London today, we were pleased to hear the Shadow Health Secretary, Andy Burnham, pledge to extend the education programme run by the Teenage Cancer Trust to all secondary schools in England if Labour wins next year’s general election. (Tuesday 9 December 2014)
Paediatric Brain Tumours Live Discussion
Last night, we hosted an online discussion on paediatric brain tumours, answering questions submitted on a dedicated Facebook page over the last few weeks. (Friday 4 December 2014)
Taking on Everest in the Alps
Next March, a team of 12 will come together in support of The Brain Tumour Charity for a unique endurance challenge.
Everest in the Alps will see the group climb - on skis - the equivalent height of the world’s tallest mountain over four days in Switzerland. (Friday 28 November 2014)
An unforgettable experience at the X Factor
Last weekend, children affected by brain tumours got the chance to come down to London to meet some of this year’s X Factor finalists before watching a live dress rehearsal of Saturday night’s show (Thursday 27 November 2014)
Connecting with researchers at the NCRI conference
Last week we took part in the tenth National Cancer Research Institute annual conference in Liverpool. The NCRI is a partnership of 22 funders including Cancer Research UK, The Department of Health and The Medical Research Council working together to drive collaborative initiatives that support progress in Cancer Research. (Tuesday 11 November)
Bringing together top researchers
On Monday this week we took part in the fifth Glioma Conference in London, which we sponsor to help bring together top researchers working to defeat glioma brain tumours (Friday 24 October).
Launch of Jake at Birmingham Children’s Hospital
Today we are delighted to launch Jake, an animated eight year old boy who we have developed to help reduce fear and anxiety for the 500 children a year who are diagnosed with a brain tumour. (Thursday 2 October)
Celebrating a new era of research at Newcastle University
Yesterday we were delighted to welcome supporters and friends to see our research in action with a lab tour at Newcastle University. We held the event to celebrate the launch of our £4million jointly-funded INSTINCT programme to drive forward new treatments for some of the deadliest childhood brain tumours. (Tuesday 23 September).
Tottenham Hotspur gets behind HeadSmart
Premier League football club Tottenham Hotspur is backing HeadSmart as part of its wider partnership with NHS England's Get To Know Cancer early diagnosis campaign (Monday 22 September).
Experimental vaccine considered for early access
We welcome the news that an experimental vaccine for glioblastoma brain tumours has become the first in the UK to be designated a 'Promising Innovative Medicine' as part of the Government’s Early Access to Medicines scheme. (Thursday 18 September)
Families fly high thanks to charity
An excited group of children and parents who are supported by The Brain Tumour Charity got a taste of the high life as they boarded a plush private jet at TAG Farnborough Airport.
Issues raised at the APPG on patient experience of treatment
Brain tumour patients and their families spoke out about major gaps in care and rehabilitation services at parliament this week. The meeting of the All-Party Parliamentary Group (APPG) on Brain Tumours was an opportunity for MPs and healthcare professionals to hear first-hand about experiences of treatment and care.
The latest news on the Ashya King family
Whatever the facts of the situation facing Ashya King’s family, The Brain Tumour Charity knows, from its experience of working with families over many years, that separating a desperately ill child from their family has significant emotional and psychological consequences. It has a profound impact not only on the child, but on their brothers and sisters, their parents and wider family.
Our position on missing Ashya
We have just been alerted to the news of Ashya, a 5yr old boy with a brain tumour who has been taken out of hospital by his parents "without doctors consent" (as reported), against medical advice.
Tackling illness, fulfilling dreams: new video
Watch and share our brand new video about The Lewis Moody Foundation, which we launched in May at Twickenham Stadium. The video explains why Lewis and Annie set up the Foundation and how its work will help young families affected by serious illness.
Breakthrough could help reduce the need for biopsies
Funded by The Brain Tumour Charity, a team at the Institute for Cancer Research has found that a scanning technique called nuclear magnetic resonance spectroscopy (MRS) could be used to monitor the effectiveness of a new generation of drugs for children with a glioblastoma. (Friday 1 August 2014).
Making our voice heard in Westminster
On Tuesday 1 July we joined with supporters, researchers, and clinicians in Westminster for the All-Party Parliamentary Group on brain tumours, which connects MPs and peers with the brain tumour community.
Vote now to help save children’s lives
We are delighted to announce today that HeadSmart, our symptom awareness campaign for childhood brain tumours, is in the finals of the National Lottery Awards 2014, competing against six other projects for public votes in the Health category.
Celebrating the future
On Tuesday 20 May we held a reception at the Houses of Parliament to celebrate the recent unprecedented investment in research that we have driven.
Uncovered: DIPG link with rare condition affecting skeleton
Researchers have uncovered a link between one of the deadliest types of childhood brain tumour and an extremely rare condition affecting the human skeleton. The connection could lead eventually to the development of new drug treatments for children with diffuse intrinsic pontine glioma (DIPG) brain tumours. (Wednesday 7 May).
Biggest ever Bandana Day at HC-One Care Homes
An incredible 2,784 residents and team members at HC-One Care Homes took part in Bandanas for Brain Tumours Day on Friday 7 March, making it the biggest single Bandana Day ever seen and raising thousands of pounds!
London Marathon ballot closed - now apply for our places
The ballot for the Virgin Money London Marathon 2015 closed in a record 9 hours 50 minutes, having opened at one minute past midnight on Tuesday 22 April. Whether you entered the ballot or not, it's now time to apply for one of our places.
Breakthrough on high grade glioma genetics
Funded by The Brain Tumour Charity, Dr Chris Jones at the Institute of Cancer Research has deepened our understanding of childhood high grade gliomas. (Wednesday 9 April).
Improving our understanding of treatment for children
A clinical trial jointly funded by The Brain Tumour Charity and Cancer Research UK has shown that children with diffuse intrinsic pontine gliomas (DIPG) may respond differently to treatment depending on their age. (Monday 1 April 2014).
Fifth award in a row for HeadSmart
The Brain Tumour Charity has won another prestigious award for HeadSmart, our campaign to reduce unacceptable diagnosis times for childhood brain tumours. (Tuesday 18 March).
Tell us what you think of our website
Please help us to understand why people visit our site and whether it meets your needs and expectations by completing our simple online survey. It’s completely confidential and takes less than 3 minutes. (Monday 17 March 2014).
Message from Sacha for Brain Tumour Awareness Month
We’d like to show you a new video by Sacha Langton-Gilks, the lead Community Champion for our HeadSmart campaign. She tells the tragic story of her son DD who lost his life to a brain tumour aged just 16. (Thursday 13 March 2014).
Potential new drug target discovered
Research funded by The Brain Tumour Charity has identified a gene in medulloblastoma brain tumours that could be a target for new treatments. (Thursday 6 March).
The Research Impact Report launch
Today, the first day of Brain Tumour Awareness Month, we are launching The Research Impact Report. The report highlights the progress we are making to improve the quality of life and survival rates of people with a brain tumour. (Saturday 1 March 2014).
HeadSmart teams up with Hampshire County Council
The Brain Tumour Charity has teamed up with Hampshire County Council in a new effort to save young lives, with more than 170,000 HeadSmart symptom cards being distributed to schools and GP surgeries across the county.
(Tuesday 18 February 2014).
Ground-breaking £10million funding announcement
We are proud to announce unprecedented £10million funding for three pioneering research programmes. The programmes mark the start of a new era of research into brain tumours and aim to accelerate our progress towards defeating both adult and childhood brain tumours. (Friday 14 February 2014).
Health Minister supports HeadSmart
Health minister Jane Ellison met with The Brain Tumour Charity and Public Health England today to discuss ways to raise awareness of childhood brain tumours with families and GPs (Tuesday 21 January).
New research funding for pioneering MRI technique
Today The Brain Tumour Charity and children’s charity Action Medical Research are co-funding Professor Andrew Peet at the University of Birmingham to develop Magic Angle Spinning Nuclear Magnetic Resonance Spectroscopy – a new technique to give us more insight from MRI scans of children’s brain tumours. (Wednesday 15 January)
HeadSmart continues successful run with national cancer award win
The Brain Tumour Charity and its partners the Children’s Brain Tumour Research Centre, the Royal College of Paediatrics and Child Health and The Health Foundation have continued an extraordinary run of success by winning the Quality in Care Cancer Charity Initiative of the Year for the early diagnosis campaign HeadSmart: be brain tumour aware.
Brain tumour symptoms being recognised too late by GPs
A strong media response has followed the release of information by NHS England on GP practices and patient outcomes that indicates there is still much work to be done to ensure people who show the signs and symptoms of brain tumours are identified and diagnosed as early as possible.
Supporting our Patron, Tom Daley
Today we’re immensely proud to support our Patron, Tom Daley, following the important video he posted on his YouTube channel earlier today (Monday 2 December 2013).
Ground-breaking discovery on chemotherapy delivery
Research funded by The Brain Tumour Charity at The University of Nottingham has discovered that a substance originally designed to help mend broken bones could be successful in delivering chemotherapy drugs directly to the brains of patients suffering from a brain tumour.
Survivors of childhood brain tumours can suffer reduced IQ and clinical apathy
Research funded by The Brain Tumour Charity and conducted by Dr Howard Ring and his team at the University of Cambridge has shown that long-term survivors of early childhood brain tumours often have reduced IQ and an increased risk of significant clinical apathy compared with their siblings who were not diagnosed with a brain tumour.
A truly special night for Jon Brookes
At the Royal Albert Hall on Friday 18 October, The Charlatans played a gig in celebration of their drummer Jon Brookes who tragically lost his life to a brain tumour in August. They were joined by Liam Gallagher, James Dean Bradfield from the Manic Street Preachers, The Chemical Brothers, members of New Order and The Vaccines for a truly special concert in front of 5,000 fans.
The Brain Tumour Charity wins with HeadSmart again
For the second time in three weeks, we are delighted to have won a prestigious award for our HeadSmart campaign to raise awareness of the symptoms of brain tumours in children. The Charity Times Award was announced at a ceremony in London last night (Wednesday 16 October).
Pioneering scanning technique gives doctors potential new insight
Research conducted at the University of Nottingham and funded by The Brain Tumour Charity has shown that a scanning technique called magnetic resonance spectroscopy (MRS) may help doctors diagnose and monitor childhood low grade gliomas by providing key information on how the tumours are likely to change following diagnosis.
Could you contribute to a new book about low grade brain tumours?
Our supporter Gideon Burrows is writing a new book about living with a low grade brain tumour diagnosis. He is seeking low grade brain tumour patients, former low grade patients and their loved ones to share their experiences with him for possible inclusion in the book as short case studies and quotes.
Bumper weekend of fundraising for The Brainy Bunch
September 14 – 15 2013 saw one of the busiest weekends of fundraising ever seen by The Brain Tumour Charity with hundreds of people joining the fight against brain tumours by running, walking, cycling and holding events.
Funding for future research leaders
The Brain Tumour Charity is pleased to announced a new research co-funding partnership with the Medical Research Council, the government funder of medical research, which will create a number of Clinical Research Training Fellowships.
MPs call for action at Westminster debate to support HeadSmart
Health minister asked to help roll out the campaign across the country with three simple steps. Dominic Raab MP for Esher and Walton, who led the debate, was joined by HeadSmart Community Champion, Sacha Langton-Gilks (pictured far right), who lost her son, DD, to a brain tumour last August.
Parliament to debate HeadSmart rollout into schools and homes
The Brain Tumour Charity’s award-winning awareness campaign, HeadSmart, is to be discussed in a debate at Westminster to encourage action at central and local government level to raise awareness of the symptoms of brain tumours in children and young people.
Support and Information survey launched - we need your views
At The Brain Tumour Charity we are passionate about making a difference for people affected by a brain tumour. To help us achieve this aim, we are currently seeking the views of patients and carers who have come into contact with our charity and used the services that we provide.
Two star supporters from Northwich
Eileen and Stephen Sharman from Northwich have raised thousands of pounds for The Brain Tumour Charity over about ten years. In this feature, we share some of their fundraising ideas so others can be inspired too.
HeadSmart highly commended at Communiqué Awards
The Brain Tumour Charity’s HeadSmart campaign to raise awareness of the symptoms of brain tumours in children was highly commended at the prestigious Communiqué Awards on Thursday 4 July 2013.
East Sussex County Council gets behind HeadSmart
East Sussex County Council has agreed to distribute HeadSmart symptoms cards from The Brain Tumour Charity to schools in the county, ensuring that parents, carers and teachers are all aware of the symptoms of a brain tumour in a child and can get the appropriate medical attention if required.
Song for DD launched
A charity single has been released, recorded by serving UK prisoners, who were touched by the story of 16 year-old David “DD” Langton-Gilks, who battled a brain tumour for five years. ‘Song for DD’ is a moving tribute to the brave teenager.
Brain tumour statistics published
The latest statistics collated by Cancer Research UK show that in 2010 over 9,000 people in the UK were diagnosed with a primary tumour originating in the brain, other CNS or intracranial site and that an estimated 445,000 such tumours are diagnosed each year world-wide.
Flipping the switches on childhood brain tumours
Research funded by The Brain Tumour Charity at the Institute of Cancer Research and the University of Cambridge has identified potential targets for new treatments in childhood glioblastoma and medulloblastoma tumours. 29 May 2013
Response to the National Cancer Intelligence Network (NCIN) ‘Routes to Diagnosis’ report
The Brain Tumour Charity welcomes The National Cancer Intelligence Network’s report on ‘Routes to Diagnosis’, released today (Thursday 2 May), and the attention it brings to the delays in diagnosis of young adults and the important issue of diagnosis pathways. We support the National Cancer Intelligence Network’s calls for further investigation to understand why these delays occur and what can be done to reduce them.
Vaccine against brain tumours shows promise in early trials
News of positive results in an early trial of a vaccine designed to increase survival times in adults diagnosed with recurrent glioblastoma brain tumours was released on 1 May 2013 by researchers at the American Association of Neurological Surgeons scientific meeting in New Orleans.
Brain tumour lecture in London
The Brain Tumour Charity hosted its inaugral lecture into brain tumours by Dr Colin Watts on March 21st as part of Brain Tumour Awareness Month.
Fundraisers walk on fire for research
A brave group of fundraisers took part in a Firewalk at Rushmoor Fire Station in Hampshire on Wednesday 20 March to raise funds for The Brain Tumour Charity. With temperatures reaching 1200°F underfoot it was a truly exceptional challenge.
Street Spice festival in Newcastle
Today, Saturday 2 March, is the last day of the Street Spice festival in Newcastle organised by Sachins restaurant in memory of musician Kuly Ral who sadly died from a brain tumour last year. The event is raising money for The Brain Tumour Charity.
The Brain Tumour Charity is pleased to be supporting the AllTrials petition. The initiative is calling for all clinical trials to be registered and data to be published.
The Brain Tumour Charity welcomes HEFCE announcement
Earlier in February, the Higher Education Funding Council for England (HEFCE) published its annual grant letter. It includes funding of £198m for the Charity Research Support Fund (CRSF) – the same total as last year.
HeadSmart wins major NHS Innovation award
We are delighted to announce that the HeadSmart campaign, launched in June 2011, has won a prestigious NHS Innovation Challenge Prize worth £100,000 in the Earlier Cancer Diagnosis category.
Silver bullion bar raffle to raise funds for research
Our supporter, Kevin, has been helping us raise funds for research by holding a series of raffles. The prize each time is a beautiful 200g silver bullion bar. The current raffle ends on January 8 and tickets are £2.50 each.
Getting to know the England rugby team
In October we nominated a series of young people who have been personally affected by a brain tumour for the Sky Sports Dreams Come True award. We were delighted when we heard that our supporter, Rafe Walker, had won a prize.
Potential new combination therapy for glioblastoma multiforme
With the support of The Brain Tumour Charity, researchers at the University of Wolverhampton have discovered a potential new combination therapy for glioblastoma multiforme. This high grade tumour frequently develops drug resistance and has a very poor prognosis but this result offers the potential of an effective treatment.
Glioma Conference 2012 – sharing brain tumour research
In October The Brain Tumour Charity was pleased to sponsor and attend the third annual Glioma Conference. It was co-organised by Professor Paolo Salomoni, Programme Lead at our UCL Centre of Research Excellence, and Professor Silvia Marino of Barts and the London School of Medicine and Dentistry.
Tom Daley and Chris Hollins confirm Gala Dinner attendance
We are delighted to announce that The Brain Tumour Charity Patron and Olympian Tom Daley will be attending our Gala Dinner on Friday 30 November and taking part in a Q&A. He will be joining BBC presenter and Strictly Come Dancing star Chris Hollins who is hosting the event.
Great North Run success
Eleven runners represented The Brain Tumour Charity at the Great North Run on Sunday 16 September, raising an amazing £5000 for world class brain tumour research.
Remember A Charity Week
Remember A Charity Week takes place from 17 – 23 September 2012. The Brain Tumour Charity are very proud to be part of the consortium who are working together to make legacy giving a social norm.
International research and collaboration
A busy summer saw two major international conferences in Canada. The 19th International Conference on Brain Tumor Research and Therapy (also known as the Asilomar Meeting) was held on 21 – 24 June, and the International Symposium on Pediatric Neuro-Oncology (ISPNO) was held in Toronto from 24 – 27 June.
Paediatric research breakthrough
Research funded by The Brain Tumour Charity at The University of Nottingham has identified three sets of genetic markers that could potentially pave the way for new diagnostic tools for a deadly type of brain tumour that mainly targets children.
Fun in the sun at celebrity cricket day
The weather was kind to our Cricknic on Sunday 19 August as Darren Gough led the fundraising efforts for The Brain Tumour Charity in memory of Alex Bolt and Simon Massey.
Sad news about David Langton-Gilks – HeadSmart inspiration
We are deeply saddened to hear that David (DD) Langton-Gilks, an inspirational supporter of the HeadSmart campaign to reduce diagnosis times of childhood brain tumours, has this morning lost his battle with cancer. Our thoughts and deepest sympathy are with DD’s family and friends.
The Brain Tumour Charity moves to Farnborough
After 15 years we bid a fond farewell to Yateley as we move to larger offices in Farnborough to accommodate our growing staff and plans for the future of brain tumour research, fundraising and support.
The Brain Tumour Charity Family Day
Mix a bunch of kids together, throw in some parents, a great location and a whole lot of mud and what do you get? The annual Family Day from The Brain Tumour Charity, that’s what!
Alex Bolt research fellowship
The Brain Tumour Charity Alex Bolt Fund, one of our dedicated support groups, recently presented a cheque for £85,000 to fund The Alex Bolt Research Fellowship
Parliamentary Brain Tumour Lobby 2012
Brain tumour patients and carers and staff from The Brain Tumour Charity joined a mass lobby asking MPs to join them in the fight against brain tumours.
National conference brings hope for the future
The Brain Tumour Charity team recently attended BNOS, the annual conference of the British Neuro-oncology Society. This year’s conference entitled ‘Challenges and Controversies’ was held in Manchester and saw a range of world-class brain tumour research presented, including work funded by The Brain Tumour Charity.