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Supporter Groups FAQs

Why should I set up a Supporter Group for The Brain Tumour Charity?

We are the UK’s largest dedicated brain tumour charity, funding over £1million worth of world class research each year. If you have a particular area of interest, for example, paediatric brain tumours, we can direct your funds directly to relevant projects. All funds raised are spent in the area of our work that you request - we do not use them to fund general office overheads or fundraising costs.

Read more: Why should I set up a Supporter Group for The Brain Tumour Charity? »

Who decides where the funds I raise are spent?

All the funds you raise as a Supporter Group will be spent on furthering our charitable objectives of funding research, providing information & support, raising awareness and influencing policy. We do not use the funds raised by our Supporter Groups to cover general office costs or fundraising costs.

Read more: Who decides where the funds I raise are spent? »

Can I fund a particular researcher or institution?

You are able to request that your funds are allocated to be spent in a particular area, such a research into paediatric high grade tumours. Your funds will then be spent on research projects in this area that have been agreed through our stringent peer review process.

Read more: Can I fund a particular researcher or institution? »

Can I get your celebrity patrons to come to my event?

Sadly, whilst we have some celebrities who support our cause, and lend their name to our publicity, due to contractual obligations it is rarely possible for them to attend fundraising events. As you can imagine, throughout the year, there are literally hundreds of events across the country which raise funds for our work, so it is very difficult to choose which event they should attend.

How much do I need to raise?

We will talk to you about your fundraising goals and ambitions and help you set an income target on a year by year basis. As a general rule our groups raise between £10,000 and £50,000 each year, with the highest income in the first 2-3 years. Most aim to raise a minimum of £20,000 each year.

What happens if I don't reach my target?

We know that you our Supporter Groups are set up for very personal reasons often in difficult circumstances. Whilst we'll set a target for your Group in discussion with you we are very aware that you are a volunteer (as are others who may be helping you) and doing this in your own spare time. We set targets because most people find them useful to focus their efforts and also tell people when fundraising what their ambitions are. We will give you as much support and encouragement as you want to help you reach your target, but if you do fall short, please don’t worry – we won’t disband you, or tell you off - every penny you raise will help us make a difference in the future.

Can I take a break from fundraising?

Of course. We recognise that everyone’s situation changes and that you may not always have the time to dedicate to fundraising and organising events.

We will also help you to set up easy ways to raise funds so that even if you want to take a break your fund is still growing.

How will I know how much I've raised?

Your web pages will be updated each month with amount of money you’ve raised in total.

We are working on further integration with our database so this can happen more frequently.

How will I know what impact the funds I have raised are having?

We will send you quarterly updates so you can tell all your supporters about the impact the funds you have raised are having for The Brain Tumour Charity. Additionally, you will be sent an annual update about any specific projects your money is supporting.

I have a brain tumour or know someone who is living with a brain tumour. Can I still set up a Supporter Group?

Yes, we'd be delighted for you to join us.

Often, our Groups are in memory of someone who has died after battling a brain tumour, but we have Groups set up in celebration of people who are living with, or have beaten a brain tumour. These Groups can be very successful and they can really help raise awareness through sharing their story and what it's like to live with a brain tumour with the media.

What support will you give me?

We want to give you as much support as you feel you need. Katie, our Supporter Groups Officer, is there at the end of the phone or email for any questions you might have and to give you support for your fundraising and events.

In addition to Katie, other members of The Brain Tumour Charity team are available to help you raise the most money possible, for example our communications team can provide advice and support with getting your events publicised and handling the media or designing a flyer/advert.

We recognise that many Groups are set up in difficult circumstances or if you're living with a brain tumour you might have questions and need information about what you're going through. Our professional and compassionate Information and Support Team are there for anyone associated with our Groups at any time (0808 800 0004 / info@thebraintumourcharity.org)

You will be invited to regular conferences and ‘gatherings’ so you can meet with, and get support from, other groups in your area. These days are a chance to swap experiences and ideas, and trade top tips. You’ll also be able to access our special Groups area of the website, with forums, downloads, materials and videos all designed to help you get the most from your fundraising. When you start up, we'll send you a Fundraising Toolkit to help you get started.

We will also provide you administrative support. By becoming a Supporter Group, you have all the benefits of being your own charity (the name), but without the administrative hassles. We deal with all the legal stuff, sort out your banking and keep you updated on total amount you have raised and handle Gift Aid.

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