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Prognosis for ependymoma

Your doctor cannot be absolutely certain about what will happen to your child following a diagnosis of an ependymoma, but they can give you an estimate.

Remember that prognosis is often an ongoing process and will be revised at different stages in your child's journey. You might receive a prognosis shortly after diagnosis based on the tumour type and current situation, but nobody can predict other factors - for example, how well your child responds to treatment.

Receiving information about a brain tumour prognosis

Different people approach their prognosis in different ways.

  • Some do not want to know, because they are afraid of what they might hear and how it may affect them
  • Some just need some time to cope with their diagnosis before asking about their prognosis
  • Others may want to know from the beginning, using their prognosis to plan ahead

There is no right or wrong answer as to whether or when to receive such information. It is entirely up to you whether or when you want to speak to your doctor about prognosis.

Brain tumour survival

The survival rate listed below is for children who live longer than five years. We use this figure because this is one of the main intervals used by doctors for research or measuring purposes. It is not meant to represent how long a child will live past that period and a patient who survives past five years might live as long as any other healthy person, depending on their circumstances.

It is important to remember that statistics and averages cannot tell you exactly what will happen to your child. You can find a general overview of prognosis for ependymoma below.

Ependymoma prognosis

About 60% of children with diagnosed with an Ependymoma brain tumour survive for five years or more.

Get your free brain tumour information pack

Our Brain Tumour Information Pack has been designed to help you cope after diagnosis and support you during this difficult time. It can help to guide you through the healthcare system, answer your questions, and reassure you that you're not alone so that you feel confident when discussing treatment and care options with your medical team.

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