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Haemangioblastomas are tumours that grow from blood vessel cells. They are low grade, very slow growing and do not spread, but they can grow in the brain stem and then they are very difficult to treat. They represent about 2% of brain tumours.

What is a haemangioblastoma?

Haemangioblastoma is a slow growing tumour that is most common in ages between 20 and 40. It could appear anywhere in the brain but it is found most often in the posterior fossa area including the cerebellum and brainstem. This area is located at the lower and lower back of the brain.

What are the causes of haemangioblastoma?

While the causes of most brain tumours are unknown and not linked to one specific genetic disease, around a quarter of haemangioblastoma cases are directly linked to Hippel-Lindau disease. This is a genetic condition which causes vascular abnormalities and increased risk of cancer in other parts of the body. Haemangioblastomas linked to this disease are more likely to recur after surgery.

Get your free brain tumour information pack

Our FREE Brain Tumour Information Pack has been designed to help you through this difficult time, to guide you through the healthcare system, answer your questions, and reassure you that you’re not alone so that you feel confident when discussing treatment and care options with your medical team.

Unfortunately, we’re currently unable to send Information Packs by post. All the information contained in the pack can be found in the email you’ll receive after completing this form.