What to do when your child has been diagnosed with a brain tumour

Finding out that your child has a brain tumour can be a confusing and scary time. We know you will have lots of questions and have developed a range of resources to help you. You can also contact our team with any questions or if you need support.

Brain tumour types

Information about the types of brain tumour that occur more commonly in children.

Clinical trials

Find out more about clinical trials and how to search for a trial that may be relevant for your child.

Biomarkers

Biomarkers can be measured to diagnose your child's tumour type and how they will respond to treatment. Find out more.

Getting a second opinion

You are entitled to ask for a second opinion from another GP, consultant or specialist. Find out more.

Brain tumour treatments

Read more information about the different treatments for children with a brain tumour.

Your child's health team (MDT)

A team of healthcare professionals from different specialities will look after your child. Find out more about their roles.

Questions to ask

You may want to take a list of questions when you seeing the medical team to help you understand and make informed decisions.

Side effects of a brain tumour

Brain tumours may cause effects that can impact quality of life, find out more about side effects and how to cope with these.

Helping your child understand

We have a range of animations about brain tumours, they can help children understand what is happening to them or a sibling.

Contact our Children and Families service

If you have any questions, need support or would like to learn more about our service and how we can help, please get in contact with our team by emailing: childrenandfamilies@thebraintumourcharity.org or calling our Information and Support Line on 0808 800 0004.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:

Information and Support line

0808 800 0004 (free from landlines and mobiles)

support@thebraintumourcharity.org

Phone lines open Mon-Fri, 09:00-17:00

You can also join our active online community on Facebook - find out more about our groups.

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