Dr Stuart Anderson
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Our third annual Nurse and Allied Health Professional Conference will be taking place in September 2018. The conference will bring together experts to discuss and explore Difficult Conversations surrounding a brain tumour diagnosis.
Following the success of our study days, The Brain Tumour Charity are delighted to be holding our third annual conference for nurses and allied health professionals working with adults with a brain tumour in the UK. This year's location is The University of Birmingham and the theme of the day is difficult conversations.
This CPD accredited event will provide an opportunity for attendees to hear from expert speakers on topics that are crucial to the care of those affected by brain tumours. It will bring together the brain tumour healthcare professional community to share and develop best practice across the sector.
Lunch and refreshments will be provided. This will be a great opportunity to meet and network with other healthcare professionals from across the UK.
We will provide you with a reflective paper to complete for your portfolio and a certificate of attendance.
When: Wed 19 September 2018, 08:50-17:00 BST
Where: University of Birmingham, Edgbaston, Birmingham, B15 2TT
Cost: £40 (Early Bird rate: £30) Student £18
Places are limited so don't miss out – sign up before 31 August 2018 to take advantage of our Early Bird Discount.
Please note: each registration must contain individual details for each attendee when booking more than one place.
Should you have any questions please contact: email@example.com
We look forward to welcoming you there!
|8:50 - 9:20||Registration with tea, coffee and pastries|
|9:30||Welcome and introduction||
Sarah Lindsell - CEO of The Brain Tumour Charity
Berrie Norton - Trustee at The Brain Tumour Charity
|9:45||Setting the scene: The difference a skilled conversation can make to the patient and their family from (pre)diagnosis through to EOL care||Ingela Oberg - CNS at Addenbrooke's Hospital|
|10:25||A patient's personal experience of being diagnosed well|
|10:40||Break with refreshments|
|11:00||Living well with a brain tumour and the living well programme giving a good diagnosis in an outpatient experience. Managing patients and families||Victoria Hurwitz - CNS at King's College Hospital|
|11:45||Panel discussion: Difficult conversations in clinic/ward environments||
Audrey Hopwood - CNS at University Hospital Coventry and Warwickshire
Anna Crofton - CNS at the Walton Centre
Nicola Peat - Physiotherapist at Guy's and St Thomas NHS Foundation Trust
Jule Emerson - Speech and Language Therapist at The Christie
Rose Marshall - Occupational Therpist at Guy's and St Thomas NHS Foundation Trust
Donna Gillen - Research Nurse at the QEH Birmingham
Hazel Pennington - Radiographer at The Christie
|12:40||Lunch and networking|
|13:20||Managing expectations of the lived reality of the disease||Dr Stuart Anderson - Neuropsychologist at Hurstwood Park Neurological Centre|
1. Body image/sexuality/fertility
2. Fatigue Management - practical
3. Relationships and mental wellbeing
Beth McCann - CNS at University College London Hospital
Linda Jones - CEO at Salus Fatigue Foundation
Dr Helen Spoudeas - Consultant Paediatric/Adolescent Endocrinologist/Honorary Senior Lecturer
|15:15||Break and refreshments|
|15:30||Advanced care planning and beyond||Becca Riley - Advance Care Planner|
|16:00||Film on brain donation||Claire and Graham|
|16:20||Five take home messages||
|16:30||Summing up the day||Berrie Norton - Trustee at The Brain Tumour Charity|
Lead Consultant Neuropsychologist (Brighton & Sussex University Hospitals NHS Trust)
Dr Stuart Anderson is a neuropsychologist and HCPC-registered clinical psychologist who leads the Neuropsychology Service at Brighton & Sussex University Hospitals NHS Trust. He is a supervisor and examiner for the specialist BPS Qualification in Clinical Neuropsychology and has served on various professional committees and working groups.
He was awarded Fellowship of the British Psychological Society in 2013. His 30-years of experience as a neuropsychologist has included teaching, research and practice in Great Britain, Australia and South Africa. Current and past interests include neuro-oncology, stroke, and traumatic brain injury.
Macmillian Clinical Nurse Specialist / ACP
Audrey has been a clinical nurse specialist in neuro oncology for over a decade. Working initially, at University Hospitals Leicester, establishing and developing a brand new service, and then moved on to University Hospitals Coventry and Warwickshire in 2010. Her current post was one of the first Macmillan posts supporting the rehabilitation and survivorship agenda. Audrey has been running support groups for brain tumour patients and their families for over 8 years.
Audrey qualified in 1992 at St Bartholomew's School of Nursing and City University, London and worked across the UK. Audrey's employment career has included senior posts within the following areas; cardiac and respiratory, oncology, stroke rehabilitation and hospital management. In 2006 by choice having missed hands on care Audrey returned to nursing practice and took a post facilitating and training End of Life Care and the following year moved into neuro oncology. Audrey has several Diplomas, a BSc Degree and more recently Masters in Advanced Clinical Practice.
Audrey is a forward thinking innovative professional and has won several awards in recognition of contribution to best practice and research. More recently in 2017 Audrey was awarded the top Chief Executive Award at UHCW for dedication to patient care. Audrey has published recently in both journals and text books. Audrey sits of a number of panels as an expert professional, including projects with Warwick and Coventry University. Presently she is the vice chair of the National Nursing and Allied Health Professionals group of BNOS (British Neuro oncology Society).
Clinical Nurse Specialist, Young People's Cancer Service, UCLH NHS Foundation Trust
Beth McCann has been a Clinical Nurse Specialist for young people with cancer at University College Hospital in London for 15 years. Prior to that worked for 5 years at Great Ormond Street Hospital for Children in the Oncology department on the oncology and BMT wards followed by 2 years on the Intravenous Therapy Team, where she completed her BSc in Children's Cancer Nursing.
Beth started her career on a general paediatric ward before choosing to specialise in haematology/Oncology.
Since working in her current role Beth has developed a special interest in sexual health and the information needs of young people with cancer as well as the education of staff and has led and contributed to various pieces of work on this topic. Beth is currently undertaking her MSc in advanced nursing practice.
Consultant / honorary senior lecturer in Paediatric /Adolescent endocrinology and Late neuroendocrine effects of childhood tumours
Service lead in Neuroendocrine Oncology
Great Ormond Street and University College Hospitals , London UK
Dr Spoudeas is a paediatrician of over 30 years experience, who subspecialised in endocrinology, undertaking her doctoral thesis in the effects of brain tumours distant from the pituitary midline, on hormone secretion. In 1999 she obtained pump priming part time funds from DoH to set up a pioneering service for survivors of childhood cancer treated across Great Ormond Street and University College Hospitals. From small beginnings this one stop multidisciplinary rehabilitative service, has honed in to supporting brain injured tumour survivors and, 20 years later, has the largest such cohort of young adults (>1000). It was hailed as a beacon by the NICE 2005 children's cancer guidance, which recommended lifelong access to a neurorehabilitative MDT for all children surviving brain tumours. We now lead on producing national best practice guidance for several pituitary tumours, as well as managing late neuroendocrine complications of general brain tumours. In 2017, to raise awareness and increase funding for services, Dr Spoudeas rebanded and relaunched the charitable arm of the service www.successcharity.org with a well received patient networking and educational event for 150.
Dr Spoudeas is a full time split-site endocrine clinician seeing all patients herself from infancy to age 20-25 years. Nevertheless she maintains an active role in collaborative international clinical outcome trials and clinical research, cross filtering paediatric endocrine and oncology specilaisms. She has published over 40 peer-reviewed articles, created 8 national guidelines for paediatric endocrine tumours, been a founding member of quality of survival and pituitary tumour working groups within SIOP CNS and CCLG and is a widely invited international lecturer in her field.
She has a keen interest in fostering the education of future nursing, medical and allied health professionals, building on her past 10 year commitment to the paediatric deanery in London, and has supervised several medical and one psychological MsC ,and 2 PhD students in her field of interest. She is also an active member of the neuroncology MDT, an advocate for families and has led a well received national pituitary tumour forum for complex cases for the last 7 years .
Founder & CEO – Salus Fatigue Foundation
In 2001 Linda Jones' whole world changed. For the next six years her whole life was completely taken over by a silent disability. She eventually lost her home, career and marriage to a condition that was finally diagnosed as Chronic Fatigue Syndrome (CFS), and for which there was no treatment or support. Continually feeling exhausted, her legs would shake if she tried to stand up and at times couldn't even lift her arms or straighten her fingers. With such a deep fatigue and in constant pain, she had to crawl up the stairs on all fours and the mental and physical exhaustion was overwhelming. For a long time, her GP didn't understand it and admitted that she didn't know what to do with her.
Completely isolated and trapped in a different world, she eventually started to research online –slowly and gently introducing small changes and developing her own 'treatment programme'. Nutrition, sleep, pacing, relaxation, Qi Gong and hypnotherapy very gradually helped to improve her health and wellbeing. The effects were huge, set her on her path to recovery and inspired her to help others experiencing the same symptoms. Linda's passion and determination developed in to the charity, Salus Fatigue Foundation, to empower others, to drive change and change lives. To date, with the hard work and support of the committed Salus team, Linda's vision and determination has had a direct positive impact on over 1000 lives, raised awareness with hundreds of health professionals and reached thousands nationally and internationally.
Macmillan lead neuro oncology specialist nurse
CUHFT Addenbrooke's Hospital
RGN, RSCN, DN Cert, MA.
Coach and Person Centred Planner
Becca is a Registered General, Children's Nurse (RGN /RSCN) and a District Nurse. In the past she has worked in a number of clinical nurse specialist roles including that of Cystic Fibrosis Nurse Specialist and Macmillan Nurse Manager. She has experience of leading services as Nurse Advisor in a large Community Trust and as Lead Officer of a Children's Hospice.
In 2008 Becca established a small company offering training, development and Person Centred coaching services, with a special interest in working with those with long term conditions and complex health care needs, and their families. This approach is used to help with communication, decision-making and empowerment and manage the changes, challenges and choices they face in their lives. Becca has recently published and received NICE endorsement for Guidance and Toolkit supporting Integrated Person Centred Planning in Palliative Care. The guidance and toolkit is being evaluated in practice, with young people/ families and staff in 3 organisations, led by a research team based at the University of Birmingham.
Becca's work as a coach is supported with a Post Graduate Certificate (PG Cert) in Personal and Business Coaching. Becca has coached children, young people and families who live with long-term illness. Her approach is always tailored to each individual child, young person or family with the aim of helping them to 'live well.'