Patient Guide to Brain Tumour Treatment and Services

In our Defeating Brain Tumours strategy, we pledged to improve life today for people affected by helping them better navigate the system and ensure equal access to the best treatment and care.

We're pleased to be launching our Patient Guide which will help them do just that.

We know that, following a brain tumour diagnosis, dealing with the NHS and other agencies can be a new and sometimes intimidating experience. We believe everyone affected, regardless of their age, postcode or tumour type should have access to the best treatment, care and information, but are aware this isn't always the case.

Through working with healthcare professionals, patients and carers, we've developed our patient pathway which outlines the standards of care we believe all adults diagnosed with a brain tumour should expect from the NHS. It also includes information on investigations, clinical trials and research opportunities that are not currently routinely offered to all patients, but we believe should be. By having this information, we hope that patients and families will feel empowered to ask about these opportunities, influencing how services are improved over the long term and allowing individuals to access them in the short-term.

People living with a brain tumour can use this guide to feel better informed during their treatment and care, know who and what to ask and feel confident when discussing options with their medical team.

Our Patient Guide will help us reach our goal of halving the harm that brain tumours have on quality of life, sooner.

View our Patient Guide (online magazine version)

Instructions for viewing our Patient Guide on desktop

  1. Follow the link above. When met with the message "Subscribe to receive future issues of Patient Guide magazine in your inbox", select "No thanks"
  2. To read through the magazine, click the left and right arrows at the sides of the pages
  3. You can download the Patient Guide as a PDF file and save to your computer, by pressing the downwards pointing arrow
  4. You can share the Patient Guide on your social media channels by clicking on the 'share' icon, which is the third icon in the left hand menu (on the left hand side of the screen).

Instructions for viewing our Patient Guide on mobile

  1. Click on the link above
  2. When met with the message "Subscribe to receive future issues of Patient Guide magazine in your inbox", click the 'back' arrow, just above the red text
  3. Swipe left and right on your mobile screen to read through the Patient Guide and to read further pages, and return to previous ones.