Brain Tumour Patient Guide

Our Patient Guide to Brain Tumour Treatment and Services aims to help people living with a brain tumour feel better informed during their treatment and care.

We know that, following a brain tumour diagnosis, dealing with the NHS and other agencies can be a new and sometimes intimidating experience. We believe everyone affected, regardless of their age, postcode or tumour type should have access to the best treatment, care and information, but are aware this isn't always the case.

About the Patient Guide

We hope that the information in the Patient Guide to Brain Tumour Treatment and Services will help patients and families feel empowered to ask about these opportunities, influence how services are improved over the long term and allow individuals to access them in the short-term.

The Guide has been developed in collaboration with healthcare professionals and patients, and has been designed to help you know who and what to ask, and feel confident when discussing your options with your medical team.

What's in the Patient Guide?

The guide includes:

  • Our patient pathway which outlines the standards of care we believe all adults diagnosed with a brain tumour should expect from the NHS.
  • Information on investigations, clinical trials and research opportunities that are not routinely offered to all patients, but we believe should be.

By having this information, we hope that patients and families will feel empowered to ask about these opportunities, influencing how services are improved over the long term and allowing individuals to access them in the short-term.

Download the PDF

Complete this short form to download your copy of our Patient Guide To Brain Tumour Treatment and Services

Your details

About you

Keeping in touch

Order through the post

If you'd like a copy of our Guide sent to you in the post, you can order it as part of our Newly Diagnosed Information Pack.

Online magazine instructions

Instructions for viewing our Patient Guide on desktop

  1. Follow the link above. When met with the message "Subscribe to receive future issues of Patient Guide magazine in your inbox", select "No thanks"
  2. To read through the magazine, click the left and right arrows at the sides of the pages
  3. You can download the Patient Guide as a PDF file and save to your computer, by pressing the downwards pointing arrow
  4. You can share the Patient Guide on your social media channels by clicking on the 'share' icon, which is the third icon in the left hand menu (on the left hand side of the screen).

Instructions for viewing our Patient Guide on mobile

  1. Click on the link above
  2. When met with the message "Subscribe to receive future issues of Patient Guide magazine in your inbox", click the 'back' arrow, just above the red text
  3. Swipe left and right on your mobile screen to read through the Patient Guide and to read further pages, and return to previous ones.

Privacy policy and data protection

When you submit the above form, you agree to us recording your details on our secure database. Your details will be kept securely and only shared with trusted suppliers who enable us to deliver our work, for example, distribution of our newsletter. For further information, you can read our full privacy policy and data protection statement. We never sell or swap your details with any third parties, including charities. If at any stage you do not want to hear from us, you can email enquiries@thebraintumourcharity.org, call us on 01252 749990 or write to us.