Brain Tumour Patient Guide

Our Patient Guide to Brain Tumour Treatment and Services aims to help people living with a brain tumour feel better informed during their treatment and care.

The Guide has been developed in collaboration with healthcare professionals and patients, and has been designed to help you know who and what to ask, and feel confident when discussing your options with your medical team.

What's in the Patient Guide?

The guide includes our patient pathway which outlines the standards of care we believe all adults diagnosed with a brain tumour should expect from the NHS.

It also has information on investigations, clinical trials and research opportunities that are not routinely offered to all patients, but we believe should be.

By having this information, we hope that patients and families will feel empowered to ask about these opportunities, influencing how services are improved over the long term and allowing individuals to access them in the short-term.

Get your copy

Our Guide is available in three formats - you can download a PDF, explore our online version or order a copy to be sent to you in the post.

Download a PDF

View online

Browse our interactive online Patient Guide.

Instructions for viewing our Patient Guide on desktop

  1. Follow the link above. When met with the message "Subscribe to receive future issues of Patient Guide magazine in your inbox", select "No thanks"
  2. To read through the magazine, click the left and right arrows at the sides of the pages
  3. You can download the Patient Guide as a PDF file and save to your computer, by pressing the downwards pointing arrow
  4. You can share the Patient Guide on your social media channels by clicking on the 'share' icon, which is the third icon in the left hand menu (on the left hand side of the screen).

Instructions for viewing our Patient Guide on mobile

  1. Click on the link above
  2. When met with the message "Subscribe to receive future issues of Patient Guide magazine in your inbox", click the 'back' arrow, just above the red text
  3. Swipe left and right on your mobile screen to read through the Patient Guide and to read further pages, and return to previous ones.

Order through the post

If you'd like a copy of our Guide sent to you in the post, you can order it as part of our Newly Diagnosed Information Pack.

About the Patient Guide

In our Defeating Brain Tumours strategy, we pledged to improve life today for people affected by helping them better navigate the system and ensure equal access to the best treatment and care.

We know that, following a brain tumour diagnosis, dealing with the NHS and other agencies can be a new and sometimes intimidating experience. We believe everyone affected, regardless of their age, postcode or tumour type should have access to the best treatment, care and information, but are aware this isn't always the case.

We hope that the information in the Patient Guide to Brain Tumour Treatment and Services will help patients and families feel empowered to ask about these opportunities, influence how services are improved over the long term and allow individuals to access them in the short-term.

Our Patient Guide will help us reach our goal of halving the harm that brain tumours have on quality of life, sooner.