Launched BRIAN, our pioneering databank and app, to harness the power of patient data. Since its public launch in late 2019, we have had over 2,000 users (and rising) using the app to help manage their experience, contribute their data towards a cure and use insights from millions of NHS and Public Health England records
Established our Research Involvement Network (RIN), a collaboration between researchers and patients. Since 2015, its 211 members have been involved across 170 research projects including all of the research applications for our funding
70% of patients living with a brain tumour contributing to research (baseline: 24% in 2016)
of patients in the Patient Guide Survey have discussed clinical trials, been offered biobanking, or had biomarker testing
However, it has been difficult to track all patient research activities
By combining national healthcare records with user-input data, BRIAN forms a unique, interactive tool that offers support and information for those affected while providing researchers with critical data.
This allows researchers to better understand people’s quality of life when living with a brain tumour diagnosis. They can use this collective experience of patients, together with national healthcare records, to drive forward research into brain tumours and accelerate progress towards a cure.