Losing Myself report reveals the hardship and isolation faced by brain tumour patients

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Losing Myself: the reality of life with a brain tumour, says many people living with a brain tumour are robbed of their sense of identity, their independence, their ability to work and their relationships.

Four out of ten have had to give up work entirely and half experience financial difficulties following their diagnosis.

Three quarters feel awkward in social situations, with some saying they fear being labelled 'drunk' or 'stupid' because their balance or speech is impaired.

The report, based on the responses of more than 1,000 brain tumour patients, is the most comprehensive study of its kind undertaken anywhere in the world.

An estimated 55,000 people are living with a brain tumour in the UK, with 25 new cases diagnosed every day.

Losing Myself, produced by The Brain Tumour Charity, says:

  • One in three is severely isolated
  • One in three exhibits personality changes – compared by one respondent to a 'Jekyll and Hyde' experience
  • Nine out of ten have emotional or mental health problems
  • Two out of three have relationship problems, with three quarters reporting reduced physical intimacy
  • One in three has visual problems
  • A quarter experience seizures
  • Nine out of ten have become more reliant on others

Read the Losing Myself report.

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