“Clinical trials are essential to giving brain tumour patients more of life’s best moments because we cannot get better treatment without them.” – Ken, who had a glioblastoma removed in 2014, is now on a clinical trial.

To mark International Clinical Trials Day on 20 May, we are supporting the Ok to Ask campaign, getting more patients enrolled in clinical trials.

The Academy of Medical Royal Colleges’ document Choosing Wisely – which has been widely reported in the media – says doctors should work with patients to cut out treatments and procedures which are of ‘questionable value’.

Death. There, we’ve said it. Stark. Frightening. Taboo. We won’t – or can’t – talk about dying. Only by shattering this taboo and, as a society, openly discussing it, can we dilute that fear.

Should donors and fundraisers have more choice over where their money is spent? It’s an ongoing debate among charities not just in the UK, but all over the world.

If you have a brain tumour, should it be a luxury to know you will always be able to talk to one person in your medical team who knows about brain tumours and – crucially – knows about your brain tumour and its impact on you?

This is a guest post by Hatton James Legal, an employment law specialist based in Birmingham.

In the past five years, more than 45,000 people in the UK have been diagnosed with a brain tumour. That’s 45,000 lives turned upside down.

Funded by The Brain Tumour Charity, Dr Chris Jones at the Institute of Cancer Research has deepened our understanding of childhood high grade gliomas.