Tag: BRIAN
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Navigating the path unknown –James’ story.
James was first diagnosed with a brain tumour after having a seizure in 2018. Since then, he has had two awake craniotomies and a string of treatment types. Here, he shares his story on how he has navigated the uncertainty which came with it all.
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BRIAN nominated for prestigious Third Sector Award
It was announced on Friday that BRIAN has been nominated for the ‘Breakthrough of the Year’ award
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Get your chemotherapy questions answered at our virtual Q&A
The Q&A will be held in BRIAN, our online app for people affected by a brain tumour. It’s free to attend and easy to sign up.
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Announcing our partnership with Public Health England
This pioneering analytical partnership with Public Health England’s National Disease Registration Service will lead to us collaborating much more closely, in order to improve the availability of brain tumour information for the benefit of our community.
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Six things you didn’t know BRIAN could help you with
With BRIAN you can track your brain tumour experience and donate your data to help accelerate a cure. But did you know BRIAN can support you in many other ways too?
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BRIAN is making an impact!
BRIAN has been designed for everyone, whether you’re living with a brain tumour, caring for someone who is, or you work in healthcare or research. You can also be a part of BRIAN if you’ve lost someone to a brain tumour by contributing valuable historical data. Here, three users explain how BRIAN has helped them.
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Support for our BRIAN online app increases
Our High Profile Supporters throw their weight behind the development of BRIAN.
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Joining the UK Health Data Research Alliance
We’re delighted to announce that The Brain Tumour Charity has become one of the first charities to join the UK Health Data Research Alliance to improve the quality of data and make it easily accessible for a more innovative and dynamic UK-wide health and care system.
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Data access vital for NHS digital revolution
The Health Secretary, Matt Hancock, has spoken today of his frustration at slow progress towards embracing digital technology in the NHS.
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Using artificial intelligence to assess the treatment response of brain tumours
A research team from Germany has used artificial intelligence to improve the assessment of treatment response in brain tumours
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Be part of the NHS Personal Health Budget survey
NHS England are currently running a questionnaire to find out more about people’s experiences of Personal Health Budgets, which could feed into and shape the future of personalised healthcare
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How The Brain Tumour Charity’s project, BRIAN, is leading a data revolution
The Brain Tumour Charity has long been an advocate for creative and pioneering solutions to the complex problem of brain tumours.
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How can charities support a transformation of patient care through data?
Taz Cheema, our Business Analyst discusses how the patient community have led the development of our data-sharing initiative, BRIAN
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Brain tumour patients lead the way in global cancer databank
Today sees the launch of the Universal Cancer Databank (UCD), which aims to gather information from people diagnosed with cancer around the world to speed up progress towards a cure
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Launching our data-sharing project in quest for brain tumour cure
Pioneering web-app will help patients and researchers
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Launching our world-first patient Databank
The brain tumour databank launches today. This ground breaking project will revolutionise the way brain tumour data is used worldwide
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Announcing our new patient-led data bank initiative
We are launching a global, patient-led data bank, which will allow patients to unite in sharing their data, helping them to make better informed decisions about their own treatment plans, as well as helping vital research that could bring us closer to finding a cure.
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Plans to allow NHS-approved health apps to feed patients’ data into health records
As part of £4bn upgrade of the NHS’ online services, the plan is that this data will be able to improve online resources such as medical records, prescriptions and symptom advice services.