Data is critical
Sarah Lindsell and Professor Ashkan discuss the difference BRIAN will make to researchers and healthcare professionals in helping to diagnose, treat and manage brain tumours
Joining the UK Health Data Research Alliance
We’re delighted to announce that The Brain Tumour Charity has become one of the first charities to join the UK Health Data Research Alliance to improve the quality of data and make it easily accessible for a more innovative and dynamic UK-wide health and care system.
Data access vital for NHS digital revolution
The Health Secretary, Matt Hancock, has spoken today of his frustration at slow progress towards embracing digital technology in the NHS.
Be part of the NHS Personal Health Budget survey
NHS England are currently running a questionnaire to find out more about people’s experiences of Personal Health Budgets, which could feed into and shape the future of personalised healthcare
Review of Informed Choice released
Patients diagnosed with cancer should be told clearly how the NHS will store and use information about their case to help others in future, says a new report.
Genomics England are now recruiting brain tumour participants
Genomics England are now recruiting for patients with brain tumours to take part in the 100,000 Genomes Project. Genomics promises incredible benefits in healthcare through scientific discovery.
Government recommendations for the cancer registry data
We are working with Cancer Research UK, Macmillan Cancer Support and other cancer charities to make recommendations to Government on the subject of cancer registry data.
Public Health England blog outlines the vital importance of collecting cancer patient data
Dr Jem Rashbass, National Director for Disease Registration at Public Health England, has posted a new Public Health England blog about the importance of cancer data.