Tag: policy
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The implications of the Scottish Parliament brain tumour debate
Our Policy & Public Affairs Manager Cameron Miller, outlines tomorrow’s MSP debate in the Scottish Parliament
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Post APPG Brexit
This week our Chief Scientific Officer, Dr David Jenkinson, is speaking at a meeting of the All Party Parliamentary Group on brain tumours about what risks Brexit poses
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Brain tumours: The hot soap storyline
Are they good for raising awareness or should the bubble burst? Our senior media & PR Officer Carol Dyce examines
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The uniting of our international brain tumour community
Our Policy & Public Affairs Manager, Cameron Miller, on Australia’s Cure Brain Cancer AU$100m investment fund
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Debate is key at the Conservative Party Conference
Our Policy & Public Affairs Manager Cameron Miller, reports from the Conservative Party Conference.
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A response to the UK Government’s position paper on science & innovation
We believe brain tumour patients need a ‘global Britain’ after Brexit. The UK Government has published an important paper outlining its current position on scientific cooperation for when the UK leaves the European Union
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Our response to The Life Sciences Industrial Strategy
Yesterday the UK Government published the recommendations of an independent review of the UK Life Sciences industry
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United in the call for brain tumour one-year survival targets to be met
The Brain Tumour Charity CEO, Sarah Lindsell, has co-signed a letter to NHS organisations urging them to meet their one-year survival targets for the early diagnosis of brain tumours.
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How we’re fighting for people affected by brain tumours
From establishing a new cancer taskforce to ensuring benefits reviews take brain tumour patients into account, read our roundup of key activities from the past few weeks.
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How has DevoManc affected The Brain Tumour Charity?
Last year, Greater Manchester became the first English region to gain control of health spending. Read our view on the impact this has had on charities.
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Our work with House of Lords Select Committee on Charities
On Sunday 26 March, the House of Lords Select Committee on Charities published a report, ‘Stronger charities for a stronger society’, following an inquiry into issues facing the charity sector in England and Wales.
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Childhood cancer patients in the UK will miss out on access to clinical trials for new treatments
Many news outlets are today reporting concerns from medical research institutions that childhood cancer patients in the UK will miss out on access to clinical trials for new treatments following Brexit.
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Is the EAMS failing patients?
Cameron Miller, our Information & Support Services Manager, outlines the growing trend for crowdfunding for treatment funds.
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The Brain Tumour Charity asked to lead on discussions around biobanking and early diagnosis
On Monday The Brain Tumour Charity attended the second meeting of the task and finish working group on research into brain tumour (TFWG) which was set up by the Department of Health to address barriers to research.
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What Brexit means for research into brain tumours
Policy Officer, James Thorneycroft, discusses how leaving the EU could affect research into brain tumours.
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Laying the foundations for more effective brain tumour treatments
David Jenkinson, Chief Scientific Officer at The Brain Tumour Charity, discusses laying foundations for more effective brain tumour treatments.
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Research into brain tumours: why money isn’t everything
Beccy Shortt, our Senior Policy and Public Affairs Manager at The Brain Tumour Charity explores the barriers surrounding brain tumour research.
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Review of Informed Choice released
Patients diagnosed with cancer should be told clearly how the NHS will store and use information about their case to help others in future, says a new report.
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Task and Finish group on brain tumour research
We attended the Task and Finish Group on brain tumour research. As experts in the brain tumour research landscape, we were invited to be part of this group following the petitions committee debate on the funding of research.
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Thousands to benefit from Enhanced Supportive Care programme
An innovative programme to improve the care and experience of patients with incurable cancer is being rolled out across the country.
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Brain tumour patients continue to report a poorer experience of diagnosis, treatment and care
People affected by a brain tumour continue to report a poorer experience of diagnosis, treatment and care when compared across all cancers according to the largest survey of cancer patients in England.
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NICE release a new Quality Standard for cancer referral
The National Institute for Health and Care Excellence (NICE) have today released a new Quality Standard (QS) for referral when Cancer is suspected.
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The EU decision: Our strategy continues
On the 23rd June 2016 the UK voted to leave the European Union (EU). We do not yet know how this will affect the brain tumour community.
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Government publishes formal response to calls for more spending on research into brain tumours
The report follows a debate about funding for brain tumour research in the House of Commons on April 18.