Tag: policy
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Petitions Committee report on research funding for brain tumours debated in House of Commons
Yesterday saw the Petitions Committee report on research funding into brain tumours debated by MP’s in Westminster Hall. Over 40 MPs spoke at the debate, with only standing room left as proceedings began.
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MPs to debate brain tumour petition report
A call for government action to prioritise brain tumour awareness and research funding will be debated in the House of Commons on April 18.
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The Brain Tumour Charity’s response to UK Government proposals on PIP
Last week, the UK Government announced changes to the eligibility criteria for Personal Independence Payments (PIP) as part of the 2016 Budget.
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The Petitions Committee’s report on funding for research in to brain tumours is released today
The e-petition calls on larger cancer charities and the government to invest more in research into brain tumours.
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Introducing manifestos for Scotland, Wales and Northern Ireland
This March we’ll be launching manifestos in Scotland, Wales and Northern Ireland ahead of the devolved nations’ elections in May.
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APPG on Brain Tumours this week
On Wednesday 9th December the All Party Parliamentary Group (APPG) on Brain Tumours held a meeting in Westminster to discuss the new five year Independent Cancer Taskforce Strategy. The event was well attended and several MPs came along to listen to the experiences and concerns of our supporters.
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New NICE guideline on brain tumours
We were recently pleased to hear that the National Institute for Health and Care Excellence (NICE) will be developing a new guideline on primary brain tumours and cerebral metastases.
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You’re invited to our APPG on brain tumours
We would like to invite you to our meeting of the All-Party Parliamentary Group (APPG) on Brain Tumours.
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Emergency diagnosis more likely for brain tumour patients
Brain tumour patients are more likely to be diagnosed via a hospital A&E department than those with any other type of tumour, new figures show.
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Off-patent Drugs Bill blocked at House of Commons
The Off-patent Drugs Bill has been blocked at its second reading in the House of Commons despite support from MPs of both parties and a number of charities and health organisations. It will be put onto the agenda for another reading in December, however is unlikely to be allocated time for debate.
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Young Ambassador meets Caroline Lucas MP
One of our fantastic Young Ambassadors April Watkins recently met with Caroline Lucas, the country’s first Green Party MP in Brighton, where she was able to share details of our HeadSmart campaign and her personal experiences as a young adult going through treatment for a brain tumour.
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Clinicians back Off-patent Drugs Bill
The potential benefit of the Off-patent Drugs Bill to people affected by a brain tumour has been highlighted in an editorial featured in The Telegraph. The paper also features a letter in support of The Bill signed by 40 clinicians including Professor Susan Short who is leading a clinical trial to investigate the effect of hydroxychloroquine on high grade gliomas undergoing radiotherapy.
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Our response to the Accelerated Access Review
The interim report of the Accelerated Access Review, a UK Government review looking at ways to speed up patient access to new drugs, was published on the 27th October.
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Latest figures reveal where people live could influence cancer diagnosis times
Cancer Research UK have released some figures that demonstrate how getting a cancer diagnosis in a timely manner varies across the UK.
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New treatments for brain tumours: we need to think differently – Prof. Susan Short
Developing a new drug is hugely expensive. The whole process – from initial laboratory tests through clinical trials to licensing for use in humans (if it gets that far) – is time-consuming and often frustrating.
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Campaign with us to unlock drugs
People with a brain tumour could be prevented from accessing low cost and readily available drugs that have been proven to treat their tumour because the drugs are no longer covered by a manufacturer’s patent. Ask your local MP to vote in favour of the Off-Patent Drugs Bill on 6th November to ensure we change this.
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Our response to new Independent Cancer Taskforce report
On Sunday, an Independent Cancer Taskforce published its report, Achieving world class cancer outcomes: a strategy for England. This sets out 95 recommendations for the delivery of services for cancer by the NHS in England for the next five years. (Tuesday July 21).
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Doctors should order fewer ‘inappropriate’ diagnostic tests
The Academy of Medical Royal Colleges’ document Choosing Wisely – which has been widely reported in the media – says doctors should work with patients to cut out treatments and procedures which are of ‘questionable value’.
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When work doesn’t work – tackling employment problems
This is a guest post by Hatton James Legal, an employment law specialist based in Birmingham.