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Tag: supporter stories

  • Mum thanks HeadSmart after son’s brain tumour diagnosis

    Claire Lloyd came across our HeadSmart website, which lists the most common signs of childhood brain tumours, after her nine-year-old son Jack had been vomiting regularly during the day for more than a week.

  • Louise’s story: My children’s daddy lives on through them

    “I had my husband’s babies six years after he died. It felt right – I’ll always have a part of him,” Louise, whose husband, Mark, lost his life to a brain tumour at 39.

  • Oliver’s story

    Oliver was diagnosed with a grade 4 glioblastoma at the age of 39, in 2012. He shares his story with us, and tells us that he doesn’t want to be defined as “a bunch of symptoms.”

  • Brain tumour blogger Angela Conway wins North East charity award

    Angela Conway, 27, won the Individual Charity Supporter of the Year award at a gala event last night.

  • My bucket list is creating magical memories for my kids

    Sarah was diagnosed with brain tumours after the birth of both of her children. She has put together a bucket list and is determined to fill her family’s life with love and laughter.

  • Ewan and Kerrie’s story

    Kerrie tells us of her joy as her son Ewan starts grammar school after a double brain tumour battle.

  • Molly’s Story

    Molly aces GCSE’s whilst battling undiagnosed brain tumour. She receives 7 A*s and 4 As following proton beam therapy in America.

  • Zoe’s story

    Zoe’s mum Julie lost her life to a brain tumour last year after starting the Heads Up supporter group, which has raised more than £44,000.

  • Nathan and Hailey’s Story

    “We take it in turns to be positive for each other.” When his fiancée Hailey was four months pregnant with their second child, Nathan was diagnosed with a glioblastoma.

  • Neal (in a wheelchair), held so tightly by Sarah, his carer and wife.

    Neal and Sara’s story

    “Just six weeks after we got together, Neal was diagnosed with a glioblastoma. He said I could leave him, but I wasn’t going anywhere. He was the love of my life.”
    Watching Saturday’s episode of Casualty when Glen reveals he has a glioblastoma and tells new girlfriend, nurse Robyn, it’s not fair on her to stay with him, struck a chord with Sara Challice.

  • How long does it take to get diagnosed?

    For the majority of those diagnosed it takes longer than you’d think. A survey by The Brain Tumour Charity found that more than a third of people with a brain tumour had visited their GP at least five times before they were diagnosed.

  • Amber’s story

    Imagine the anguish of being told your nine-year-old daughter wants to kill herself. That’s what Zainab faced as her daughter, Amber was driven to despair by her undiagnosed brain tumour.

  • “I take one step at a time” – Emily’s story

    At the age of 29, Emily Morris didn’t feel right – but she couldn’t quite put her finger on the problem. Neither could her doctors.

  • Josh’s story

    The profound side effects of brain tumour surgery still disrupt and dominate life for Josh, his parents and his three siblings.

  • Dylan’s story

    The stark impact of a childhood brain tumour diagnosis has been captured by a mother who photographed her young son every month as he was treated for the disease.

  • Tributes after Tasha loses brain tumour fight

    Tributes have been paid to The Brain Tumour Charity’s ‘sassy and brave’ Young Ambassador Tasha Floyd, who has died at the age of 24.

  • Ten-year-old’s scan delay after brain tumour battle

    Ewan MacKerracher, a ten year old boy from Coleraine, Northern Ireland, has been diagnosed twice in the past with brain tumours. He has been waiting almost two years for a routine scan that could show any recurrence of the disease.

  • Story of hope: Alice and Emma

    In July 2015 Alice was discharged after nine years of treatment and monitoring for a brain tumour. Her mum Emma talks about what it means to get to the end of treatment.

  • My mother had a terminal brain tumour. Who could possibly understand?

    When my mother Janet was diagnosed with the brain tumour that eventually took her life, I was terrified. Like the rest of my family, I had experienced nothing like it.

  • Carers Week 2015

    We are supporting Carers Week, an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities.

  • Dying well – Improving end-of-life care for brain tumour patients

    Sacha Langton-Gilks lost her 16-year-old son David (DD) to a brain tumour in 2012. We invited her to share her family’s experience, and her passion for improvement in end-of-life care. This is an edited version of the speech she gave at our first paediatric brain tumour information day, which was held in Southampton in May 2015.