To achieve our ambitious goals of doubling survival and halving the harm that brain tumours have on quality of life, we need to accelerate research and empower patients to claim the best treatment and care available.
The creation of a global patient-led databank will help us reach our goals and improve outcomes for people affected by brain tumours. By combining medical data with information given by those affected, the databank will be an unprecedented resource for both patients and researchers to help improve quality of life and treatment success.
The success of the databank will depend on people giving consent to share their data and an ongoing commitment to providing regular updates about their journey and quality of life. This is why we want to ensure that the databank is a project led by you, the people affected; giving you the information and functionality that will help you make decisions about your treatment and care.
If you have been diagnosed by a brain tumour, or have cared for a person with a brain tumour we would like to meet with you to hear your journey and discuss the potential uses of the databank.
Date: Thursday, 16 November 2017
Time: 18:00 – 20:30
Venue: Hamilton House, Mabledon Place, London, WC1H 9BD
Topics of discussion will be around:
Dinner provided and reasonable travel expenses reimbursed. If you have any questions contact: email@example.com