Brain tumour databank discussion

To achieve our ambitious goals of doubling survival and halving the harm that brain tumours have on quality of life, we need to accelerate research and empower patients to claim the best treatment and care available.

The creation of a global patient-led databank will help us reach our goals and improve outcomes for people affected by brain tumours. By combining medical data with information given by those affected, the databank will be an unprecedented resource for both patients and researchers to help improve quality of life and treatment success.

The success of the databank will depend on people giving consent to share their data and an ongoing commitment to providing regular updates about their journey and quality of life. This is why we want to ensure that the databank is a project led by you, the people affected; giving you the information and functionality that will help you make decisions about your treatment and care.

If you have been diagnosed by a brain tumour, or have cared for a person with a brain tumour we would like to meet with you to hear your journey and discuss the potential uses of the databank.

Register to attend

Date: Thursday, 16 November 2017
Time: 18:00 – 20:30
Venue: Hamilton House, Mabledon Place, London, WC1H 9BD

Topics of discussion will be around:

  • Understanding your diagnosis and journey
  • Objectives and uses of the databank
  • Use of the internet and mobile devices by our community

Dinner provided and reasonable travel expenses reimbursed. If you have any questions contact: constantinos.chrysaphinis@thebraintumourcharity.org

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When you submit the above form, you agree to us recording your details on our secure database. Your details will be kept securely and only shared with trusted suppliers who enable us to deliver our work, for example, distribution of our newsletter. For further information, you can read our full privacy policy and data protection statement. We never sell or swap your details with any third parties, including charities. If at any stage you do not want to hear from us, you can email enquiries@thebraintumourcharity.org, call us on 01252 749990 or write to us.