What to do following a terminal brain tumour diagnosis

Receiving the news of a terminal brain tumour diagnosis may cause you to think about what decisions that you need to make about the end of your life, and what support will be available to help you and your family throughout this difficult time.

We have produced some practical resources and will provide information which can help you through this difficult time.

You may wish to know about financial support that will be available to you and your family at your end of life and after you are gone. You may also wish to make clear your requests in relation to treatment at end of life and whether you would like to donate your organs. Or, if you have lost your loved one, you may need to know who to contact after they have passed away.

Supporting you following a terminal brain tumour diagnosis

Financial support for you

Find out what financial benefits may be available to you following a terminal brain tumour diagnosis.

Getting your affairs in order

Find information on how to make a Will, Discretionary Trusts and choosing a Lasting Power of Attorney.


Give the gift of hope to others with brain tumours by granting access to your medical records

Brain donation

Donating your brain gives researchers access to brain tissue vital for developing new and better treatments.

Family support when you have lost your loved one to a brain tumour

Financial support for families

Find out what financial support is available to your family after losing a loved one to a brain tumour.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:

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