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What to do following a terminal brain tumour diagnosis

Receiving the news of a terminal brain tumour diagnosis may cause you to think about what decisions that you need to make about the end of your life, and what support will be available to help you and your family throughout this difficult time.

What to expect at the end of life

In this Marie Curie video, nurse Maria describes the common changes that you might notice in someone’s last weeks, days and hours of life.

If you’re caring for someone who is dying, you might find that there are some things you can relate to. But you might find that you don’t notice these changes or that you notice them at different times – everyone’s experience is different.

We have produced some practical resources and will provide information which can help you through this difficult time.

You may wish to know about financial support that will be available to you and your family at your end of life and after you are gone. You may also wish to make clear your requests in relation to treatment at end of life and whether you would like to donate your organs. Or, if you have lost your loved one, you may need to know who to contact after they have passed away.

Preparing for the end of life

Learn more about how you and your loved ones can prepare for the end of life.

What happens at the end of life?

Everyone's experience of dying is different but there are common changes people go through.

Brain donation

Donating your brain gives researchers access to brain tissue vital for developing treatments.

My child's brain tumour is terminal

Find answers to practical questions you may have if your child is approaching end of life.

How do I tell my child they're dying?

Clinical Psychologist, Dr Emma Porter, shares her thoughts on navigating this difficult time.

What to do after your child dies from a brain tumour

Information answering common questions parents have surrounding the death of a child.

Financial support for you

Find out what financial benefits may be available to you following a terminal brain tumour diagnosis.

Financial support for families

Find out what financial support is available to your family after losing a loved one.

Writing a Will

Learn more about preparing for the future by writing a Will and why it's so important.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
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