Improving Brain Tumour Care surveys share your experiences and help create change

Beyond Brain Tumours

We are developing a new strategy for the future and are committed to co-creating this plan with all those who share our aims, to accelerate progress towards our vision of a world where brain tumours are defeated. Join in to help us create the strategic vision, and implement the changes needed to achieve this ambitious goal.

Join in here

How we’re moving into the future

In order to create our map to the future, we’ve broken the process into 5 key phases

    Phase 1: Joining In

    We form a group, pooling our diverse experiences, ideas, instincts and energy, and set out on an open-hearted, creative journey to build a strategy for The Charity and make things significantly better for those impacted by brain tumours.

    • Nominate groups
    • Community survey
    • Share initial thoughts & worries
    • Design co-creation way of working
    • Share progress publicly
    • Initial scope & any boundaries
    • Formation of the Working group and Steering group
    • Identify key voices 
    • Commit to each other and to guiding principles
    • Storyboard of co-creation journey
    • Blog progress; share exec summary

    Phase 2: Mapping the need

    We hear from everyone, gather everything there is to know, and begin to make sense of the complexity of the operating environment around brain tumours.

    • People’s needs & unmet needs
    • Collate community issues and system issues
    • Landscape analysis*: research, support, awareness, data
    • Opportunities & trends (PEST)
    • Charity capability (SWOT)
    • ‘Player’ analysis *

    *including looking Global

    • Immersive evidence room in Fleet and Miro
    • Factbase of everything that needs fixing, with emerging priorities
    • Snapshot of everyone trying to make a difference & how
    • Pathway through the key findings
    • Blog progress; share exec summary

    Phase 3: Ours To Change

    We understand the biggest ways the world needs to change to eliminate the harm of brain tumours and also what we can develop the superpowers to tackle; we find our purpose.

    • Prioritise issues on impact & influence
    • Map how issues connect
    • Identify drivers of change
    • What success looks like
    • Determine uncertainties and drivers
    • Identify our potential ‘superpowers’
    • Our purpose: What’s the big problem for us to solve. Our scope: How big an answer we need.
    • Our impact framework and theory of change
    • Measure impact baseline
    • Blog progress; share exec summary

    Phase 4: Getting Radical

    We imagine ‘What if… it was radically different for brain tumours’ and work back to the big, transformational forces we could set in motion to realize that change.

    • Tapping thought leaders
    • Innovation workshops:
      We ask what if…? 
    • Reality check:
    • Reset and redefine The Charity’s vision & goals as/if appropriate
    • Draft the strategy outline:
      eg strategic shifts, what will motivate the changes we’ve been tasked with driving, key objectives
    • Share the reasons people can believe in us to achieve:
      eg value, readiness assessment, proof of concept, potential allies
    • Blog progress; share exec summary

    Phase 5: Generating Momentum

    We chart our strategic shifts and programme of change, and work out how to leverage wider movement in systems and culture.

    • Articulate vision & strategy
    • Prioritised plans
    • Define targets & milestones
    • Collaboration plan
    • Storytelling with community
    • Gathering allies
    • [1] Topline Vision and Strategy:
      mission, vision, change drivers, strategic shifts & programmes, overall objectives, risks
    • [2] Strategy in detail:
      more on strategic programmes, measures, targets, budgets, organisation
    • Launch strategy
    • Continue to fuel our powerful network to create change

    Sign up to get involved in contributing to our strategy.