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Losing Myself: The Reality of Life with a Brain Tumour

At The Brain Tumour Charity we are only too aware that a brain tumour diagnosis has a dramatic impact on the quality of life of those affected. Until now, we have been unable to quantify those impacts.

We commissioned research to find out what life was really like for adults living with a brain tumour diagnosis. 1,004 people completed a comprehensive survey, 15 people were selected to take part in face to face interviews and 25 were asked to keep on-line diaries over 7 days.This is the most comprehensive study of its kind globally and the results are compelling.

  • 9 out of 10 people said their tumour had affected their emotional or mental health.
  • 1 in 2 experience memory problems.
  • 1 in 2 people experience financial difficulty.

The research has provided the evidence to illustrate what we have been hearing first hand from those affected and has led to ‘Defeating Brain Tumours’ our five year strategic Plan.


Losing Myself – PDF

This report outlines the daily struggles faced by the majority of those affected and contains statistical information and accounts of daily life that some people may find distressing.

I struggle to work

Tasmin is a single mother of three children, and lives in Cheshire. She was diagnosed with a meningioma in 2013 and underwent a craniotomy. She is a midwife but has struggled with work and finances since the onset of her tumour.