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Online brain tumour support groups

Our brain tumour support groups offer a safe online space where you can connect with others who know what you’re going through.

Whether you’re living with a brain tumour or supporting someone who is, you’ll find a welcoming community of people who have been there and understand how you feel.

You can ask questions, get support from others and share your own experiences at any time of the day or night – it’s a safe space where you can be totally open. Or you can simply read people’s stories, knowing that there are others right there with you.

I’ve gained so much from other people’s experiences. Night or day, there’s always someone online to talk to. It gives me great comfort and I remember I’m not alone on this journey.

Hannah

Find an online support group

Join our Facebook community

Our general Facebook group is for anyone affected by a brain tumour diagnosis.

Join our community

    Join our Living With a Brain Tumour Diagnosis Facebook community

    Our Living With a Brain Tumour Diagnosis Facebook group is for anyone who has been diagnosed with a brain tumour of any kind.

    Join our community

      Join our Carers Facebook community

      Our Carers Facebook group is for anyone caring for somebody who’s living with, or beyond, a brain tumour.

      Join our community

        Join our Parents Facebook community

        Our Parents Facebook group is for parents of children under 18 who are living with, or beyond, a brain tumour.

        Join our community

          Join our Young Adults Facebook community

          Our Young Adults Facebook group is for those aged 16-30 who are living with, or beyond, a brain tumour diagnosis.

          Join our community

          Join our Young Adult Carers Facebook community

          Our Young Adult Carers Facebook group is for those aged 16-30 who are providing care to a loved one who is living with, or beyond, a brain tumour diagnosis.

          Join our community

          Join our Meningioma Facebook community

          Our Meningioma Facebook group is for anybody affected by meningioma diagnosis of any grade.

          Join our community

          Join our support groups on HealthUnlocked

          General brain tumour support group

          Our HealthUnlocked support group is an anonymous platform for anyone affected by a brain tumour diagnosis.

          Join our community

            Acoustic neuroma support group

            An online support group for anyone affected by an acoustic neuroma diagnosis.

            Join our community

              Our community share their top reasons to join

              1. Learn from others 

              The communities’ members can help make your journey a little less overwhelming by sharing their wealth of experiences.

              I quickly realised how helpful it was to read about others going through the same experiences that my daughter and I were.

              Bettina

              2. Know you're not alone

              Our online brain tumour support groups have thousands of members, including some outside the UK. So there’s a good chance you’ll find someone who’s had a very similar experience.

              It was such a relief to find people that knew exactly what I was talking about.

              Margaret

              3. Find support at any time 

              Our communities are open 24/7, so there’s likely to always be someone else there who's unable to sleep at 2am.

              Being in the group allows us to get access to unlimited support whenever it’s required.

              Shane

              4. Discover your options

              You can explore different treatments options by sharing information with others being treated in different places.

              There’s an abundance of information, which is a wonderful resource.

              Annette

              Joining our online brain tumour support groups

              There are a few things you need to be aware of before you join our online support groups.

              • You need to be 16 or over to join. But if you’re under 16, we can still support you – just email childrenandfamilies@thebraintumourcharity.org
              • We’ll ask for a few details before we approve your request to join. This is to make sure everyone finds the right group for them and that our services best meet the needs of our community.
              • We moderate our groups for your protection. You can find our codes of conduct at the bottom of this page or displayed in the groups.
              • Your membership of the group may be visible to other people, but nothing you post there will be shared on your profile or in your timeline.

              Get support

              If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.

              If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:

              Support and Information Services

              0808 800 0004 (free from landlines and mobiles)

              support@thebraintumourcharity.org

              Phone lines open Mon-Fri, 09:00-17:00

              You can also join our active online community - Join our online support groups.