Improving Brain Tumour Care surveys share your experiences and help create change

Feeling isolated or alone

When you or a loved one is living with a brain tumour, you can often feel lonely or isolated – like nobody else could understand what you’re going through. The following resources have been developed to help you tackle these feelings.  

Join our Online Support Community

Our private Online Support Communities on Facebook are a safe and secure space to connect with other people who are affected by a brain tumour and share your experiences.

Loneliness and isolation

People affected by a brain tumour can often feel alone, isolated or disconnected from the world.

Top tips for tackling isolation

Top tips from our community to tackle feelings of loneliness and isolation.

Janet's story

"My mother had a terminal brain tumour. Who could possibly understand?"

Taking care of your mental health

Advice on how to look after yourself if a brain tumour diagnosis has you feeling low.

Chelsea's story

Chelsea, one of our Young Ambassadors, shares her experience of her first Young Adults Service Meet Up.

Videos about mental health

A collection of videos about mental health made with Clare Jacobson a specialist clinical psychologist at Guy's Hospital.