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Changes in vision

Brain tumour symptoms can include changes to vision, such as blurred or double vision, abnormal eye movements, restricted field of view and more.

It is important to remember that brain tumours are relatively rare, which means it is likely that your symptoms are NOT due to a brain tumour. However, it is always important to get any symptoms checked out at an opticians.

How might changes in vision show themselves?

Changes in vision associated with brain tumours can include blurred vision - for example, you may find it has become difficult to watch TV or read.

You may get a fleeting loss of vision lasting a few seconds ('greying out') related to changes in your posture, such as suddenly standing up.

Or you may find you have lost part of your field of vision. This could lead to you bumping into objects, or you could feel as if objects or people are suddenly appearing on one side of you.

Actions to take

Questions to ask

Resources to explore

Actions to take

  • Track your vision changes through BRIAN's quality of life tracker, noting when they are worse or better, any patterns that you see or any changes
  • People often experience more than one symptom before a diagnosis, so make sure you understand what other symptoms a brain tumour can cause
  • Book an appointment with your GP or optician for a check up, and keep a note of any questions that you want to ask
  • Take a look at our page about talking to your doctor for some ideas of what to ask and what to expect.

Questions to ask

  • Do you think I could have a brain tumour based on my symptoms?
  • What else could be causing my symptoms (changes in lifestyle, other medical conditions, etc)?
  • How can I manage the symptoms I am experiencing?
  • Do I need to be referred to see somebody else about my concerns?
  • If I need to make another appointment, when should this be made for? Who should I talk to?

Resources to explore

Why can brain tumours cause changes in vision?

Swelling of the optic disc

Changes in vision can be due to the optic disc at the back of your eye becoming swollen as a result of increased pressure in the skull. The optic disc is the point on the retina where the optic nerve enters the eye from the brain (the retina is the layer of light-sensitive cells at the back of the eye).

Optic disc swelling can be caused by a number of conditions, but when it is due to raised intracranial pressure (ICP), it is known as papilloedema. Papilloedema can be picked up by opticians during normal eye examinations. This can be important as people don't usually experience the visual symptoms in the early stages of papilloedema.

Not all patients with raised intracranial pressure develop papilloedema - this depends on the location and size of the tumour. Also patients who have previously had papilloedema may not develop it in the future.

Pressure on the optic nerve

As the tumour grows, or there is a build-up of cerebrospinal fluid in the brain, it can squeeze normal healthy brain tissue including the main cranial nerves within the brain. The resulting pressure can alter how well the nerve works, and if this happens to the optic nerve, your vision can be affected.

Symptoms caused by tumour position

Symptoms of a brain tumour can vary depending on the tumour's location, and several areas of the brain play a part in an aspect of vision.

Occipital lobe

The occipital lobe is the main area involved with vision. It processes the information coming from your eyes, so that you can understand what you see.

A tumour in the occipital lobe causes difficulties with vision, such as visual loss, or identifying objects or colours. Alternatively, it may cause loss of vision on one side.

Parietal lobe

Damage to the parietal lobe can cause difficulty with:

  • Bringing together information from your different senses (touch, vision, hearing, smell, taste) and making sense of it e.g. a person may bump into furniture that they have seen, but have misjudged where it is in relation to themselves.
  • Co-ordinating movements
  • Spatial awareness e.g. judging distances, hand-eye co-ordination
  • Speaking, understanding words, writing and reading. It can also cause numbness on the opposite side of the body from where the tumour is.

Cerebellum

Damage to the cerebellum can cause flickering of the eyes, as well as problems with balance, a loss of co-ordination, difficulty walking and speaking, vomiting and a stiff neck. It can also affect the fine co-ordination of the muscles leading to problems with dexterity (skills in using your hands).

Brain stem

For tumours in the brain stem, symptoms can include double vision, as well as unsteadiness and difficulty walking, facial weakness and difficulty speaking or swallowing.

Temporal lobe

A tumour in the temporal lobe can affect the ability to recognise objects, as well as identifying emotions in others, hearing, memory and learning.

I think I have a brain tumour, what should I do?

Brain tumours are rare, however, if you're worried and a symptom persists or if you have more than one symptom of a brain tumour then:

  • Talk to your doctor
    GP appointments are usually quite short, so make sure you find out how to best prepare for your appointment.
  • Get an eye test
    If your symptoms are limited to changes in vision and/or headaches, get your eyes tested by an optician before seeing your GP.
  • Go to A&E
    If the symptoms are sudden or severe, you should go to your emergency department or call 999.

Should I speak to a doctor during the coronavirus pandemic?

We understand you may feel worried about seeking help from your GP during the coronavirus pandemic – but please don't delay speaking to a healthcare professional.

The NHS and your GP are still here for you and have made changes that make it easier to safely speak to a healthcare professional and get medical help if you need it.

It's more important than ever for you to prepare for your appointments by understanding what might happen during the appointment and what questions you want to ask.

Share your experiences and help create change

By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.