Share Your Story

When you or a loved one is diagnosed with a brain tumour, it can take time to absorb the news. But there may come a time when you’d like others to learn a bit about what you’ve been through in case they find themselves in similar circumstances. We often hear from people when they reach that point. It can also help to share your story if you are involved in fundraising or awareness raising activities. If you decide to do this, if and when the time is right for you, we are hugely grateful as it also helps to spread the word about what we do and how we can help.

Why it’s good to talk

Everyone copes with a brain tumour diagnosis differently. Some people find it easier than others to speak about their experiences. Some people would rather not talk about it at all, while others find solace in hearing about others’ experiences and sharing their own. Whatever your decision, opening up to just one or two people and talking things through can help if you feel you are bottling up your emotions. Experts suggest that talking about the diagnosis can have positive effects on your wellbeing. Find out more by reading our Q&A with psychologist Katherine Carpenter.

The people featured on this page have chosen to share their stories through us. Below, they discuss their experiences, explain why they were motivated to speak out and the effect that a diagnosis had had on them, their families and the wider community.