Improving Brain Tumour Care surveys share your experiences and help create change

Share Your Story

When you or a loved one is diagnosed with a brain tumour, it can take time to cope with the news. You may find it difficult or uncomfortable to talk about it with people you know.

Experts suggest that talking about the diagnosis can have positive effects on your wellbeing. Find out more by reading our Q&A with psychologist Katherine Carpenter.

Why it’s good to talk

Everyone copes with a brain tumour diagnosis differently. Some people find it easier than others to speak about their experiences. Sometimes people feel that sharing their story widely is not the right choice for them, or that the time is not right. But even opening up to just one or two people and talking things through can help if you feel you are bottling up emotions inside.

The people featured on this page have chosen to share their stories through us. Below, they discuss their experiences, why they spoke out and the effect this has had for them, their families and the wider community.