Our High Profile Supporters
Our High Profile Supporters are researchers, business leaders, athletes and celebrities who support The Brain Tumour Charity and help us drive change for everyone affected.
We’re constantly working to raise awareness of brain tumours in research, healthcare, policy, and the general public. We need to do this to push forward our strategy and accelerate towards cures. We could not do this without the help of our wonderful High Profile Supporters.
Their extensive media presence and personal connection to our cause constantly boosts our campaigns, initiatives, reports, and research, helping us move towards a world where brain tumours are defeated.
High Profile Supporters
These entertainers, athletes, and celebrities are incredibly supportive of The Brain Tumour Charity. They are highly engaged with the work we do, campaigning and fundraising with us. Their tireless support and generosity is invaluable to our mission.
Nicki Chapman
Broadcaster and presenter
Nicki’s career has spanned the music entertainment industry for years, including her roles as a judge on Pop Idol and Popstars (with the like of Simon Cowell) and as a music PR and agent. She is now TV presenter and a Radio 2 host. Nicki had a meningioma brain tumour diagnosis in 2019 and had subsequent surgery to remove it. She continues to support the work we do, raising awareness and campaigning for change for everyone affected. She presented our BBC Lifeline Appeal in 2023 and was also shortlisted for a Third Sector Award for her celebrity work with us. Alongside other High Profile Supporters, Nicki championed our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024. “It’s the initial shock of diagnosis and then the shock when you tell people that can be more distressing. It’s like a slap. When you have to ring people up and tell them, your family, it’s just hideous. “If you’re having bad days let yourself have bad days. It’s like giving yourself permission, don’t fight against yourself. You say to yourself: ‘tomorrow, it’s still going to be a bad day and I’ve still got this condition but I’m going to find one thing in that day that is good.’” “I want to do whatever I can do to help raise awareness and help others understand that they’re not alone in this.”
Tom Daley
Diver and Olympic medallist
Tom has passionately supported us over many years in our drive to raise awareness and much-needed funds for vital research. Following his incredible Tokyo Olympic wins, Tom dedicated his Olympic jumper to raising funds for us in memory of his Dad and then took to social media channels including Tik Tok to raise further funds and awareness on the back of his burgeoning knitting brand. In late 2021 he also fronted our campaign to crowdfund for our Savitex GBM trial, due to start in March 2022. Tom was also instrumental in supporting our 2.6 Challenge during the COVID-19 crisis. He was part of Team GB’s efforts to help raise vital funds for charities during this difficult time, as one of the 26 Olympians Challenge. Tom’s dedication to his support for us saw him host a meet ‘n’ greet event in February 2019 with our Young Ambassadors at London’s Olympic Pool and took time to chat and show everyone around his training facilities. The subsequent video of the day was used extensively across our social channels and shared with the national media. Tom said: “In just one month alone around 800 people will be diagnosed with a brain tumour. I’m honoured to be part of this charity that’s really close to my heart. Together, we can save lives.” Tom also was instrumental in our hugely successful 2017 BBC Lifeline appeal, raising vital funds for research and greatly spreading awareness of the work we do. He remains a committed supporter and continues to help us raise our profile via his social media channels and multimedia endorsements. Read more about Tom’s support, losing his dad to a brain tumour and the importance of continued funds for research here.
Hal Cruttenden
Comedian, writer and actor
A long-standing supporter of The Charity, Hal signed up to take part in our Sahara Trek in late 2022 and continues to support all our campaigns. Hal was also instrumental in organising The Charity’s comedy night in 2017, selling out The Backyard Club in London and drafting in comedy legend friends including Dara O Briain. He then hosted a second comedy night in 2018, at the Underbelly on the Southbank and was the face of our 2019 Brain Tumour Awareness Month (BTAM) campaign, filming two appeal videos. Hal speaks from the heart about losing his mum to a brain tumour and continues to support us. “Watching my Mum decline and battle so bravely through two operations, the radiation and chemotherapy treatments was obviously tough. On receiving the diagnosis she said, ‘Well, I’ve had a wonderful life’. “It is unimaginable to me how people cope with such news when it’s delivered to them when they’re a young adult or when it’s about their little child. That’s why the work that The Brain Tumour Charity do is so important and so inspiring.” Read the full interview
Lord Charles Spencer
Younger brother of Diana, Princess of Wales, author, journalist, and broadcaster.
“I became involved with The Brain Tumour Charity a long time ago, when it was known as the Samantha Dickson Research Trust. My association with the latter arose from an invitation from Samantha’s parents, Neil and Angela, to be part of the charity established in their late daughter’s name: Samantha had died from a brain tumour, aged just 16. “As the father of several children, I did not hesitate for a second from joining up as one of the charity’s patrons: it was the very least I could do, to show solidarity in the face of tragedy. “Despite their brilliant efforts, and their undoubted successes, brain tumours remain the number one killer of children and adults under 40 in the UK. “My grandmother died of a brain tumour, in 1972, in her seventies. She was the most lovely lady, dedicating her life to helping others, and recognition of that fact is found in the hospice in nearby Northampton being named ‘Cynthia Spencer’, in her honour. “While my grandmother lived a full life, others are cut down in their childhood or youth by the same, appalling, disease. In being a patron of The Brain Tumour Charity, I want to show my support for curbing brain tumours’ dark powers, and for turning the tide against a force that has claimed too many young lives.”
Amy Nuttall
Actress and musician
Amy became one of our cherished celebrity supporters in January 2024. Best known for her appearances in Mr Bates vs The Post Office, Emmerdale and international hit series, Downton Abbey, she lost her beloved mum, Elaine, to a glioblastoma brain tumour in October 2023. Amy went on to release the fundraising single Thank You Mother, on Mother’s Day 2024. This brought with it unique opportunities to further raise awareness and Amy’s profile as our celebrity supporter and she sang as a VIP guest at the prestigious Smiley Charity Film Awards in Leicester Square. She also played a key part in our call for a UK-wide National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024 and took part, alongside her dad and nephew, in our flagship fundraising event, The Twilight Walk in London. Amy has been shortlisted for a Third Sector Award 2024 for the amazing work she’s done in support of The Brain Tumour Charity. “To become a part of this wonderful community, The Brain Tumour Charity, fills me with much pride and I hope very much that we can bring some much-needed change and awareness.”
The Wanted, Tom and Kelsey Parker
Musician
Singer Tom Parker and the rest of The Wanted supported our work in the years leading up to his tragic death from a glioblastoma brain tumour in 2022. Despite his diagnosis, Tom remained resolute in raising his voice to drive awareness of the disease, standing united with us in calling for further funds and innovation in research and for his heartfelt support and inspiration for so many others. The band and Tom supported the work we do and back in 2022 released a song to help us raise vital funds for research. This originally was borne from a request of Tom’s family to play Gold Forever at his memorial. The Wanted decided to create a more fitting version and Gold Forever (For Tom) was produced. The track was played at Tom’s memorial and the band posted it the same night so the fans could hear it Tom’s wife Kelsey continues to inspire all the community, particularly with her work with Ahead of the Game Foundation, and most recently has supported our March 2024 call for a National Brain Tumour Strategy.
Phil Spencer
TV Personality
Phil Spencer, co-presenter of Channel 4’s Location, Location, Location and Love It or List It, has supported The Brain Tumour Charity for many years. He has taken part in several Verbier ‘Everest in the Alps’ for us; gruelling expeditions, skiing 8,848m uphill, the equivalent height of Mount Everest, to raise money for research we fund into low-grade paediatric brain tumours at The Everest Centre in Heidelberg, Germany. His support continues to help us drive change for youngsters like Spencer family friend 11-year-old Toby Ritchie, who was diagnosed with a brain tumour at the age of just five. Toby’s dad Rob, is the brains behind the Everest in the Alps. Phil has said of the challenge: “What will keep us going as a team is knowing that we’re making a difference. And The Brain Tumour Charity and the Everest Centre need that support and need us to make that difference.”
Lewis Moody MBE
‘Mad Dog’ Moody, English rugby union player and part of the 2003 World Cup-winning team
“Getting involved with the Family Days through The Brain Tumour Charity has been fantastic on so many levels. Lifting the spirits of families going through challenging times, seeing them be able to communicate, offload and share their stories is humbling and the impact is instant. You see parents relaxed and supported, along with their children being happy and carefree from the mundane routine of daily medical intervention and worry. We feel proud to attend them and to support The Charity in all its endeavours.” Lewis and his wife, Annie, also run The Lewis Moody Foundation, working closely alongside us to raise funds and awareness. Lewis was one of a host of our High Profile Supporters who championed our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month in March 2024 (pictured).
Holly Matthews
Actress
“When my husband Ross received his diagnosis, our world changed forever. Getting a brain cancer diagnosis is scary, especially when you then hear how little funding goes towards brain cancer research. It’s heartbreaking. You are left feeling no-one is even looking for answers, working out how to cure this deadly disease. How will we ever do that without support. “That’s why The Brain Tumour Charity’s work is essential. Don’t wait until someone close to you, or even you, is affected by this disease, do your best to support their work now. Together we can have a huge impact. For people like me, knowing that research is happening, is hope. It’s worth holding out for.” Ross sadly passed away in July 2017. Holly continues to be use her award-winning social media channels to help us promote our commitment to improving the quality of life for everyone affected. She was nominated as Influencer of the Year in our 2018 celebrating You Awards. She supported our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024.
Sian Reese-Williams
Acclaimed TV and theatre actor
Sian, an award-winning stage and BBC star, ran the 2019 London Marathon for us to support the work we do and in memory of her wonderful brother Llŷr, who sadly died from a brain tumour in January. “My brother Llŷr lived with a brain tumour for 14 years and fought a brave fight every day. When we were told in the summer of 2018 that there was no more that could be done for him, I decided I wanted to do something to help the countless other families dealing with this terrible disease. “I discovered the brilliant work that The Brain Tumour Charity does in research and support for patients and their loved ones, and I am honoured to help them in whatever way I can. “My brother was a life-force. A man who lived every day of his life with joy, humour and courage. He never let his illness define him or stop him from doing anything he wanted to do and I’m so proud of him. The least I can do is try to help others live their lives in the same way, in Llŷr’s name.” Sian’s many roles include Emmerdale, the critically acclaimed Welsh crime drama Hinterland , the BAFTA award-winning series 35 Diwrnod for S4C and BBC One/Netflix drama Requiem. She has also won the BBC London Theatre Award. She supported our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024.
Sherrie Hewson
Actress and TV presenter
Loose Women, Wonderbirds and Benidorm star Sherrie feels “driven” to help us raise awareness after her brother, Brett, was diagnosed with a glioblastoma in March. “Brett’s diagnosis has been devastating for the whole family. Out of all the roles I’ve had in the hundreds of years I’ve been in this business, this is the most important role because my brother and I want to raise awareness for The Brain Tumour Charity. “You never think it’s going to happen to you. You never think it’s going to be part of your family and, when it is, you don’t actually believe it. “Then it hits home – that it does happen and it is happening. “We all support each other but some families don’t have that – The Brain Tumour Charity offers support for children and adults.” Sherrie played Solana manager, Joyce Temple-Savage, on ITV comedy Benidorm and toured the UK for nine months in the spin-off Benidorm – Live! show – and there are rumours it will soon hit the big screen. She was a popular panellist on ITV’s Loose Women for 14 years and has starred in many TV shows in a career spanning five decades including Coronation Street and Emmerdale and she took part in Celebrity Big Brother in 2015. Sherrie supported our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024. Watch Sherrie and Brett’s video Photo by: Julian Hamilton, Sunday People
Alastair Stewart OBE
Journalist and TV news presenter
Alastair provided the voiceover for our documentary filmmakers and supports our Everest in the Alps fundraising expedition “It is an honour to be able to work with such a worthwhile charity and their continuing efforts to tackle this disease.” Alastair also hosted our March 2018 ‘Ask the Researcher’ evening held at Kings College London. In attendance were leading brain tumour experts from around the world who presented their findings and new developments in treatments to an audience of members of our UK community. Alastair also continues to use his social media channels to support our key messages. He also supported our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024.
Dominic and Jess Matteo
Footballer and broadcaster
Dominic is a former defender who played for, among others, Liverpool, Leeds and Scotland during a 15-year career and is recovering from a brain tumour diagnosis and surgery. In November 2022 he was diagnosed with an ependymoma brain tumour and had seven hours of surgery to remove it. Alongside his wife, Jess, he continues to help us raise vital awareness our research and to raise funds by supporting fundraising events. He backed our March 2024 call for the implementation of a National Brain Tumour Strategy. “Living with a brain tumour is tough, but so am I, and so you are you. The Brain Tumour Charity offers a wealth of support in all areas, for which myself my family and many others are eternally grateful. Dominic continues to support our individual fundraisers when he can and attended a huge golf tournament in Leeds in September 2024, together with his wife Jess. @Dominicmatteo21
Philippa Forrester
Television presenter, producer and author
Philippa championed our HeadSmart early diagnosis campaign following her son Fred’s, brain tumour diagnosis. “On my husband’s birthday in 2016 we were told that it was likely that our 15-year old son Fred would die. A moment that will live in my heart forever.” In 2016, Fred had been experiencing exhaustion and struggled to concentrate at school but everyone assured her it was normal for a teenager. However, when persistent headaches kept happening, Philippa sought medical advice: “I took him to the doctor, who said they were migraines, which made perfect sense because that’s what my husband and I both have.” During the summer holidays, Fred was still complaining that his computer screen was making his head hurt. Something was not right. Another trip to another doctor followed. “The eye doctor said, ‘I want you to have an MRI scan immediately.” After arriving at hospital, Fred had a huge seizure and was rushed to an emergency room. Fred’s scans revealed that he had a rare PGNT glioma brain tumour. The news was devastating. Following surgery and regular scans Fred, now 17, has made a good recovery, his resilience shining through. “Early diagnosis is key. If I hadn’t taken him to the eye doctor we could have lost him. Often the tumour isn’t spotted and the person just dies because there isn’t time to save them. We have been incredibly lucky.” Philippa supported our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024. Read the full article here
Vicki Michelle MBE
Actress
Vicki has supported The Charity since 2023, following her beloved sister, Suzie’s brain tumour diagnosis. Most recently starring in EastEnders, Vicki Michelle’s career has spanned huge UK televisions series including Emmerdale and the iconic comedy series, ‘Allo ‘Allo! Vicki has appeared alongside some of the UK’s most famous and favourite comedians such as Ronnie Barker and Ronnie Corbett, Les Dawson, Dick Emery, Kenny Everett, Cannon and Ball, Little and Large, Ken Dodd, Bobby Davro and Lenny Henry. Vicki attendee our much-publicised London art exhibition TIME, along with many of our High Profile Supporters such as Nicki Chapman and Hal Cruttenden and continues to champion our work, especially with our March 2024 call for a National Brain tumour Strategy. Sadly, her sister Suzie died in September 2023. “It is my privilege to support this charity in any way I can to help raise awareness of what needs to be done to fight this cruel and terrible disease, to help with fundraising for research and to let everyone affected by it know they don’t have to face it alone.” Vicki used her considerable media presence to support our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024.
Deliciously Ella and Matt Mills
Award-winning cookery author and entrepreneur and husband Matt Mills.
Ella Mills started off with the popular blog, deliciouslyella.com, which has had over 130 million hits in the last four years. She recently supported our #UniteOnABike fitness event led by Psycle studios’s Rod Buchanan, living with a brain tumour himself, and attended by others in our community directly affected by brain tumours. Matt ran the 2019 London Marathon for us, raising vital funds and awareness on social media of the work we do. Deliciously Ella have also contributed some exclusive recipes as part of our newly designed Information Packs for 2019. “We’re really pleased to be supporting all the brilliant work that The Brain Tumour Charity does. Our family has recently been affected by a brain tumour and we’ve seen first-hand how important the support, research and awareness they offer is.” Ella is the daughter-in-law of Baroness Tessa Jowell, who galvanised the political community in the House of Lords with her campaign for those affected by brain tumours following her own diagnosis. Ella and Matt continue to support the vital work we do each day for everyone affected.
The Charlatans
Band
Together with lead singer Tim Burgess, The Charlatans have continued to support us in our aims of raising awareness, support and funds for vital research into brain tumours. The band’s hugely talented and much-loved drummer, Jon Brookes, died of a brain tumour in 2013. View their website
Marc Silk
Voice actor: Star Wars, Aardman, Scooby-Doo and more
Marc was diagnosed with a brain tumour in 1990 aged 18, and helped us launch the Jake animations A key supporter, Marc took part in our hugely popular Family Days in 2019, offering support and inspiration to those who came along. He continues to support our strategy. “My mantra was ‘I am going to get through this and I am going to have an incredible life.’ The intention behind Jake is brilliant and I’m sure he’ll help The Charity’s fantastic work.” Marc supported our call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024. Marcsilk.com/ @marcsilkCelebrity Supporters
These celebrities have worked with us in the past and continue to support our determination to drive change for everyone affected, from our 2024 call for a National Brain Tumour Strategy, to supporting the community with their fundraising initiatives over the past few years. We continue to be hugely grateful for their support.
Mollie King
Mollie King, The Saturdays singer and Radio 1 broadcaster, lost her beloved dad Stephen, to a brain tumour in August 2022 and since then has raised funds and awareness through her media status and her own fundraising. Her sister Laura ran the London Marathon for us in 2023 and Mollie said: “My family have been utterly heartbroken by what this horrible disease did to Dad and want to do all we can to raise awareness and funds for @thebraintumourcharity, who work to help everyone affected by a brain tumour or brain cancer.”
Miles Jupp
Comedian, presenter and author, Miles Jupp, himself living with a brain tumour diagnosis, lent his considerable support to our ongoing call for a National Brain Tumour Strategy in 2024, during Brain Tumour Awareness Month (BTAM). His recent tour On I Bang, based around his own diagnosis, became critically-acclaimed and Miles continues to support our community and our work to drive change as one of our cherished Celebrity Supporters.
Sophie Kinsella
Internationally award-winning and much-loved author Sophie Kinsella, recently spoke publically about her gbm brain tumour diagnosis and the impact it has had on her family. Supporting the work we do, particularly our call for our 2024 National Brain Tumour Strategy. Sophie recently appeared on Good Morning America to tell her story alongside her husband Henry. She continues to inspire so many affected in the community, raising vital awareness.
Sue Perkins
Broadcaster, presenter and author Sue Perkins, living with her own brain tumour diagnosis, has supported all UK charities in tackling this devastating disease. Sue recently interviewed our other High Profile Supporter, actress Amy Nuttall (pictured) on her Radio 2 show, talking about the release of Amy’s charity track for us during Brain Tumour Awareness Month (BTAM) 2024.
Anthony Forde, wife Laura and Wrexham AFC
Wrexham footballer Anthony Forde, along with his wife Laura Mangan and Wrexham AFC, have lent their support to our work, especially our call for National Brain Tumour Strategy in 2024. Laura was diagnosed with a brain tumour in 2023.
Rob Delaney
Internationally-acclaimed comedian, actor and author Rob Delaney tragically lost his son Henry to a brain tumour in 2016. Rob supported our work on social channels during Brain Tumour Awareness Month (BTAM) 2024, backing our UK call for a National Brain Tumour Strategy.
Kelsey Parker
Singer Tom Parker’s wife, Kelsey, continues to inspire all the community, particularly with her work with Ahead of the Game Foundation, and most recently has supported our March 2024 call for a National Brain Tumour Strategy over on our social channels. She also attended our much-publicised TIME art exhibition in London 2023.
James Jordan
After James’ dad Allen, died from a brain tumour in March 2021, he went on to support and fundraise for us, famously shaving his head. The popular Strictly Come Dancing star, along with his wife Ola, continue to support our work.
Dawn Cruttenden
Dawn, previously married to our High Profile Supporter, Hal Cruttenden, is a renown artist and author. She has supported The Brain Tumour Charity over many years, attending our events such as our Celebrating You Awards, and she took part in TIME, our 2023 London art exhibition with her own work.
Charly Clive
Charly Clive is an English actress, known for her role as Marnie in the television series Pure. In 2015, aged 23, after being diagnosed with a brain tumour, she wrote about her experience in a sellout comedy show with Ellen Robertson called Britney, which was named after her brain tumour. She was nominated as one of the Screen Stars of Tomorrow in 2018. Read our interview with Charly here.
Roman Kemp and Martin Kemp
Martin has championed The Brain Tumour Charity’s work over many years since his own brain tumour diagnosis. The English musician and actor has previously been hugely supportive of our symptom awareness campaign HeadSmart, and our Young Ambassador program, offering hope and inspiration in their own experiences of this devastating disease.
Mel Giedroyc
Mel has previously supported our symptoms awareness campaign, HeadSmart, that has successfully reduced the diagnosis time for paediatric brain tumours from over thirteen to six weeks. The English actress, comedian and television presenter and co-star with fellow celebrity Supporter, Sue Perkins, has been a hugely influential media personality for many years.
Dawn French
Actress and author, Dawn has been a long-term supporter of The Brain Tumour Charity and friend of our founders, Neil and Angela Dickson. She continues to champion our work through them and The Samantha Dickson Fund, set up in memory of their beloved daughter who died from a brain tumour and who who inspired the formation of The Charity.
Jim Moir (Vic Reeves)
Jim Moir (aka Vic Reeves) is a hugely influential UK comedian and acclaimed artist and has had his own brain tumour diagnosis. He has been a feature of British broadcasting for many years, along with comedian Bob Mortimer. They have both been kingpins of shaping popular culture and Jim now concentrates on his prestigious artistic career and influence. He recently supported our UK government call for a National Brain Tumour Strategy during Brain Tumour Awareness Month (BTAM) in March 2024.
Matt Allwright
Matt Allwright, a much-loved British TV personality, presenter and journalist, has supported our HeadSmart and awareness campaigns, particularly during various Brain Tumour Awareness Months (BTAM) over the last few years.
Jonny Wilkinson CBE
Former Rugby Union player for England and the British and Irish Lions: “I cannot even begin to imagine what families and individuals go through when confronted with such a disease. The Brain Tumour Charity is inspiring change, a reason to believe and they are providing genuine hope that one day soon it won’t have to be this way.”
Lorraine Kelly OBE
Broadcaster and journalist: “Over 800 people will be diagnosed with a brain tumour during the Brain Tumour Awareness Month of March and brain tumours are still the biggest cancer killer of children and adults under 40. This has to change. I am going to #WearItOut with love on 4 March for all those affected by brain tumours and fully support the great work The Brain Tumour Charity does for this important campaign and others in 2016 and beyond.” Lorraine featured Peter Williams on her prime-time morning show, highlighting and supporting his incredible fundraising challenge. Peter cycled over 200 miles on his seven-year-old daughter Ellie’s tiny bike – her last Christmas gift – in her memory. The route started at Bristol Children’s Hospital where Ellie received treatment and finished a week later at Land’s End and with the help of the publicity of Lorraine’s show, managed to raise over £35,000.
Olivia Colman CBE
Oscar-winning actress, Olivia has supported our work in defeating brain tumours and our drive for more vital funds for research. Acclaimed for her work across global TV, theatre and film, Olivia continues to pick up awards in her dazzling career. She was at the forefront of Brain Tumour Awareness Month work in March 2017 and continues to support the research, awareness and support work we do.
Watch Olivia’s message of support for us here.
Nick 'Peanut' Baines (Kaiser Chiefs)
Keyboardist for the Kaiser Chiefs, Nick ‘Peanut’ Baines (far left) is the keystone to the world-famous indie rock band The Kaiser Chiefs. Nick’s beloved Dad, Alan, died from a gbm, just four months after being diagnosed. Nick has supported the work we do, striving for a cure, and lending his considerable support to our social media presence.
Phil Tufnell
Phil, a former English international cricketer and media personality, has championed The Brain Tumour Charity over many years, particularly lending his support to our fundraising community for specific events and also on his many TV appearances, most recently in Spring 2024.
Tchéky Karyo
Award-wining international actor
In the last, third, series of The Missing, Tchéky Karyo’s detective character, Julien Baptiste, was diagnosed with a brain tumour. The devastating effects of this on his work, the case and his family relationships was expertly portrayed, garnering praise from the brain tumour community and viewers of the hugely successful drama. The spin off series, Baptiste, achieved one of the BBC’s highest audience ratings for 2019 and Tchéky continues to support our work through social media and with an exclusive interview to press. Tchéky also featured in our 2017 Brain Tumour Awareness Month campaign and continues to support our work. The French-Turkish actor also supports a French cystic fibrosis charity. “Best of luck for all the people you fight for.” The Missing series 2 was one of the highest viewed UK shows of the last year and Tcheky returns to our screens later this year in the spin-off drama, ‘Baptiste’.
Jason Durr
Actor
Casualty star Jason and his wife Kate, are close friends with Ella’s Fosbury-Hill’s parents. Ella lost her life to a brain tumour in 2013 at the age of just 11. “Ella’s loss was devastating and, as friends, it was hard to watch such a wonderful little girl succumb to such a cruel disease and watch the impact on her family. “Working on the Casualty storyline brought back memories of Ella’s devastating diagnosis and the feeling of wanting to believe there is hope – even when there is none. “I know that more can be done to treat and possibly cure this disease and prevent the awful suffering it causes for those affected and their families. “Now I am backing The Brain Tumour Charity because I support its mission to defeat brain tumours so that other families are saved the heartache I’ve seen Ella’s family endure.” Watch Jason’s message of support
Dillon St.Paul
Art Director
Dillon St. Paul is a multi-award winning Art Director who has spent more than 16 years in the media and magazine publishing industry. He is best known for his appearance as a candidate in 2016’s The Apprentice on BBC One. Dillon was diagnosed with a glioma and underwent neurosurgery to have it removed. He wrote a heartfelt and cathartic blog post on his website about his experience which resonated with thousands of our community. “I think it’s hugely important to raise more awareness of brain tumours and the implications they can have on patients’ lives – not just from a scientific medical stance but also from a human one. “I aim to help to create wider understanding of the effects brain surgery and a diagnosis can have on an individual and their families on a emotive level through my own experience.”
Steve Backshall
BAFTA-winning TV presenter, naturalist and explorer
Steve is backing our drive to reduce diagnosis times for paediatric brain tumours “Brain tumours are still woefully underfunded as is the research into them. It’s vital that we get behind the incredibly invaluable work for those who are affected and those who could be in the future.” Watch Steve’s video message here
Owain Arthur
Actor Owain Arthur portrayed Glen, who has a glioblastoma, in Casualty’s powerful storyline
“Playing Glen gave me an insight into the devastation of being diagnosed with a terminal brain tumour and the horrific challenges – both physically and emotionally – people face every day. Out of respect to them, I wanted my portrayal to be as accurate and sensitive as possible. “I have the utmost admiration and respect for people living with a brain tumour who get up every morning, determined to make the most of their day. I’m happy and honoured that playing Glen has helped me to raise awareness about such a cruel disease and this brilliant charity’s mission to defeat it. “The Brain Tumour Charity’s expertise and crucial advice enabled me to do justice to Glen’s role – I couldn’t have done it without them.” Owain recently supported our call for a National Brain Tumour Strategy during March’s Brain Tumour Awareness Month 2024 (BTAM). Watch Owain’s message of support
Martino Sclavi
Film producer, author
In March 2020 sadly, Martino Sclavi died. He was a driving force in much of our work, and a huge advocate for the entire brain tumour community. He had the most wonderful personality; warm, funny and incredibly passionate about the need for more research and greater support for people affected by brain tumours. He talked openly about his own diagnosis and used his platform to help inspire others facing the same prognosis. We will all miss him greatly and our thoughts are with his family. Martino was a long-standing High Profile Supporter of The Charity, championing our drive for research and a figure at many of our events. His book The Finch In My Brain was a huge source of inspiration to others affected, becoming a must-read tale of triumph over treatment and he was loved by our community. Martino always took time to meet others affected; at our Celebrating You Awards where he was a guest of honour, supporting our comedy nights, or attending our charity events. He was only too happy to reach out with personal contact to those he met and those whose hearts he touched. Most recently he appeared in an Autumn 2019 documentary supporting Helena Traill’s 100 Stories acclaimed cancer art project and book. Helena’s mum, Angela, paid tribute to him: “Martino touched our lives through our daughter, whom he helped with her final degree, with his openness about his illness. He inspired her to live each day with less fear about what might happen. Rather as he said, ‘today is a beautiful day!’ You will be sorely missed and we are very lucky that Helena met and spoke to you. You helped her so much. RIP Martino and Thank you for everything.” Martino’s loss is a fierce reminder of why we must move further and faster every day in the battle against brain tumours, so that other families do not have to endure this kind of heartbreak in the future. Martino was first diagnosed with a brain tumour in 2011 while working on a film in Los Angeles and underwent surgery. Six months later he had another operation in Rome. Devastatingly, the side effects of this surgery and the tumour drastically affected his ability to read. Martino’s book, documenting this transformation of his life, has recently been published. He has thrown his considerable support behind the work we do in terms of raising awareness and understanding of brain tumours and their effects on all those affected. “Six years ago I woke up in a hospital in Los Angeles where I was told that I had 98% chance of dying within 18 months. After a second brain operation I realised that I could no longer read the text that I was typing away instinctively. “So I embraced my computer and started writing The Finch in My Brain, a book about the various adventures of my family and I, trying everything possible to beat these impossible odds. “Given that this battle with cancer is extremely complex, we all need to attack it simultaneously from all sides, scientifically, psychologically, financially, socially and politically.” Martino’s book The Finch in My Brain is published by Hodder & Stoughton
The Neales
Musicians
The Neales are a four-piece family band and finalists of Britain’s Got Talent 2015. They’ve given The Charity huge support for fundraising and awareness, attending and promoting the likes of our Joseph Foote Ball and The Lewis Moody Foundation and they’re working with us on future 2017/2018 campaigns. “Having had first-hand experience of the impact a brain tumour can have on a family, we are honoured to support the incredible work the charity does. “Furthermore, the family values and inspirational attitude demonstrated by so many of the people behind The Brain Tumour Charity makes us proud to continue to help however we can.” The Neales are made up of father Laurie Neale (62), and brothers James Neale (30), Dan Neale (28) and Phil Neale (26). Visit their website
Russell Watson
Classical singer
A long-term supporter of the charity and having survived two brain tumours himself, Russell threw his 2018 ‘Canzoni d’Amore’ tour’s weight behind our work. Described by the New York Times as a performer “who sings like Pavarotti and entertains the audience like Sinatra”, he subsequently released ten studio albums, each one receiving more critical acclaim than the last. “Being diagnosed with a brain tumour is devastating for those affected and their loved ones. I’m honoured to support The Brain Tumour Charity; not only do they provide invaluable support for patients and families at the most difficult of times, they actively raise awareness of symptoms to enable quicker diagnosis, and provide essential funding for pioneering research into treatments of this life-threatening illness.” Russell’s recent support has included the call for our 2024 government-backed National Brain Tumour Strategy during March’s Brain Tumour Awareness Month (BTAM). View his website
Sandy Lyle MBE
Scottish championship golfer and broadcaster
One of Britain’s top golfers in the 1980s, Sandy was made a member of the World Golf Hall of Fame in 2012. Sandy has supported the charity ever since, appearing at fundraising events and advocating for the work we do. “In 1997, Neil and Angela Dickson contacted me asking if I could support the Samantha Dickson Brain trust and, after reading Samantha’s story, it didn’t take me long to become a patron. “Now, many years later as The Brain Tumour Charity, I am proud to see how much has been achieved but know too how much more is needed. “Future research together with the support and care for the diagnosed and not to forget bringing awareness all requires continuous funding. “Golf lost Seve Ballesteros to a brain tumour. He was an Icon, a fierce competitor, a legend and a personal friend of mine. I know he would have wished for every child to get a chance to experience golf. How fitting for me to continue my support.”
Ian 'Chilly' Chillcott
Angler, broadcaster and author
Affectionately known as Chilly, Ian is a star of the angling community, a renowned carp fisherman, acclaimed author and TV commentator, as well as a beacon of inspiration and expertise in the angling community in the UK and internationally. Chilly was diagnosed with a brain tumour in 2017 and has supported the work we do ever since. He also hosts the annual Chilly Chillcott Cup, a Berkshire fishing competition at Holme Grange Fishery each June that brings many of the community together to raise vital funds and awareness.Researchers and healthcare professionals
Professor Richard Gilbertson MD, PhD
Director, Cambridge Cancer Center
“I have spent more than 25 years studying the biology and treatment of children’s brain tumours. Therefore it is both a pleasure and honour to serve one of the world’s largest brain tumour charities as together we seek to fund the most excellent brain tumour research. The SAB plays a critical role in the charity and wider research community, ensuring that we identify and select for funding the highest quality research projects that will have the greatest impact for patients.”
Professor Colin Watts
Clinician Scientist & Hon Consultant Neurosurgeon
Professor Watts specialises in the genomics of glioblastoma (GBM) and in the role of glial progenitors in their evolution and development. His team are also interested in developing patient-specific models of GBM to evaluate intra-tumour variability in genomic and clonal architecture. They have developed FGMS (Fluorescence-Guided Multiple Sampling) as a unique means of interrogating GBM in real time during surgery. This is coupled with integrated genomic analysis to establish high-resolution molecular genetic characterisation of GBM, enable phylogenetic reconstruction and define clonal organisation of tumours at the level of the individual patient.
Dr Antony Michalski
Paediatric oncologist, Great Ormond Street Hospital
A consultant at Great Ormond Street Hospital (GOSH) since 1993, Dr Michalski leads a multi-disciplinary team committed to delivering the best outcomes and patient centred care. He is Chair of the National Cancer Research Institute Children’s Cancer and Leukaemia Central Nervous System Subgroup, promoting research into childhood brain tumours. Dr Michalski has also published 34 papers in peer reviewed journals and has written book chapters and reviews. He holds national grants for research into childhood brain tumours. He is also a member of The Brain Tumour Charity’s Quality of Life Scientific Advisory Board, the group responsible for the assessment and rating of applications for research funding and makes recommendations to The Charity’s Board of Trustees, and is also a supporter of the Lewis Moody Foundation.
Professor Keyoumars Ashkan
Professor of Neurosurgery, King’s College Hospital
Prof Ashkan is the Professor of Neurosurgery at King’s College Hospital with specialist interests in neuro-oncology, functional and image guided neurosurgery with 20 years of consultant level experience. Prof Ashkan is the clinical lead for neuro-oncology covering the 4.5 million population of South East London and Kent. He has an active research interest in brain tumours and has over 650 publications; serves on a number of international committees and is a reviewer for several high impact medical journals. He is the Co-Chair of the Neuroscience Research Delivery Unit at King’s. He serves on the council of the Society of British Neurological Surgeons and is the Immediate Past President of the British Society for Stereotactic and Functional Neurosurgery. He led the Genomics England 100K Genomes Project for Brain Tumours. His surgery to remove a brain tumour whilst the patient remained awake and played the violin reached the global audience.
Professor Susan Short
Professor of Clinical Oncology and Neuro-Oncology, Leeds Institute of Cancer and Pathology Wellcome Trust
“In my field of brain tumour research, the challenges are particularly tough. I’ve been working with teams at University College London and The University of Leeds on repurposing a drug called hydroxychloroquine, which is licensed to treat arthritis and malaria. Thanks to promising laboratory tests, we think hydroxychloroquine could help brain tumour patients by making their cancer cells more sensitive to radiotherapy treatment.” Read Professor Susan Short’s blog post on treating brain tumours
Professor Barry Pizer
Consultant Paediatric Oncologist, Alder Hay Hospital
“I am delighted to welcome the results of ‘Losing my Place: The Reality of Childhood with a Brain Tumour‘. In my opinion this is a very important addition to the literature on Central Nervous System Tumours in Children and young people. As health professionals dealing with patients suffering from brain tumours, our focus is very much on trying to cure our patients and their is a clear risk of losing sight of the effects that a brain tumour has on the everyday lives of patients and their families as they go through the treatment journey and beyond. “The study is important for patients themselves to appreciate that they are not alone in their problems and may help patients open up to their families and treatment team. In addition, the results of this study should be strongly considered when planning the care of brain tumour sufferers including the provision of optimum support for patients and their families.”
Mr Sorin Bucur MD, MRCS (Ed), FRCS (SN)
Consultant neurosurgeon, Brighton & Sussex University Hospitals, and guest keynote speaker at our 2015 Brighton Information day
“Developments and possible cures will come through research and from the redesign for tumour classification. It’s just a matter of money but discoveries, new treatments and one day hopefully cures will be found. Thank you to your organisation for helping make this possible for every neurological department in this country.”
Dr Paul Brennan BSc (Hons) MB BChir MRCS (Ed), PhD
Senior lecturer in neurosurgery, University of Edinburgh, leading our 2016 Early Diagnosis research.
“Our research aims to understand the reasons why some adult patients take longer than others to be diagnosed with a brain tumour. The team will propose simple guidelines that will help GPs better identify which patients have a brain tumour and hopefully lead to rapid referral to a specialist. This research could transform the lives of brain tumour patients.” Read our interview with Paul in which he talks about his inspiration to become a researcher as well as what he is working on.
Professor Denise Sheer BSc, BSc(Hons), D.Phil.
Researcher at Queen Mary, University of London
“The way The Brain Tumour Charity funds research is a great example of best practice. The projects are scrutinised thoroughly by independent peer reviewers, which leads to a period of interaction where they suggest ways that the project might be improved. They support innovative research, and this is exactly what the field needs. The Charity is doing a fabulous job of advancing brain tumour research.”
Dr Chris Jones
The Institue of Cancer Research, London
“The impact of The Brain Tumour Charity’s funding over the last 18 months has meant that we have already been able to identify a link between the development of tumours and the mechanisms that control the repair of DNA within the cells. This is a big step forward for us. Over the coming months we aim to identify newer, safer, less toxic therapies specifically targeted so they spare children from existing toxic or ineffective therapies and improve quality of life.” Read more about paediatric research
Dr Steve Pollard
Cancer Research UK Senior Research Fellow, The University of Edinburgh
Dr Pollard established his own independent lab in 2010 at the new UCL Cancer Institute, supported by The Brain Tumour Charity (within the Samantha Dickson Brain Cancer Unit). In 2013 his lab relocated to the MRC Centre for Regenerative Medicine and he was awarded the prestigious Cancer Research UK Senior Fellowship. His group is exploiting the latest genome editing technologies that have opened up new opportunities for understanding the biology of glioblastomas (GBM). Find out more about Dr Pollard’s workIn this section
Recommended reading
We’re raising the benchmark
We’ve been recognised as Charity of the Year 2018 for our pioneering approach, innovative research solutions and, above all, our community-centred approach to everything we do.