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Our closed Facebook groups are a great place to connect with other people affected by a brain tumour-related and share your experience of how it affected your ability to work.Facebook support groups
Staying in, returning to, or looking for work after a brain tumour diagnosis can be quite a challenge - for people who have a brain tumour and for people caring for them.
Receiving a brain tumour diagnosis is a life-changing event that often has a far-reaching effect on your ability to stay in employment or find a job in the future.
You might need to take a significant amount of time off for appointments, treatment and recovery. It can also be much harder to work in the same way as before because of side-effects caused by the tumour or its treatment - for example, unmanageable fatigue or cognitive difficulties.
Many people have to give up work entirely, change job, or reduce their hours or duties. If a partner is acting as a carer, their work may be affected too. As a result, financial difficulties are common for families affected by a brain tumour.
It's completely normal to worry about the potential financial impact of your diagnosis or feel anxious about how your employer will react to the situation. Many people in our community also speak about the loss of identity and purpose that work can provide.
Simply being more aware of your employment rights can help you feel less anxious about the situation. The resources below have been developed to help you understand your rights and make sure you:
Ray Shipley, who was diagnosed with a hemangioblatoma aged 25, is a senior manager of the ISV Growth Strategy at Salesforce, a cloud software company headquartered in San Francisco.
Our employment resources can help you decide whether you want to tell your employer about your diagnosis and guidance on how to have that conversation. There are also suggestions of "reasonable adjustments" that could be made by your employer to help you to stay in employment.
Much of the information is also applicable for those caring for somebody living with a brain tumour diagnosis. There is also a resource specifically for employers to help them understand their responsibilities and how they can better support you.
Use this resource to look at the pros and cons of telling your employer about your, or your loved one's, diagnosis, and how to go about it.
Use this visual resource to help make your employer/colleagues aware of the possible effects of brain tumours and their treatment. You could print off the body map to highlight those which affect you.
A 'charter' of the employment rights of people with, or caring for someone with, a brain tumour. It covers England, Wales, Scotland and Northern Ireland.
This sheet gives examples of 'reasonable adjustments' that can be made in the workplace according to the side-effects you are experiencing.
Use this to understand how best to support your employee and your responsibilities towards them.
A list of specialist organisations and services that can give information, advice and practical support to help you apply for, stay in, or return to work. Many can also give information and advice to employers.
If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
0808 800 0004 (free from landlines and mobiles)
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You can also join our active online community on Facebook - find out more about our groups.