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Campaign with us

We campaign on behalf of all people affected by a brain tumour, ensuring your voice is heard where it matters most. Whether you can give a little time or a lot, we’d love you to join us and raise your voice for change.

Together, we can take action and effect change. But we can only do this with your support.

Join our Policy Involvement Group

By signing up to campaign with us, you will become a vital part of our Policy Involvement Group. The Policy Involvement Group is the voice of our community and helps form our official positions on political matters that affect people with a brain tumour.

If you've been personally affected by a brain tumour, want to help others or simply if you're interested in issues around healthcare, welfare and medical research, then the Policy Involvement Group is a chance for you to share your experiences and help shape our work.

​What's involved?

There are a wide range of ways you can get involved when you join our Policy Involvement Group, both from home or in your community, including:

  • Join our sessions four times a year which involve presentations, workshops and internal speakers
  • Evaluating written materials
  • Review our policy positions
  • Promote our campaigns on social media
  • Share experiences with friends or fellow campaigners in the community to raise awareness and ask them to do the same
  • Acting as a patient representative on a hospital board or steering group
  • Meeting your MP in your constituency on behalf of other patients and caregivers to talk about our current campaigns, and keeping up a conversation with them
  • Attending a training day, lobbying event or day of actions

The amount of time you give or level of involvement is completely down to you.

What skills or experience do I need to become a campaigner?

You don't need any campaigning experience. By being personally affected by a brain tumour or knowing a loved one with a diagnosis, you're an expert through your experiences.

By sharing your story and personal experiences, as well as your passion for change, you can help influence decision makers, raise awareness, help shape our campaigns and lead our drive for change.

What if I can’t give much time?

The level of involvement or how much time you can give is entirely down to you. Whatever time you can spare, we'd love you to campaign alongside us.

There isn't a set pattern to campaigning activity and because the political landscape can change quickly it can be hard to predict when we'll need you. But rest assured that we will call upon you when we need you and, together, we will help make an impact for those affected by a brain tumour.

Will I receive any support or training?

Having a personal story to share and using it to campaign for better conditions for all those affected by a brain tumour is all you need. Nevertheless, our Policy team are always on hand to provide information, advice and guidance.

If you have any questions, please email