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1 in 4 people we spoke to said they experienced cognitive difficulties because of a brain tumour or its treatment, including trouble with learning, concentrating, problem solving, planning and decision making.
It's important to remember that not everybody who is affected by a brain tumour will experience cognitive difficulties.
For those that do, the symptoms and severity will differ from person to person, so you may not have the same problems as someone with a similar diagnosis and treatment plan.
Cognitive difficulties are a common side-effect experienced by people living with a brain tumour or receiving certain tumour treatments.
This can be very mild and may not be immediately noticeable, only coming to light when you attempt complex tasks or if you return to work. You might simply feel that your memory or mental functioning has "slipped" but it won't generally impact your daily life.
If the impairment is more severe, however, it may make some aspects of daily life difficult and you may require support.
You may become easily distracted and find it difficult to keep focused on a task over a long period of time. This can include losing the thread of conversations or starting tasks and not finishing them.
Another common symptom is not being able to concentrate when more than one thing is happening, for example, when you are in a crowd, or several people are speaking at once.
You might find the effort to overcome these difficulties can be extremely tiring as you try to focus and concentrate.
Social cognition refers to our ability to understand social situations and behave in an appropriate way - this can include knowing when to talk, when to listen and how to respond appropriately. It can also make it difficult for someone to understand humour.
This type of thinking difficulty can cause people can lose their inhibitions. This can lead to them becoming inappropriately elated or depressed, acting uncharacteristically vulgar or being overly argumentative or passive. Unfortunately, those affected are often unaware they are behaving inappropriately or might show little regard for the consequences.
If your social cognition is impacted by a brain tumour it can be extremely isolating and it can affect your relationships and ability to work. Some people may find it difficult to understand these changes in behaviour or may think you are being unreasonable.
Memory difficulties are usually with short-term memory, while long-term (old) memories are retained. This can mean that you may have trouble learning new things or remembering recent things, such as recent conversations.
You may also have difficulty remembering to do things, such as keeping an appointment.
Executive functions are the high-level processes of the brain (cognitive functions) that include planning, organising, solving problems, making decisions and reasoning.
Examples of how this could show itself include:
For some people, these thinking difficulties can result in being fixated on one thing, having an inability to plan ahead or making it harder to learn from previous experiences. If you have difficulties with making decisions, you may also make decisions that appear spontaneous or out of character.
There are many ways that a brain tumour can affect your ability to communicate with others and you can find detailed information about this on our communication difficulties page.
The following examples are a few ways cognitive difficulties might impact your communication skills or make it difficult to express your thoughts:
Perception is the process of taking in information from the world around you, organising that information and forming an understanding based on it - a brain tumour can cause difficulties forming that understanding.
This can include difficulties recognising objects or understanding their function, judging distances or carrying out a movement or task, even if you understand what you need to do.
Some terms you may hear in relation to brain tumours and perception are:
A rare disorder that affects a person’s ability to recognise objects, people, words and sounds.
Although someone with agnosia will see or hear something, the sight or sound is stripped of its meaning. As a result, they may confuse the function of the object, e.g. they may use a comb as a fork or vice versa.
A disorder of the brain and nervous system where a person has difficulty carrying out a movement or task, even if they understand what they need to do. Apraxia is also known as dyspraxia and can make tasks, such as pouring water from a kettle, very difficult - often making the person appear clumsy.
In the UK, apraxia means the complete loss of the ability to co-ordinate movements, while dyspraxia refers to partial loss of this ability. However, other countries apply the terms in various ways.
Some perception difficulties include visual problems, such as being unaware of objects around you because of reduced sight on one side of your field of vision. You can find detailed information about this on our sight difficulties page.
Use BRIAN’s Snap challenge to test your response speed. Monitor over time how many responses you can give in 20 seconds and speak to your healthcare team about any changes if you’re concerned.
BRIAN is our trusted online app where you can track your experience, compare it with others who’ve been there and get the knowledge you need to make informed decisions.
Each section of the brain is responsible for different functions, some of which are complex and wide-ranging. As a result, the likelihood and type of thinking difficulty someone might experience will be affected by the physical location of the tumour.
Surgery, radiotherapy and chemotherapy can all interfere
with your memory or your thinking and reasoning abilities, at least temporarily.
In some cases, the removal of the tumour and the pressure it was causing on the brain, can lead to an improvement of cognition.
However, it can also lead temporary cognitive difficulties caused by swelling and increased pressure in the brain. Steriods may be given to help reduce the swelling quicker, lessening the impact of any thinking difficulties.
It's important to remember that the purpose of surgery is to remover as much of the tumour as possible and any removal of brain tissue can affect the cognitive function controlled by that area of the brain.
Although radiation to healthy cells is kept to a minimum, radiotherapy can damage the blood supply to brain cells in the treated area. This can cause swelling or fluid retention and press on the brain, which is called 'radiation induced encephalopathy'.
It can also cause a shortage of oxygen and nutrients to the brain cells, which, over time, can lead to the cells dying. You may hear this called 'radionecrosis'. As a result, thinking difficulties can develop months, or even years, after radiotherapy treatment. It can also cause any existing impairment to get worse over time.
Regularly referred to as "chemo brain" or "chemo fog", people receiving chemotherapy often experience difficulties with memory and concentration, after having chemotherapy are common. The changes are usually mild, but can affect your quality of life.
It's important to remember that you should never stop taking prescribed medication suddenly.
You should always speak to your healthcare team about any side-effect you are experiencing, including cognitive difficulties, and they will work with you to develop a more suitable treatment plan.
When steroids are prescribed they often reduce pressure on the brain caused by swelling or retention of fluid, thereby improving cognitive function. However, they can also cause mood disturbances, difficulty concentrating and memory problems.
A small number of people may also experience steroid-induced psychosis if given high doses of steroids while in hospital.This can include periods of hypermania, where you may become prone to making impulsive or rash decisions, alternating with periods of depression. These effects are usually temporary but you should alert your healthcare team if you experience any of these symptoms.
Some older anti-epileptic drugs (AEDs) have been known to cause thinking difficulties that affect someone's memory, ability to concentrate and executive functioning, such as slowness in thinking. Newer generation AEDs are less likely to cause cognitive difficulties and have fewer effects when they do.
The following are some of the more common factors that contribute to cognitive difficulties if you're living with a brain tumour.
Seizures themselves are thought to have an effect on cognitive functioning. People with brain tumours and epilepsy have been found to have slower processing speeds and problems with attention and executive functioning.
People with epilepsy seek help for memory problems more often than for any other cognitive difficulty. This is possibly because the temporal lobe is often involved in seizures, as well as being important in memory functions.
One of the most common side-effects of living with a brain tumour is fatigue, which is a well-known cause of cognitive difficulties. Fatigue can have a significant impact on memory, concentration and ability to plan and organise, as it can deplete the energy required for these functions.
A brain tumour diagnosis is a huge life event that can often impact on a person's mental health. Mental illnesses like depression or anxiety may negatively affect cognitive functions, such as motivation, concentration and memory.
Brain tumours and many tumour treatments can affect your appetite, making you feel like you don't want to eat. However, not eating can actually make thinking difficulties worse and cause you to be more fatigued. Now more than ever it's important for you to eat a balanced diet if possible.
Alcohol has a general depressive effect on the brain and can cause many cognitive difficulties. This includes slower thinking or reaction times, reduced reasoning or inhibitions and memory problems. It's therefore advisable to avoid alcohol.
While there’s no simple cure for cognitive difficulties, you can work with your healthcare team to help improve your cognitive functioning or develop coping strategies that will lessen the impact on your day-to-day life.
For example, if you’re having seizures, your health team can work with you to find an AED that best reduces the effect of the seizures. Similarly, they will select an AED that’s less likely to add to your cognitive burden.
Dosages of medications, such as steroids, can also be altered if they’re believed to be causing additional cognitive effects or making existing effects worse.
Your healthcare team can also identify whether your problems are made worse by other underlying factors, such as depression or anxiety, and help to address these.
"My ability to think is better on some days than others. Pushing too hard usually leads to setbacks, so I try and take things slowly."
"I ask people to be patient with me. Giving me time allows me to work through my thoughts and helps me to rebuild pathways in my brain. But rushing or multi-tasking just make things harder."
"I had cognitive assessments before and after treatment, to show how my cognitive function changed. It's helped me see that what I'm experiencing is very real and indicated how occupational therapy can help me."
"The results of a cognitive assessment can be useful to show to your employer, to help them understand any problems you might have and changes they can make to support you"
Join one of our our Online Support Communities for more tips about coping with a brain tumour diagnosis, from people who truly understand what you're going through.
This will usually depend on what's causing your cognitive difficulties.
If they're the result of something temporary, for example swelling around the brain after treatment, often the effects of the cognitive difficulties will fade as you recover.
If the thinking difficulties are caused by permanent damage to your brain, for example during radiotherapy, the effects may not go away.
When thinking difficulties are caused by something you're able to change, for example by no longer drinking alcohol or making sure you're well hydrated, they effects may lessen if you take steps to prevent them.
If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.
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