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Improving Brain Tumour Care Surveys

We’re passionate about ensuring everyone affected by a brain tumour diagnosis has access to the best treatment and care. To achieve this we first need to understand how people’s experiences differ across the UK. That’s why we’re launching our Improving Brain Tumour Care Surveys.

Share your experiences and help create change.

By sharing your experiences, you’ll help provide a clearer picture of what’s happening across the UK. Once we know what’s working well and what can be improved, we’ll share anonymised data with healthcare centres and work with them to raise standards and improve outcomes for everybody affected by a brain tumour.

We’ll also be able to better understand any inequalities in access to treatment and care. Once we’ve identified any issues, we’ll be able to work directly with healthcare providers to address the inequalities and support people in making better-informed decisions about their care.

Each survey focuses on a different element of brain tumour treatment and care. We encourage everyone affected by a brain tumour to complete the survey that’s most relevant to their current experience, but you can also complete surveys about previous treatment and care if you want to.

If you’re caring for someone, you can complete surveys on behalf of a loved one and there’s also a dedicated survey on your experiences as a carer.

You can complete the surveys anonymously or choose to share your contact details with us, so we can send you relevant information and help support you with your next steps. We will not share your details with any third parties, you can read our privacy policy here.

Pre-diagnosis

We'll ask you about your or a loved one's experience of trying to get a diagnosis for your symptoms.

Take this survey

Diagnosis & next steps

We'll ask you about when you or a loved one were first given a brain tumour diagnosis by a healthcare professional.

Take this survey

Neurosurgery

We'll ask you about your or a loved one's experience before and after surgery for your brain tumour.

Take this survey

Radiotherapy & chemotherapy

We'll ask you about your or a loved one's experience before, during and after radiotherapy and chemotherapy.

Take this survey

Living with a brain tumour

We'll ask you about your or a loved one's experiences of having a brain tumour diagnosis but not having active treatment.

Take this survey

Palliative and end of life care

We'll ask you about your or a loved one's experiences after receiving a terminal brain tumour diagnosis.

Take this survey

Caring for a loved one

We'll ask you about the support you have received as a carer and where there are gaps in that support

Take this survey