Join our community on Facebook
Our closed Facebook group for parents is a great place to connect with other parents affected by a brain tumour and share your experiences.Join today
Brainstem gliomas are tumours which develop from glial cells within the brain stem.
Around 75% of brainstem gliomas are diagnosed in children and young adults under the age of twenty, but they can affect older adults as well.
The brain stem is the lowest part of the brain, at the back, and joins the brain to the spinal cord. It is responsible for many vital body functions that we don't need to think about. For example, motor skills, sensory activity, coordination and walking, the beating of the heart, and breathing.
Childhood brainstem gliomas can be low grade gliomas in one area of the brain stem (focal tumours) or, more commonly, diffuse, high grade tumours in the part of the brain stem called the pons. These are faster growing and tend to spread into the surrounding brain tissue. They are called DIPGs (Diffuse Intrinsic Pontine Glioma).
If you need someone to talk to or advice on where to get help, our Support and Information team is available by phone, email or live-chat.
By taking part in our Improving Brain Tumour Care surveys and sharing your experiences, you can help us improve treatment and care for everyone affected by a brain tumour.
If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
0808 800 0004 (free from landlines and mobiles)
Phone lines open Mon-Fri, 09:00-17:00
You can also join our active online community - Join our online support groups.