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Our Young Ambassadors are an integral part of The Brain Tumour Charity. They help us to raise awareness of brain tumours and are passionate about changing the future for those affected.
"Being a Young Ambassador means that I can turn an isolating and negative experience in to a fulfilling one. Brain tumours are underfunded, under researched and under acknowledged, I seek to change this through sharing my story, raising awareness and encouraging people to help fund further research." - April, one of our Young Ambassadors.
Our Young Ambassadors get involved in a number of things we do as a charity. They attend information days, launches of our latest reports, and volunteer at events. All the while, raising awareness of brain tumours, to ultimately defeat them.
“I want to spread the word so that people are aware of the brain, the best part of you. The longer a tumour is there, the more they destroy you".
"As a young ambassador I get to be involved in fun, interesting and exciting experiences that seek to change the outcome for people affected by brain tumours. I share my story to raise awareness and I often promote the importance of research as I believe I am alive because of it, I was treated with a new protocol as a result of research, which had a positive outcome for me. One of the highlights so far, there have been many, was going to the European Parliament and representing the brain tumour community at a European level. Being a young ambassador has made my brain tumour experience have a purpose."
"I became a Young Ambassador as I felt that the younger generation needed a voice about brain tumours. Coming from all walks of life and different perceptions of the disease, the young ambassadors embody the spirit of many families that have been directly or indirectly affected by brain tumours."
Emma was diagnosed with a benign brain tumour when she was 12, after showing symptoms of headaches, vomiting and balance problems.
"I was misdiagnosed numerous times at the doctor and my symptoms were put down to stress, puberty or a virus. Therefore, when I was finally diagnosed I had to have emergency surgery. If I had known the symptoms of brain tumours I would have hopefully have been treated earlier.
I had four operations, two of which lasted over 12 hours. The neurologist managed to remove all the tumour but because it was wrapped around my brain stem I woke up from the operation with many disabilities. I woke up unable to walk, talk or do anything a normal child could. I had lots of different therapies to get me where I am today and I knew I would never let it beat me. However, I felt very alone and didn't have anyone to talk to.
I became a Young Ambassador because I feel it is important to raise awareness of the symptoms of brain tumours to save others going through this traumatic experience, and to ultimately save lives. I also want to improve the support out there for young adults and children so that they feel supported in their journey."
"If we all make one small change, together we will make a big difference"
"I wasn't diagnosed early enough. If I was diagnosed early enough, I know I would still have my hearing in my left ear and my right hand side would be as strong as my left."
“Having had first hand experience of a brain tumour, as a Young Ambassador I am passionate to raise awareness of this dreadful illness particularly among young people."
“I love going to help out at family days as I always feel that Mum & I go in as two individuals and leave as a family of all the people there. All the children always get involved in the activities while the parents can sit and chat with other parents who are going through similar journeys".
“I am an ambassador in testament to the fortitude that my mother showed before she passed away when she was 54."
“I treasure the memories I have with my mum. It's the little things you remember such as her hilariously rubbish jokes, her heartfelt smile and her infinite wish to make sure that all those who knew her felt happy, loved and cared for. That's what means so much to me now."
Laura Maree, was just 16 when she lost her mother, Joan, to a brain tumour. By the time her diagnosis was finally made, Joan's symptoms had worsened significantly and she was told that she had just months to live. Since her loss, Laura has pledged to do all she can to raise awareness of brain tumours and funds for research so that other young people don't have to go through what she has experienced.
“This is why being a Young Ambassador means so much to me. By raising awareness of the warning signs of this terrible disease I can ensure other people get the help they need sooner and their chances for survival are increased. I believe that one day we can find a cure, so by helping raise funds for research I can hope that in the future, no one else will have to say goodbye to their mum like I did."
“I want to be an ambassador so that other people know that they are not alone."
“I'm passionate about the charity and helping people who've had a brain tumour."
"I am a young ambassador as I like to spread awareness about this brutal disease and how fab The Brain Tumour Charity is! It is important to me because it's one of the biggest cancer killers yet still the most poorly funded. Therefore I am passionate about fundraising for research projects."
"I am a Young Ambassador as I have a brain tumour and know how much more support needs to be available for patients and their carers. Being a Young Ambassador is important to me as I am passionate about raising awareness and funds for The Brain Tumour Charity. Through being a Young Ambassador for The Brain Tumour Charity I've met the other amazing ambassadors. We are all supportive towards each other even though we don't live close to each other, with each of us having a mutual understanding of our personal journeys. I am privileged and passionate about the work that The Brain Tumour Charity do to make a difference to those who are affected by a brain tumour and to the work being carried out into research and campaigning."
"Being a young ambassador means I can work and push for more to be done in the field of research and campaigning for people who have a brain tumour."
Keep up with news from our Young Ambassadors by following us on Facebook and Twitter, where we share their stories and the latest happenings.
Having all been affected by the diagnosis of a brain tumour, our Young Ambassadors bare helping to spread the word and make an impact for other young people nationwide. A number of them travelled to Brussels to press for more effective regulation to incentivise the development of paediatric cancer drugs and for better support services for those living with a brain tumour.
Our Young Ambassadors met Emma McClarkin, Member of the European Parliament (MEP) for the East Midlands to discuss their experiences and visited the office of the European Cancer Patient Coalition (ECPC).
Emma pledged to facilitate the translation of HeadSmart cards to be distributed throughout Europe. This is great news for the HeadSmart campaign, as it means our message could be spread further and young lives could be saved throughout Europe.