Our volunteers play a vital role in helping us to achieve our goals. Read about members of our volunteer team, what they do and why they enjoy volunteering for The Charity.
Emma was one of the 110 volunteers who helped to make The Twilight Walk series a success. After being diagnosed with a grade 2 brainstem glioma in 2015, Emma wanted to make a positive contribution to the fight against brain tumours and meet other people who understood what she was going through.
"I volunteered because I really wanted to help The Charity in any way I could. Due to the location of my tumour I sometimes lose feeling in my limbs, so volunteering was the perfect way for me to be involved in the walk.
"Everyone was really accommodating and made sure that I was okay during the day. It was really nice to be surrounded by people who understood"
"I enjoyed every bit of the day. The other volunteers and staff were really kind and everyone taking part in the walk was so friendly and motivated! It was great to talk to them and hear their stories too. Knowing we were all there helping to do something good for a cause that means so much to me was really special."
Peter joined us a volunteer in 2012, a year after sadly losing his wife Wendy, to a GBM brain tumour, aged just 54.
“If I had been told that in this day and age, a fit 54 year old could be diagnosed with a terminal illness, have all the treatment available, and still not survive for 6 months - I would not have believed it. Until it happened."
Having cared for Wendy whilst she was unwell, Peter has a unique insight into brain tumours from a carers perspective and was motivated to share this with others.
In his role as Community Ambassador, Peter has delivered talks about his experience, represented the charity at many different functions, accepted fundraising cheques on our behalf and even spoken in the Houses of Parliament.
This charity is close to my heart because I lost my mom to a brain tumour. My mom was only 62 and she was my best friend! 18 months after this, her close friend who she used to work with phoned me to say that she now had a brain tumour and within two years – she passed away.
Mom was taken into hospital on 10th April in 2000 and after three weeks of being treated for a stroke, a CT scan revealed that she had a brain tumour. A biopsy revealed that she had a grade 3 glioma. The hospital said that there was nothing they could do except to possibly offer radiotherapy to prolong long her life. Quality of life did not seem to be considered.
On starting my volunteering with The Brain Tumour Charity I chose to be a Collection Tin Co-ordinator as it meant that I could continue making the most of my outgoing skills as well as to continue to work as part of a team.
"At the time my mom was diagnosed, there was no information or support available. If you went to research on the internet, the only organisation was London based.
"We had nowhere to turn. I vowed then, that when I had the opportunity, I would do something towards ensuring that other families who found themselves in the same position as us, did not have to suffer in silence and could get the information they needed to help them cope."
Julie took part in The Twilight Walk in Chester.
What I enjoy most about working for The Charity is that it provides you with a 'feel good feeling' and the variety of things I get to do. The Charity is so appreciative of all that you do, no matter how great or how small, and as a volunteer there is no pressure.
My name is Cariss and I am a local community ambassador for The Brain Tumour Charity. I was diagnosed with a grade 3 olio-astrocytoma in 2014. Following this diagnosis I researched brain tumours and was shocked and disgusted to learn how little government funding is given to researching this illness despite the horrifying fact that this is the biggest cancer killer of children and adults under 40.
So I have decided to spend the rest of my time whilst I am able raising awareness of this disease and of the charity to hopefully improve outcomes for those diagnosed.
When I was diagnosed, the future and life I'd imagined – to become a mum and have a family – disappeared.
But when I look around at events like The Twilight Walk, Row for it! and all other fundraising events I attend on behalf of The Charity in my role as ambassador, I am reminded that I do have a family –the Brain Tumour family – and now my purpose is to help them and anyone affected by this illness in any way that I can.
"My daughter, Charlotte, was diagnosed with a brain tumour seven years ago when she was 16. It took nearly five months for her to be finally diagnosed which had a lasting impact on her health.
"I feel passionately about trying to reduce these waiting times and improve the long term outcomes for people diagnosed with a brain tumour."
Jo recently enjoyed helping out at a Supporter Group's Christmas fayre along with her daughter Charlotte and is looking forward to attending more events in the future.