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Meet our volunteers

Our volunteers play a vital role in helping us to achieve our goals. Read about members of our volunteer team, what they do and why they enjoy volunteering for The Charity.

Derek

Tell us about your role as a volunteer

My role as a volunteer involves giving the best input, which I feel I can do at Policy Involvement Group meetings and by attending laboratory tours. I have also been a route steward for The Windsor Twilight Walk for the last four years - that is inspirational to witness!

What have you most enjoyed about your time as a volunteer?

The greatest enjoyment for me is meeting inspiring and resilient sufferers. My most memorable experience was spending a day with a group of The Charity's Young Ambassadors on a guided tour of the Houses of Parliament.

Deborah's story

Deborah, has been part of our Research Involvement Network as a volunteer since 2015.

Why did you get involved in the Research Involvement Network?

My daughter was diagnosed with a brain tumour shortly after her third birthday and following lots of help from The Brain Tumour Charity, I wanted to give something back.

What do you in your role?

We review applications and give our opinion about how important and how practical we think they are. We also attend panel discussions, and review clinical summaries of trials. It's really easy to join and there's loads of support if needed – you can do as little or as much as you want.

What difference has volunteering made to you?

I've really enjoyed being part of the group and it's been a really positive experience in our journey so far, but most importantly it's about building links between patients, carers and researchers so that we can work together to ensure our experiences shape the future of research.

Rosemary's story

We recently caught up with one of our newest head office volunteers, Rosemary, to hear more about what inspired her to volunteer with us.

Tell us about your role as a volunteer

I work closely with the Healthcare Engagement Team in Farnborough, supporting the team to process requests for information packs and leaflets. Primarily, I put together and dispatch the Patient Information Pack, which provides support and information to newly diagnosed brain tumour patients.

What inspired you to start volunteering with us?

After a break from work and a house move, I was looking for something new to become involved with.

I'm glad to be able to support others going through a similar situation, my personal experience helped to highlight the importance of increasing awareness of brain tumours, providing information and support to patients and families and in attracting research into this healthcare area.

What do you enjoy most about volunteering with The Charity?

It's a relatively small charity and people are really friendly. It's particularly meaningful to be involved in a cause when you've known someone who has suffered from the illness, it's a place where there is genuine sympathy and understanding for what families and friends have also been through, there is real passion behind the work that everyone does.