"My daughter was diagnosed with a brain tumour shortly after her third birthday and following lots of help from The Charity, I wanted to give something back.
I didn't have that much experience of research but was told that our experience is the knowledge that researchers need. It gives a vital perspective in shaping and evaluating new programmes of research.
It's really easy to join and there's loads of support if needed – you can do as little or as much as you want."
Deborah has been part of our Research Involvement Network as a volunteer since 2015.