Close navigation

Use your experience

When you or someone you love receives the diagnosis of a brain tumour, you quickly become an expert as a result of your experience. As an organisation we’re led by our community - your insight is not only helping us to beat brain tumours sooner but also helps us to ensure we’re meeting the needs of all those impacted by a brain tumour.

There are lots of ways you can use your experience to make a difference, from sharing your story, to sharing your views on our work. Whatever your experience, we hope you'll find an opportunity that interests you.

Champion our community’s voice

Use your personal experience of a brain tumour diagnosis to play an active role in shaping our work and supporting decision making.

Find out more

Help create change

Share your experience of being affected by a brain tumour and help us improve the standard of care across the UK.

Get involved today

Help us develop BRIAN

Use your personal experience to help develop our pioneering online app for people living with a brain tumour.

Find out more

Get involved in research

You can help ensure that future research meets the needs of those affected.

Help shape the future

Review our information

Join the panel of patients and carers providing feedback on our resources.

Become a reviewer

Become a Young Ambassador

Our Young Ambassadors raise awareness and are passionate about changing the future.

Read more