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Volunteer as a BRIAN champion

Led by patients, we’ve launched BRIAN (Brain tumouR Information and Analysis Network), a pioneering online app driven by patient data.

BRIAN helps people cope with a brain tumour, allowing users - and those supporting them - to understand how they’re doing and make better informed decisions about treatment and care. It also uses ten years of brain tumour data that we’ve obtained from NHS Digital and Public Health England, to provide valuable information and insights for people living with a brain tumour and to help researchers work towards a cure.

We’re currently looking to increase our team of BRIAN Champions, who make up part of The Charity’s Patient Mandate Group. This group is vital in ensuring that the development of BRIAN and its user experience are patient led, so it can reach its full potential to transform the lives of those affected by brain tumours.

Applications are open to anyone aged 18 and over who has personal experience of the effects of a brain tumour, whether you’re living with a diagnosis yourself, have a family member who is, or have lost a loved one to this disease.

Being involved has been a thoroughly exciting experience. We’ve had the unique opportunity to collaborate with a diverse team of individuals who are passionate about improving the quality of life of those affected by a brain tumour diagnosis. Through this, we can directly impact how the project develops. We’ve provided feedback at each stage of the website/app development to ensure the considerations of patients/caregivers are at the very heart of this pioneering project.

Usama, BRIAN Champion and current member of the Patient Mandate Group

Current opportunities

Applications for this role are currently closed. Applications for the next group of BRIAN Champions will open again in 2021.

If you are interested in this opportunity, have questions or would like to be the first to hear when applications open, please contact our volunteering team at volunteering@thebraintumourcharity.org or please call 01252 237818.