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Our BRIAN champions

Led by patients, BRIAN (Brain tumouR Information and Analysis Network), is a pioneering app driven by patient data.

BRIAN helps people cope with a brain tumour, allowing users – and those supporting them – to understand how they’re doing and make better informed decisions about treatment and care. It also uses ten years of brain tumour data that we’ve obtained from NHS Digital and Public Health England, to provide valuable information and insights for people living with a brain tumour and to help researchers work towards a cure.

The Charity’s BRIAN Champions are a group of volunteers who are vital in steering the project. BRIAN Champions ensure that the development of BRIAN is led by our community, so the app can reach its full potential to transform the lives of those affected by a brain tumour.

The BRIAN Champion role is a two year post and the group is made up of those who have personal experience of the effects of a brain tumour, whether they are living with a brain tumour diagnosis, have a family member who is, or have lost a loved one to this disease.

Being involved has been a thoroughly exciting experience. We’ve had the unique opportunity to collaborate with a diverse team of individuals who are passionate about improving the quality of life of those affected by a brain tumour diagnosis. Through this, we can directly impact how the project develops. We’ve provided feedback at each stage of the website/app development to ensure the considerations of patients/caregivers are at the very heart of this pioneering project.

Former BRIAN Champion