Volunteer as a BRIAN champion
Led by patients, we’ve launched BRIAN (Brain tumouR Information and Analysis Network), a pioneering online app driven by patient data.
BRIAN helps people cope with a brain tumour, allowing users - and those supporting them - to understand how they’re doing and make better informed decisions about treatment and care. It also uses ten years of brain tumour data that we’ve obtained from NHS Digital and Public Health England, to provide valuable information and insights for people living with a brain tumour and to help researchers work towards a cure.
We’re currently looking to increase our team of BRIAN Champions, who make up part of The Charity’s Patient Mandate Group. This group is vital in ensuring that the development of BRIAN and its user experience are patient led, so it can reach its full potential to transform the lives of those affected by brain tumours.
Applications are open to anyone aged 18 and over who has personal experience of the effects of a brain tumour, whether you’re living with a diagnosis yourself, have a family member who is, or have lost a loved one to this disease.
Being involved has been a thoroughly exciting experience. We’ve had the unique opportunity to collaborate with a diverse team of individuals who are passionate about improving the quality of life of those affected by a brain tumour diagnosis. Through this, we can directly impact how the project develops. We’ve provided feedback at each stage of the website/app development to ensure the considerations of patients/caregivers are at the very heart of this pioneering project.
How to apply for this role
To apply, please complete our online application form and create a short, 2-3 minute video about why you’d like to become a BRIAN Champion, the skills and qualities you could bring to the role and what you’d like to achieve.
Once you’ve submitted your application form, we’ll contact you with details of how to send us your video.
If you are unable or would prefer not to submit video as part of your application, please let us know and we can suggest an alternative format.