Radiotherapy for adult brain tumours
Radiotherapy can be used on its own, or alongside other treatment options, such as neurosurgery or chemotherapy.
What is radiotherapy?
Radiotherapy uses controlled doses of invisible, high-energy beams of charged particles (radiation) to destroy tumour cells while causing as little damage as possible to surrounding cells.
It may be used:
- where surgery isn’t possible
- after surgery to kill any remaining tumour cells
- to prevent a tumour from returning
- to slow down the growth of the tumour.
Help with your check-up appointments
After having radiotherapy, you’ll have regular check-up appointments, but it can be difficult to remember every symptom or side-effect you’ve had since your last appointment. Use BRIAN’s quality-of-life tracker to record these, then share this with your healthcare team.
Before radiotherapy treatment
Planning your radiotherapy
Your radiotherapy is very carefully planned by a team of medical specialists to make sure it destroys as many tumour cells as possible, while damaging the fewest healthy brain cells.
You may have several scans. These are to create a 3D image showing the precise location and shape of your tumour to target it more precisely.
The scans also help your healthcare team plan how many sessions of radiotherapy you’ll need and how much radiation to give at each session. This is important as it makes sure the normal cells have time to recover before the next dose of radiation.
Your healthcare team will also talk through what will happen and discuss any potential side-effects with you before any treatment is given.
This is your chance to ask any questions. Remember, no question is a silly question.
Making your treatment mask
To make sure the radiotherapy is directed to the correct part of your brain, it’s important that you stay very still during the treatment. To help you do this, a tailor-made treatment mask holds your head in position each time you have treatment.
There are different types of mask made from different materials, but you can breathe easily in them, though some people do find wearing it claustrophobic.
Images reproduced with the kind permission of Cambridge University Hospitals NHS Foundation Trust.
Stuart Grant, diagnosed with a grade 2 oligodendroglioma in 2019
“I was diagnosed with a brain tumour totally out of the blue. I’d only visited my GP for slight hearing loss, which I thought was due to a build-up of wax. It was a huge shock, but I decided from the off that I wasn’t going to let my life revolve around my diagnosis.
“After my successful operation, I started radiotherapy. I was nervous about having treatment but actually, so far it’s all been okay. Aside from experiencing some fatigue, I’ve been very fortunate to not feel any different after my treatment and keeping calm and positive helped me get through it.
“I want to reassure others that it can all go smoothly and be okay. I didn’t know anything about this journey until I was faced with it, and if I’m now able to help calm someone who’s nervous about the treatment path ahead, I’ll be really happy.
“No one knows what the future holds. I believe that all any of us can do is to stay positive and look for the good in every day.“
Join one of our Online Support Communities for more stories and tips about coping with a brain tumour diagnosis from people who know what you’re going through.
During radiotherapy treatment
Each treatment session is called a ‘fraction’. During each fraction, you’ll lie on a treatment couch wearing your mask, which will be attached to the couch. The radiographer will take a few minutes to make sure you’re positioned correctly, then they’ll leave the room.
They can see, hear and speak to you throughout the treatment. You can also hear and speak to them. In many hospitals you can take a CD to listen to during your treatment.
Some radiotherapy machines move around you during treatment and others will look more like a CT scanner.
One of our supporters, Stuart Grant, recorded a time-lapse of a radiotherapy session and has kindly allowed us to share the video to help remove some of the uncertainty people might feel before starting treatment.
Find out more about Stuart’s journey by following @stuartgrantuk on Instagram.
Radiotherapy is generally given as an out-patient, so after each session you’ll be able to go home.
It’s likely that you’ll experience some side-effects. Radiotherapy works because it does the greatest damage to rapidly dividing cells. While this includes tumour cells, it also includes rapidly dividing normal cells, such as skin cells, hair cells, cells lining the mouth and the digestive tract, plus blood cells in the bone marrow. These areas, therefore, tend to have the most common side-effects.
You’re also very likely to feel tired both during and after your treatment.
Most side-effects will be temporary and gradually fade, usually within 6-12 weeks after treatment has finished.
Following treatment, you’ll have regular check-up appointments to monitor the effects of the radiotherapy on your tumour and any side-effects you may get. This is important as long-term side-effects can take months and sometimes years to develop.
If radiotherapy doesn’t work
Although treatment plans are carefully developed by healthcare professionals to be as effective as possible, while having the fewest risks or side-effects, sometimes radiotherapy may not work.
This can be worrying, but just because one treatment hasn’t worked, it doesn’t mean others won’t.
Helping you prepare for radiotherapy
Frequently asked questions
Each treatment is called a ‘fraction’. Each fraction can be between a few seconds to a few minutes. Your appointment, however, will be considerably longer, as medical staff will take time making sure you’re in the right place.
The period of time over which your radiotherapy is spread varies from person to person, but it’s common for it to last for around 4-6 weeks.
An example of a typical radiotherapy plan is treatment once a day, Monday to Friday, with a break at the weekends.
Before the treatment begins, your medical team will be able to tell you how many sessions you’ll need, how often and over what period. They’ll also be able to give you a guideline for how long each visit to the hospital should take.
No, you can’t feel radiotherapy nor is there any heat from it. The machine can be quite noisy though.
Generally, you’ll be given radiotherapy as an outpatient, which means going into the hospital for each fraction, after which you can go home.
A stay might be needed if you are also receiving chemotherapy, or if you are unwell.
Tips from our community
“The main issue I had was fatigue, which got worse as the sessions went on. All I can say is listen to your body, don’t fight it and rest when you need to.”
“I decided to shave my hair off, as I was starting to get a bald patch where the radiation entered and left my head. It soon grows back though!”
“Before starting radiotherapy I would suggest batch cooking and freezing ready prepeared meals. Getting a slow cooker was a huge help!”
“Ask your Radiology Team for some cream for your head, as it can start to feel sunburnt and get sore, where the radiation enters.”
By joining one of our our Online Support Groups, you can get more tips about living with or beyond a brain tumour diagnosis from people who truly understand what you’re going through.
It is likely that you will have to take some time off work during treatment and for a short time afterwards. Side-effects, such as tiredness and nausea, may mean you need a longer period of time off work.
Our employment resources provide help and information on how to approach your employer about your diagnosis and how they can support you through this time.
No. The radiation comes from the machine and does not stay inside your body. You don’t need to take special precautions when you leave the hospital. It’s safe to be around others, including children.
Radiotherapy is given in a way to minimise the chance of permanent side-effects. However, some effects, such as hair loss, may last.
Occasionally some side-effects of radiotherapy may be longer-term or develop later in life, depending on how much and which areas of your brain have been treated.
The full dosage of radiation is carefully calculated, depending partly on the size, type and location of the tumour. It is then divided into fractions for two reasons.
Firstly, depending on where a cell is in its growth cycle, it can be more or less sensitive to radiation. By giving radiotherapy in several doses, it makes sure the tumour cells receive radiation when they’re most sensitive.
Having a gap between doses also gives healthy cells time to recover between treatments, while still causing damage to the tumour cells, which are more sensitive to radiation.
Find out more information about radiotherapy for adults in the full fact sheet.
Find out more information about radiotherapy for adults in the full fact sheet – Clear print version, designed to RNIB guidelines.
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