Close navigation

Taking care of your mental health

For anyone diagnosed with a long-term illness, mental health problems are all too common, and we know that those with a brain tumour are no different.

Research has shown that almost 25% of people in the UK experience a mental health problem each year

This is a shocking statistic, and sadly, it seems to be on the rise. That's why it's more important than ever to speak up and take action.

What is mental health?

Mental health includes our emotional, psychological, and social well-being. Those affected by a mental health condition may find themselves struggling to cope with day-to-day life, including things we take for granted such as getting out of bed, showering and leaving the house. If you find yourself feeling this way, you should seek advice from a medical professional, such as your GP.

One issue particularly prevalent within our community, and across the UK, is depression.

Working created my identity and that has gone, leaving me empty and invaluable.

60 year-old man with a high grade tumour

Overcoming isolation

One of the biggest factors that can affect your mental health is feelings of isolation, and for those affected by a brain tumour, isolation is an all too common problem.

Brain tumours are the only types of tumour that directly impact on personality, behaviour, cognition and communication — the essential features of individual identity.

They can also lead to an inability to work, which increases feelings of isolation, identity loss and depression.

Maintaining healthy relationships

A brain tumour can also lead to a negative impact upon relationships with partners, family members and friends, worsening the issue of isolation.

To help you, we've created resources to help friends, individuals and partners during this difficult diagnosis:

Many people find that taking up a new hobby, increasing their exercise (even just regular short walks) and volunteering are great ways of building their self-esteem, reducing isolation and improving their feelings of self-identity and value.

Help and guidance for family and friends

A brain tumour diagnosis is a life changing event, not just for the individual themselves, but for the friends and family around them.

It can be incredibly difficult to watch someone you love go through this devastating disease. Sometimes it's hard to know how to help and what to say.

However, it isn't just the emotional impact of a brain tumour that can lead to enhanced feelings of isolation, anxiety and depression. Everything from work and finances to your living situation can be changed as a result of a brain tumour diagnosis, with 3 in 4 people having their/their partner's working life affected and 1 in 2 experiencing financial difficulty.

Over time this can result in increased feelings of isolation, anxiety and depression for family and friends.

We've got resources for friends and family to give support in knowing what to say and how to help their loved one affected by a brain tumour.

If you're a carer for someone diagnosed with a brain tumour, it can become overwhelming at times, and can have a huge effect on your emotional well-being and mental health. To help you during difficult times we have resources to help carers to get support, whether that be financial, emotional or practical, and to find information and self-care tips.

Who else can I talk to?

Looking to talk and connect with others who understand your situation? You can join our online Facebook groups. For those diagnosed, carers or friends and family, our Facebook groups provide safe spaces to talk through issues, share experiences and receive vital support during difficult times.

It's important to talk to the people you trust about how you're feeling. It's also important that you discuss your mental health with your GP, as they can provide critical support and guidance during this time. While The Brain Tumour Charity cannot recommend any specific resources, you may find these organisations and publications helpful:

Useful numbers

Samaritans

A 24 hour helpline with trained people who can listen to you when you need someone to talk to.
Email: jo@samaritans.org
Tel: 116 123 (UK and ROI)
Website: Samaritans.org

Saneline
SANE's mental health helpline is a national, out-of-hours service offering emotional support and information every day.
Tel: 0300 304 7000 (6pm -11pm)
Website: sane.org.uk

MIND
MIND is a mental health organisation that provides support and information.
Email: info@mind.org.uk
Tel: 0300 123 3393 (09.00-18.00, Mon-Fri)
Text: 86463

Depression Alliance
Depression Alliance is a charity that works to prevent depression and offers information and support to people affected by depression: depressionalliance.org
Email: info@depressionalliance.org
Tel: 0207 407 7584

Niamh Wellbeing (Northern Ireland Association for Mental Health)
A network of support services throughout Northern Ireland supporting mental wellbeing:
Tel: 028 9032 8474
Website: niamhwellbeing.org

Carers UK
Provides information and support for carers: www.carersuk.org
Email: advice@carersuk.org
Carersline: 0808 808 7777 (10am-4pm, Mon-Fri)
Website: carersuk.org

A cancer patient's guide to overcoming depression: Getting through treatment and getting back to your life
Authors: Derek R. Hopko and Carl W. Lejuez
New Harbinger Publications, 2008
ISBN 13 978 157224504-4

Living with the black dog: How to cope when your partner is depressed
Author: Caroline Carr
White Ladder Press Ltd, 2007
ISBN 13 9781905410101

References

1 McManus, S., Meltzer, H., Brugha, T. S., Bebbington, P. E., & Jenkins, R. (2009). Adult psychiatric morbidity in England, 2007: results of a household survey. The NHS Information Centre for health and social care.

2 The Brain Tumour Charity and Alterline (2016). Losing Myself: The Reality of Life with a Brain Tumour.

About the author

I’ve been working here at The Brain Tumour Charity for just over a year. I help our community share their stories, I explain our research in a clear and simple way, raise awareness of our support services and keep our community updated on what we’re doing and how they can help.

More by this author

Media contacts at The Brain Tumour Charity

Press office contact details:

Phone: Mon-Fri, 9am-5pm: 01252 237864
Out of hours media contact: 07990 828385
Email: pressoffice@thebraintumourcharity.org