Improving Brain Tumour Care surveys share your experiences and help create change

Support for children and families

Our dedicated Children and Families Team are here to help however we can. Whether you’d like information and support in relation to a new diagnosis or information about life after a diagnosis, the team are here to help every step of the way.

Coronavirus and brain tumours

We’ve put together some information and advice to help ease our Community’s concerns about the coronavirus situation.

Find out more

How we can help you

We offer individual online and telephone support and are here to listen and help you find any information you might need.

You can contact the team by:

  • emailing us at
  • starting a live chat by clicking the red button in the bottom corner of your screen
  • calling us on 0808 800 0004 and asking for the Children and Families Service.

Opening hours

Our Support and Information Line is open 9-5 Monday to Friday, but, if you email us outside of these times we will aim to respond to you as soon as possible.

If you are concerned about your health, please contact your GP immediately who may direct you to an out of hours service. Alternatively if you need to speak to someone urgently, please contact:

  • NHS (England) – 111
  • NHS Direct (Wales) – 0845 46 47
  • NHS 24 (Scotland) – 111
  • If you live in Northern Ireland please dial 999 or your out-of-ours GP service
  • Samaritans (UK wide) – 116 123
  • Or in an emergency, visit A&E or dial 999

How we can help

Emotional support

Receiving the news your child has a brain tumour is something we wished no parent had to hear, we are here to support you and your family and are here to listen and help answer any questions you might have.

We also run a free counselling service which gives you a confidential space to talk freely about your thoughts and feelings and start to find manageable ways to cope.

Connecting with others

Our Family Days and Parents Facebook Group are a great way to connect with others who are going through similar experiences and to access support from the team face to face. You can find out more about our upcoming events here, we hope you are able to join us.

Join our community on Facebook

Our closed Facebook group is a safe space online to connect with other parents who are affected by brain tumours.

Join our teenagers instagram account

If you’re aged 13-17 and living with a brain tumour diagnosis, our private Teenagers Instagram Account is a safe place for you to share your thoughts, feelings and any questions you have.

Research requests

The team are able to research information on your behalf so whether its information on tumour types, treatments, clinical trials, current research, getting a second opinion or anything else you’d like to know more about, please don’t hesitate to get in touch with us and we’ll look into this for you.

Additional support

The team can also offer information and advice on issues with education, are able to connect you with other services such as our benefits clinic and can signpost to other local and national services that you might find useful.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
Support and Information Services
0808 800 0004 Free from landlines and mobiles
Phone lines open Mon-Fri, 09:00-17:00

Get your free Brainy Bag

Our Brainy Bag is a free gift for children and young people who have been diagnosed with a brain tumour, made up of a range of handpicked toys and activities!