Author: Glenn Saitch
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Driving down diagnosis times in Scotland
Our Optical Engagement Manager, Lorcan Butler, is delighted to be partnering with opticians and optometrists in Scotland to help diagnose brain tumours earlier.
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“If it wasn’t for our desperation, we wouldn’t have got a scan.”
Rhudi Baume-Kennedy, 20, explains how his experience of spending nine months trying to get a diagnosis for his symptoms has driven his support for The Charity’s work.
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Make losing a loved one count and how we can help
While there’s no escaping the grief caused by losing someone to a brain tumour, our supporters have shared how they made sure those final moments count.
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“One minute we’d welcomed Erin into the world. The next, I was told I had a brain tumour.”
Dominique, mother-of-two, reveals how she was diagnosed with a brain tumour just three weeks after giving birth and the toll this took on her mental health.
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“The Brain Tumour Charity helps me feel that I am not alone.”
Kirstin, a communications professional and mum-of-two, had vivid hallucinations and visual disturbances put down to an ear infection before she was diagnosed with a brain tumour.
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“I had read so much about other cancer types but nothing about brain tumours – that’s not OK and we need to raise their profile more.”
A daughter who lost her beloved dad to the most aggressive form of brain tumour has shared her heartfelt and candid motivation for completing fundraising challenges to support The Brain Tumour Charity.
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Launching our Manifesto for Scotland ahead of the May Parliament elections
Our Manifesto urges local MSP candidates to pledge support for those affected by a brain tumour in Scotland.
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“I was training to be a nurse so I knew exactly how important it was to listen to the patient. But I felt that no one was listening to me!”
A nurse who almost lost the vision in her right eye due to an undiagnosed brain tumour and had her symptoms blamed on peri menopause has been putting her best foot forward to raise money for The Brain Tumour Charity.
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“Never lose hope and to live your best life regardless of where you are in your brain tumour journey.”
Diana has has shared the acute pain she has experienced since losing Gunnar, her adored husband and father to their children, to a brain tumour. She hopes illustrate the difficulties the family faced since Gunnar’s diagnosis.
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Coronavirus (COVID-19) and brain tumours
We hope this information will help address some of our community’s concerns about the coronavirus (COVID-19). UPDATED 29 July 2021
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Fundraising during lockdown: Andy’s story
A dedicated fundraiser who lost his wife to a brain tumour has completed a virtual walk from John O’Groat’s to Lands End and back to support The Brain Tumour Charity.
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Your coronavirus questions answered by experts
We’ve collected all the answers from our recent virtual coronavirus Q&A with expert medical professionals from Imperial College Healthcare NHS Trust and The Walton Centre.
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Diagnosis and treatment during the coronavirus pandemic
If you have potential symptoms of a brain tumour, or an existing diagnosis with recurring symptoms, it’s important not to delay seeking advice, even during the covid-19 pandemic.
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“There’s a need for greater emotional support!”
After being diagnosed with a grade 2 meningioma in January 2017, Andy believes he received world-class physical care but his emotional support was lacking. He recently took part in our Improving Brain Tumour Care surveys, to help improve care across the country for everybody affected by a brain tumour.
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Your rehabilitation questions answered by experts
We’ve collected all the answers from our recent virtual rehabilitation Q&A with expert medical professionals from Imperial College Healthcare NHS Trust.
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Your radiotherapy questions answered
We’ve collected all the answers from our recent virtual radiotherapy Q&A with expert medical professionals from Imperial College Healthcare NHS Trust.
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Launching our Improving Brain Tumour Care surveys
Share your experiences and help create change in the treatment and care received by people living with a brain tumour diagnosis.
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“Cancer is always the third person in our relationship, but I’ve never been happier!”
Our future may be uncertain but my First Dates love has taught me to live life to the full.
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“Mum died from a brain tumour three hours before my wedding”
Becky Best had died from brain cancer at the age of 56, just three months after being diagnosed, after her daughter’s wedding was bought forward in the hope she’d be able to attend.
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“Doctors dismissed my symptoms as a cheese allergy!”
Desperately taping her eye open, Allana Prosser was determined to prove doctors wrong and see out of her right eye again after a devastating operation to remove a deadly brain tumour – months after it was misdiagnosed as a cheese allergy.
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“I had a stroke at 11 and doctors told my parents to take me home and wait for ‘the big one’!”
Parents were told to take their daughter home to die when she had a stroke at 11, but now she’s a thriving 18-year-old after they battled to find a treatment to save her.
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New Less Survivable Cancers Taskforce report released today
Brain tumours among diseases that miss out on research funding, says our joint charity report
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Launching our Snapchat symptom awareness campaign
The launch aims to reach over a million teenagers through the innovative social App.
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“I was convinced no one would be interested in me as soon as I told them I had a brain tumour.”
Chelsea Yeomans feared she would never find love after being diagnosed with a brain tumour but now she’s marrying the man of her dreams.