Category: Support
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Breaking down brain tumour terminology
Low grade, high grade, benign, malignant, brain tumour, brain cancer – what do these terms actually mean?
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“If it wasn’t for the optician…. he might not be here” ~ Kayden’s story
Behind every request we receive for a free Brainy Bag, there’s a family navigating one of the hardest moments of their lives. Here’s Kayden’s story
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From worried parent to charity team manager – Shona’s story
In 2007, Shona Floyd was supported by what went on to become The Brain Tumour Charity. Ten years later she started working for us – and she’s still here as we mark 30 years since we were founded.
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“It’s no exaggeration to say The Charity’s counselling service saved my life.”
This Brain Tumour Awareness Month, we’re celebrating thirty years of progress. Progress that includes our free counselling service, which has enabled people like Carole to access the specific support she needed.
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Claiming disability benefits like PIP
A guest blog post by volunteer Chandos Green, with some top tips from our Money Advice Clinic.
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“I considered leaving nursing, then I discovered clinical trials” ~Daisy’s story
Find out what a clinical research nurse does, from empowering patients to guiding them through complex treatment options – all to drive medical breakthroughs.
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Celebrating three years of our free counselling service
Our free counselling service launched in the summer of 2022 and has been going from strength to strength ever since.
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Can a CT scan miss a brain tumour?
CT scans are very useful for detecting brain tumours. But, can a CT scan miss a brain tumour? Here we discuss this as well as look at how CT scans work.
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Can a brain tumour be secondary cancer?
Secondary cancer is cancer that has started in one area of the body and spread somewhere else. But, can a brain tumour be secondary cancer? We explore this here.
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Are some contraceptives linked to brain tumours?
Progestogens and meningioma – your questions answered
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What is excellence in brain tumour care?
We’ve helped identify the 14 Tessa Jowell Centres of Excellence in England and Wales which are delivering exceptional care for adults diagnosed with a brain tumour. Here are just some examples to illustrate why these NHS Trusts achieved the distinction.
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A mum’s tribute: Thomas’s story
Thomas, nine, was one of the 40 children a year in the UK who are diagnosed with a diffuse midline glioma. We’re funding research into this type of brain tumour so children like Thomas have more time to go on adventures.
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“I knew I had to go to A&E. One of the first thoughts I had was: I’ve got a brain tumour.”
Annabelle Holloway is a semi-retired GP from North Devon. But after a seizure, which arrived out of the blue on July 8th last year, she unexpectedly became the patient.
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Changes to the welfare system and what it means for the community
Significant changes to the welfare system have recently been proposed by the government. Our Policy and Campaigns team have broken down what they could mean for people affected by a brain tumour.
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‘The Day My Life Changed Forever’ – Matthew’s story
“My prognosis is unknown but when you think about it, everything in life is unknown and every day is a gift.” ~ Matt’s story
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What are a brain tumour’s early symptoms?
Learn more about brain tumours’ early symptoms. Knowing what to look out for could mean earlier diagnosis and hopefully more treatment options.
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Six tips for festive well-being
The festive season can be a challenging time, particularly if you’re affected by a brain tumour. Here we’re focusing on how to look after your well-being and have as peaceful and enjoyable a festive break as possible.
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Providing comfort to families affected by a brain tumour diagnosis
We recently held our annual Family Day at Tamworth Snowdome and helped bring festive cheer to families.
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Brain tumours and employment rights
How Grace won her case for disability discrimination and unfair dismissal.
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“Looking back… there were loads of symptoms I brushed off.”
Catrin George-Carey was diagnosed with a rare brain tumour in March 2022. Now back at work following successful surgery, she’s highlighting the brain tumour symptoms that she initially brushed off – so that others don’t do so!
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Is palliative care effective enough? We ask for your experiences
One in four people in the UK dies without the care and support they need. We need to change this, but we need your help to do it. Take our palliative care survey and your voice could have an impact.
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Being a neuro-oncology nurse – Guest Post by Ingela Oberg
In this guest post, Ingela Oberg, an adult neuro-oncology nurse manager at Addenbrookes Hospital in Cambridge, explains why she went into medicine and what her role entails.
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Managing my memory- Insight and top tips from our young ambassador, Rebecca.
Recently we were lucky enough to have some time with our wonderful Young Ambassador Rebecca, to explore what being a teenager with a Brain Tumour was like for her.
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New Tessa Jowell Brain Cancer Mission report
To mark their five year anniversary, The Tessa Jowell Brain Cancer Mission has published a report highlighting the variations in care across NHS brain cancer services in the UK