We work with other organisations where there is a shared interest in improving people's diagnosis, treatment and care. These are some of the organisations that we are involved in.Although many have the word cancer in their name, The Brain Tumour Charity will also raise issues that affect people with low grade tumours where appropriate.
If diagnosed with a less survivable cancer - pancreatic cancer, high grade brain tumour, stomach cancer, lung cancer, oesophageal cancer, liver cancer and mesothelioma - the chance of surviving five years or more is 20% or less. And that loss is substantial. In 2013 less survivable cancers collectively made up a quarter of all cancer diagnoses but a staggering half of all cancer deaths.
We want no cancer left behind, so we have co-founded a taskforce of charities to look at common problems in diagnosis, treatment and care, which slow down progress and leave these cancers isolated. The Less Survivable Cancers Taskforce is The Brain Tumour Charity, Pancreatic Cancer UK, the British Liver Trust, Action Against Heartburn (covering oesophageal cancer) and Core (covering stomach).
The taskforce aims to highlight the survival gap for these cancers and find solutions to shared challenges, include difficulty diagnosing early, poor patient experience and a lack of breakthrough treatments.
If you would like to help the taskforce achieve its aims, please get in touch by emailing: firstname.lastname@example.org.
The Department of Health set up the TFWG to address a need to increase the level and impact of brain tumour research in response to a public petition started by Maria Realf, who lost her brother, Stephen to a brain tumour.
We're advising the Department of Health and members of a Task and Finish Working Group (TFWG) on what the barriers to research are and how to break them down.
Around 52% of cancer deaths in the UK are from less common cancers. C52 is an alliance of over 90 organisations that represent people across the UK affected by rare and less common cancers. We are members of this group and part of the policy steering committee.
The APPG on Brain Tumours is a group of MPs and Peers from all political parties that aims to raise awareness of issues facing the brain tumour community in Westminster in order to improve research, diagnosis, information, support, and treatment and care outcomes. The Chair is Rebecca Harris MP (Conservative, Castle Point) and Vice-Chairs are Kevin Brennan MP (Labour, Cardiff West), Lord Alex Carlile of Berriew (Liberal Democrat), Mark Durkan MP (SDLP, Foyle). Honorary Secretary is Caroline Ansell MP (Conservative, Eastbourne).
Activities include Parliamentary events with guest speakers. For more information get in touch email@example.com
Patients involved in the National Institute for Health and Care Excellence (or PIN) is a coalition of over 80 patient organisations and is independent from NICE (the organisation responsible for the development of guidance and standards for new medicines and health technologies and the management of conditions) and the pharmaceutical industry. The group uses its combined expertise, knowledge and experience to criticise when needed and shape the work of NICE.
UseMydata is led by people affected by cancer and through a range of activities which include educational workshops and conference stands, aims to build confidence in the use of health information to improve diagnosis, treatment and care. The group is facilitated by NHS England and Cancer Research UK.
The CCG is an England focused coalition of national cancer-related charities representing service providers, research, advocacy and campaigning groups.
ECPC is an umbrella organisation representing hundreds of cancer-related organisations within and outside of Europe. It is based in Brussels on the doorstep of the European Parliament where it undertakes a number of policy and public affairs initiatives and the design and implementation of EU funded research projects, among other ongoing activities.
The Wales Cancer Alliance is a group of cancer charities with the aim of influencing the direction of cancer policy on behalf of people affected by cancer in Wales.
The SCC is a partnership of 21 voluntary organisations dedicated to improving cancer services and outcomes for patients in Scotland, and promoting research and prevention efforts.