Improving Brain Tumour Care surveys share your experiences and help create change

Scottish Cancer Plan

The Scottish Government has published a consultation to inform the development of their new Cancer Strategy for Scotland.

The Scottish Cancer Plan is expected to build on the Recovery and Redesign: Cancer Services Action Plan that is set to run out in March 2023 by taking into account what should be prioritised as Scotland recovers from the pandemic and beyond.

As part of the development of the new plan, Scottish Government is asking for people to share their views and experiences of cancer care by completing this survey. This consultation closes on 7 June 2022.

Below is some guidance on how you can respond to the survey and make sure the experiences of those affected by brain tumours are central to the resulting Scottish Cancer Plan.

Anyone can respond to the consultation, but it is most relevant for those who’ve sought or received treatment for cancer in Scotland, or their family and friends. The resulting plan will only cover Scotland, but people living in England, Wales, Northern Ireland, and overseas can respond if they wish to.

It is important for the Scottish government to hear the experiences of brain tumour patients as the more times they hear about these experiences, the more likely they are to listen.

It may take about 30-45 minutes to respond in total, but your response is automatically saved each time you click on ‘Save and come back later’ – so you can leave and come back to it at another time by providing your email address and clicking on the unique link in your email.

There are 17 questions about your ideas for the Cancer Plan with some additional questions at the end about you and how you want your response to be handled, as well as some questions on how you found the survey. Some questions just have a tick box, while others allow you to leave a comment.

This consultation closes on 7 June 2022.

Guide to responding

While you don’t have to respond to all of the questions, it will be helpful if you are able to. We realise it is a long survey so if you aren’t able to answer all the questions there are three questions directly related to your or your loved one’s experience of treatment. These are 15d, 15e and 15f.

Please share as much or as little about your own personal experience in your answers as you feel comfortable with.

When you submit your response, you will be sent a receipt and a link to a PDF copy of your response. If you would like, you can copy this and send it over to us at policy@thebraintumourcharity.org.

Use your experience

Use your personal experiences with brain tumours to help shape the work being done by The Brain Tumour Charity.

If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
Support and Information Services
0808 800 0004 Free from landlines and mobiles
Phone lines open Mon-Fri, 09:00-17:00

Join our voices for change

By campaigning with The Brain Tumour Charity, you can help ensure the issues which affect the brain tumour community remain a political priority.