Advocacy FAQs

Getting involved as a charity advocate might be something you've never thought about before, but it's a great way to use your personal experiences to help improve the landscape for those affected by a brain tumour.

Below we've compiled a list of frequently asked questions, to give some more information about our advocacy work and why it's so important to our community.

Why should I get involved in advocacy?

Advocacy works. Decisions are made by policy makers every day that impact on those living with a brain tumour, as well as their families and caregivers. Whether it be the acceleration of access to new drugs or the amount of money invested into brain tumour research, politics plays a vital role in our endeavour to find a cure.

We want to ensure that the voice of our community is heard and we know that we will only make a lasting impact if we work together. Our advocates are a united voice for all those affected by a brain tumour. They carry important messages into their constituency, to influence decision makers and ensure that our community's needs remain a political priority.

What does it mean to be an advocate?

Advocacy is making sure that those who are elected to represent you as a constituent, whether that's an MP or a councillor, hear your views. It can also be a great way to meet others and join the fight to defeat brain tumours.

Our advocates play a vital role in representing The Charity in their local area, speaking on behalf of people affected by brain tumours. They are able to use their experiences to help influence decision-makers to take a particular course of action, which will benefit the brain tumour community.

Being an advocate can look different for different people. You can be an advocate for a few minutes at a time or for a few hours a month, your level of involvement is completely down to you.

  • Here's an idea of some of the activities you could be involved in:
  • Meeting your MP in your constituency on behalf of other patients and caregivers to talk about our current campaigns
  • Keeping up a conversation with your MP or councillors about important issues, engaging with them by email, letters and phone calls
  • Promoting our campaigns on social media
  • Sharing your experiences with friends or fellow advocates in the community and asking them to do the same
  • Attending a training day, lobbying event or day of action

We give advocates regular updates about what is happening and how to get involved.

Do I need any skills to be an advocate?

You don't need any experience, we only ask that you are passionate about finding a cure and ensuring that everyone affected has the highest quality of life and chance of survival.

If you have been personally affected by a brain tumour, either through a brain tumour diagnosis or having a close family member or friend with a brain tumour, you are an expert through your experiences. You have an important story to tell and we would love you to get involved.

Do advocates get any support or training?

As an advocate you will be invited to networking and training events and will receive ongoing support from our advocacy team, who are an email or phone call away to answer any questions you may have. We will provide all the guidance and resources you need, as well as lots of helpful tips along the way. As part of our online advocacy community you will also have the support of fellow advocates and be able to share in each other's success.

Why is advocacy important to The Brain Tumour Charity?

We are a patient advocacy organisation, which means we are led by our supporters to ensure we address the things which are important to our community. We know from talking to those affected that the issues faced can be wide ranging, from access to clinical trials, to the lack of effective treatments.

As a charity we base our goals around these needs, identifying where the problems are and the decision makers who can help change processes.

We encourage all our supporters to get involved in advocacy work with us and you can give as little or as much time as you'd like. If you're interested in finding out more about what we do, please register your interest.