Facebook code of conduct (pdf)
Please read our code of conduct before requesting to join
The Brain Tumour Charity has a large and supportive online community within closed Facebook Groups.
Our Facebook Groups provide a safe online space where people who had been affected by brain tumours, whether you're living with a brain tumour or are caring for or supporting a loved one, can connect with each other, share experiences, find and give support and feel less isolated. They are also spaces where people feel comfortable to talk about anything they want to in the knowledge that others in the groups understand.
Our members are welcoming, hugely supportive of each another and hold a wealth of experience and information that they are happy to share in the hope that they will make someone else's journey a little less overwhelming.
I was greeted with a group of people who just got it. I could vent when I was angry, share when I was sad and tearful, and this group was always there. It didn't seem to matter what time of day or night, there was almost always someone online happy to chat.
Our lively and friendly community has thousands of members and, whilst mostly from the UK, our members can come from anywhere in the world meaning that if, for example, you have a rare tumour, the likelihood of finding someone with a similar tumour or experience is increased. It also means that you can share your treatment experiences with others being treated in different places and perhaps explore different options available. You can also access the group whenever you want and are very likely to find someone else on there at 2am who is also unable to sleep!
We currently have three Facebook Groups, one for anyone affected by a brain tumour diagnosis, another for parents who have a child under 18 living with a brain tumour and one for carers too, as we recognise the unique challenges that they also face.
The groups are moderated by members of our Support and Information Team and have a code of conduct for your protection. Nothing you post in the groups is shared on your personal profile or timeline, though the fact you are a member of the group is visible to other people.
If you have further questions, need to clarify any of the information on this page, or want to find out more about research and clinical trials, please contact our team:
0808 800 0004 (free from landlines and mobiles)
01252 749 999
Phone lines open Mon-Fri, 09:00-17:00
You can also join our active online community on Facebook - find out more about our groups.