Tag: policy

We share information on activity that has taken place across the UK in the drive to improve outcomes for all those affected by brain tumours.

The Government is working on a National Cancer Plan to improve patient experience for those affected. Here we share detail of what our submission to the Government’s Consultation included.

Today we publish new research into the barriers GPs face in being able to diagnose people with a brain tumour. Read our blog overview of our findings.

A brain tumour consortium, funded by the National Institute for Health and Care Research (NIHR), with the vision to make the UK a “testbed for oncology innovation by accelerating the development of treatments for patients with brain tumours” is being developed and is aiming for real progress in “the soonest time frame possible.”

During Brain Tumour Awareness Month, we visited Holyrood and met with MSPs to share the importance of achieving a faster diagnosis for those affected by brain tumours.

Dr Scott Arthur MP’s Rare Cancers Bill aims to transform the rare cancers landscape. Your support would be a huge help in its success. Here’s how you can get involved.

The CEO of The Brain Tumour Charity, Dr Michele Afif, talks about Scott Arthur MP’s fight to get a Rare Cancers Private Members Bill over the line.

This week has been the first ever Less Survivable Cancers Awareness Week (13-19 January 2025). We wanted to share some of the ways we’ve been using this time to create meaningful change for the brain tumour community.

What is the Darzi report and what does it reveal about brain tumour diagnosis, treatment and care in England?

We’re excited to announce a new Chair of our Scottish Steering Committee and share his answers to some of our introductory questions

We explore how Labour winning the General Election 2024 could affect the momentum for our National Brain Tumour Strategy campaign.

The guidelines recently published by NICE mean that NHS England will be using dabrafenib and trametinib – the first ever targeted treatment for childhood brain tumours – to treat children whose tumours have a BRAF V600E mutation.

What happened to the £40m of Government funding that was committed to research into brain tumours in 2018?

On 29 February, we stood outside Westminster alongside 34 members of the brain tumour community to launch our campaign calling for a National Brain Tumour Strategy. Read on to find out why.

Following Less Survivable Cancers Awareness Day, our advocates at the events share their experience of attending and what they would like to see happen next.

An update from our Policy and Campaigns team following an exciting week in Scotland.

An update on the Scottish Steering Committee’s new objectives and next steps.

We recently attended the NICE 2023 conference and share some of the key takeaways we gathered from the event.

Results show that brain cancer has the lowest rating of care across all cancer types.

We praise the launch of OurBrainBank’s new policy report and share how it ties in with our research strategy and innovations around treatment for glioblastomas.

The Scottish Government has launched its Cancer Strategy outlining its plan to improve cancer services and overall survival in the next 10 years.

NHS England has asked hospitals to work towards a 10 day turnaround for delivering diagnosis results but what does this mean for our community and what more can be done to improve diagnosis times for those affected by brain tumours?

We visited Scottish Parliament during Brain Tumour Awareness Month to promote Better Safe Than Tumour – our awareness campaign!

Learn more about why, together with brainstrust, we’re advocating for changing the narrative from early diagnosis to faster diagnosis.