News
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“If it wasn’t for the optician…. he might not be here” ~ Kayden’s story
Behind every request we receive for a free Brainy Bag, there’s a family navigating one of the hardest moments of their lives. Here’s Kayden’s story
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“If love alone could have saved James, he’d have lived forever” ~ Mum Dianne
Despite their enormous grief, James’ family and friends raised more than £10,000 in 24 hours.
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“How my lived experience is shaping research”
Emma Neason explains why she decided to join our Lay Advisory Board – a group of people with lived experience of brain tumours who help inform our research funding decisions.
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Spotlight on our London Marathon 2026 runners
Meet some of our 140 runners lining up for this year’s London Marathon in support of The Brain Tumour Charity.
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“I’m running a half marathon dressed as a brain!”
Jane Roberts, who has an inoperable brain tumour, will line up for Sunday’s Newport Half marathon in her specially designed costume.
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SENSORA: Mark and James’ story
The unique May event will combine Michelin-starred chefs with electronic music duo Bicep.
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Launching bold ideas: Our latest Expanding Theories awardees
We are funding two ambitious new pilot studies designed to spark progress in how we diagnose, monitor and treat brain tumours.
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Meet The Researcher: Ola Rominiyi
Our Junior Fellow, Mr Ola Rominiyi, explains how his role bridges neurosurgery and scientific discovery.
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£50,000 donation for immunotherapy research in memory of Gilly Lee
The Brain Tumour Charity has received an incredibly generous gift in memory of Gilly Lee, who passed away from glioblastoma in 2019.
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Vorasidenib approved for NHS use in England
In a positive end to Brain Tumour Awareness Month 2026, we are pleased that NICE has approved vorasidenib to treat some types of brain tumours.
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Why we walked – The Twilight Walk 2026
Behind every individual involved in our flagship fundraising event, The Twilight Walk, there’s a poignant motivation. The walk may now be over for another year, but its impact is not.
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Thirty years of progress
Reflections from our community at the end of Brain Tumour Awareness Month.
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“I’m raffling my house to pay for brain tumour treatment in Germany.”
Beauty therapist Claire, from Burnley, decided to take drastic measures after exhausting NHS treatment options.
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Eight recommendations to unlock brain tumour innovation in the UK
Our new report outlines the systemic barriers holding back access to innovative new brain tumour therapies in the UK.
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Superfan Sophie meets her superhero
A young football fan, whose family we’re supporting, had a surprise visit to meet her favourite player.
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“We are grateful for every single day” ~ Claire and Alex’s story.
Behind every Big Bake held this month, there’s a personal story. In this guest post, Claire Brown explains the impact on her family since husband Alex, aged 53, was diagnosed with a brain tumour.
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New Chair of Trustees – Same Mission
As we say a fond farewell to Jack Morris CBE, we are pleased to announce the appointment of Fraser Longden as our new Chair of Trustees.
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Schoolboy Oliver’s nine marathon challenge
A nine-year-old boy from Yorkshire is running the equivalent of nine marathons to raise money for us after we helped his family navigate dad Tom’s brain tumour diagnosis.
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Simple blood test shows promising potential for detecting glioblastoma
Our researchers are marking a significant step towards a blood test for glioblastoma.
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From worried parent to charity team manager – Shona’s story
In 2007, Shona Floyd was supported by what went on to become The Brain Tumour Charity. Ten years later she started working for us – and she’s still here as we mark 30 years since we were founded.
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Celebrating our ongoing push for faster, fairer diagnosis!
This Brain Tumour Awareness Month, we’re looking back at the work we’ve done – and continue to do – to push for faster, fairer diagnosis of brain tumours.
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“I’ve been living with my brain tumour for 30 years.”
Gavin learned of his tumour – a pilocytic astrocytoma – in December 1995: just a few months before Neil and Angela Dickson founded the organisation that would become The Brain Tumour Charity. In this post, he looks back over the last three decades and reflects on how things have changed.
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Twilight Walk Own Walks 2026: Lewis, Hayley, and Julie’s stories
As well as the Twilight Walk London on March 21st, hundreds of Twilight Walk Own Walks are happening this month! Here, three people explain why they are walking the Twilight Walk their way in March.
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Meet Rod Buchanan, our High Profile Influencer
A champion of The Twilight Walk, Rod has taken his fitness career to new heights since his diagnosis