Tag: childhood brain tumour
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Mum desperate to know what type of brain tumour daughter has.
A mum is living with the awful uncertainty of not knowing what tumour type her teenage daughter has despite several surgeries, ongoing treatment and two recurrences.
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Childhood Cancer Awareness Month: Xander’s story.
A family spent the pandemic making memories with their four-year-old son who lost his life just a few months later to one of the most aggressive brain tumours his doctors had ever seen.
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Falling out of bed saved my little girl’s life
After years of her family thinking Annabelle Ginn was just “a clumsy kid”, a scan revealed she had a tennis ball-sized brain tumour
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No one can fill the gap left by our son, but our baby has brought joy back into our lives
A mother who didn’t tell her teenage son he was dying – only to discover after his death that he had known all along – has revealed how a new baby has filled the ’emptiness’ in her life.
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Meet Dr Martina Finetti
Dr Martina Finetti tells us about her background and her research into rare childhood brain tumours.
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Alfie’s story: “I get tired a lot”
Three years ago, Alfie Tinney had a grade 1 pilocytic astrocytoma completely removed during a 12-hour surgery at Sheffield Children’s Hospital.
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Redefining medulloblastoma
New research from one of our funded grants gives much needed insight into group 3 and 4 medulloblastoma
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Why children with brain tumours need to be heard
Chartered Clinical Psychologist, Dr Roberta Bowie, explains why one of the most important things you can do for your child is simply to listen to them.
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Breaking news for research into childhood brain tumour growth from our funded researchers
Our scientists in Heidelberg and London have discovered what drives the unpredictable growth of low grade brain tumours
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Building relationships with your child’s school
Louise Robinson, from Nottingham Children’s Hospital, shares her advice and talks about some organisations who may be able to help you build relationships with your child’s school.
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Supporting your child to return to school after diagnosis or treatment
This blog covers top tips for helping your child to return to school after diagnosis or treatment.
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Cambridge University scientists develop new blood test for childhood cancers including brain tumours
The new blood test focuses on germ cell cancers that are rare but take root in cells that develop into sperm and eggs and may lead to malignant tumours in childhood.
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Children and young people survey extended
Our survey looking at quality of life issues in children, young people and families has been extended to ensure our findings have the biggest possible impact, we’d like closer to 500.
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Tributes after Tasha loses brain tumour fight
Tributes have been paid to The Brain Tumour Charity’s ‘sassy and brave’ Young Ambassador Tasha Floyd, who has died at the age of 24.
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Ten-year-old’s scan delay after brain tumour battle
Ewan MacKerracher, a ten year old boy from Coleraine, Northern Ireland, has been diagnosed twice in the past with brain tumours. He has been waiting almost two years for a routine scan that could show any recurrence of the disease.
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Story of hope: Alice and Emma
In July 2015 Alice was discharged after nine years of treatment and monitoring for a brain tumour. Her mum Emma talks about what it means to get to the end of treatment.
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Patient questionnaires could flag learning difficulties in children treated for a brain tumour
Research published online today in the scientific journal Neuro-oncology has shown that some of the questionnaires completed by patients, parents and teachers relating to the behaviour, emotional wellbeing and quality of life of children affected by a brain tumour can flag reductions in IQ.
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Paediatric Brain Tumour Information Day
Together with the team at Southampton General Hospital, we held our very first Paediatric Information Day last Saturday.
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Breakthrough on high grade glioma genetics
Funded by The Brain Tumour Charity, Dr Chris Jones at the Institute of Cancer Research has deepened our understanding of childhood high grade gliomas.