Tag: policy
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The Darzi report: breaking down the key themes for the brain tumour community
What is the Darzi report and what does it reveal about brain tumour diagnosis, treatment and care in England?
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Meet the new Chair of the Scottish Steering Committee
We’re excited to announce a new Chair of our Scottish Steering Committee and share his answers to some of our introductory questions
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What could the Labour win mean for a National Brain Tumour Strategy?
We explore how Labour winning the General Election 2024 could affect the momentum for our National Brain Tumour Strategy campaign.
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Dabrafenib and trametinib – NICE guidance published
The guidelines recently published by NICE mean that NHS England will be using dabrafenib and trametinib – the first ever targeted treatment for childhood brain tumours – to treat children whose tumours have a BRAF V600E mutation.
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Government funding for research into brain tumours
What happened to the £40m of Government funding that was committed to research into brain tumours in 2018?
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A National Brain Tumour Strategy? It’s A No Brainer!
On 29 February, we stood outside Westminster alongside 34 members of the brain tumour community to launch our campaign calling for a National Brain Tumour Strategy. Read on to find out why.
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Closing the deadly cancer gap: Voices from Less Survivable Cancers Awareness Day
Following Less Survivable Cancers Awareness Day, our advocates at the events share their experience of attending and what they would like to see happen next.
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Collaborating in Scotland to accelerate a cure for brain tumours
An update from our Policy and Campaigns team following an exciting week in Scotland.
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The Scottish Steering Committee: Working towards a faster diagnosis in Scotland
An update on the Scottish Steering Committee’s new objectives and next steps.
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Collaborating for change at the NICE conference 2023
We recently attended the NICE 2023 conference and share some of the key takeaways we gathered from the event.
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Exploring the results of the Cancer Patient Experience Survey 2022
Results show that brain cancer has the lowest rating of care across all cancer types.
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Widening the debate around treatment
We praise the launch of OurBrainBank’s new policy report and share how it ties in with our research strategy and innovations around treatment for glioblastomas.
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Scottish Cancer Strategy: What is it and what does it mean for us?
The Scottish Government has launched its Cancer Strategy outlining its plan to improve cancer services and overall survival in the next 10 years.
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What the new NHS drive to quicken diagnosis times means for us
NHS England has asked hospitals to work towards a 10 day turnaround for delivering diagnosis results but what does this mean for our community and what more can be done to improve diagnosis times for those affected by brain tumours?
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Better Safe Than Tumour comes to Holyrood
We visited Scottish Parliament during Brain Tumour Awareness Month to promote Better Safe Than Tumour – our awareness campaign!
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Why we want to talk about a faster, not an earlier, diagnosis
Learn more about why, together with brainstrust, we’re advocating for changing the narrative from early diagnosis to faster diagnosis.
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Why we’re campaigning for faster diagnosis
Find out more about the benefits of faster diagnosis and what you can do to help us create meaningful, lasting change for people affected by a brain tumour.
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We respond to national roll-out of fast-track cancer testing in England
NHS England has announced a national roll-out of ‘fast-track testing’ to help detect cancer
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What is the 10-Year Cancer Plan?
The 10-year Cancer Plan for England aims to set out a vision and long term approach for cancer services in England until 2032
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Headline Findings from the Cancer Patient Experience Survey 2021
The Cancer Patient Experience Survey 2021 results show that brain cancer has the lowest rating of care across all cancer sites
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Involvement Champion Attends the All Party Parliamentary Group on Cancer
Phillipa Anders, an Involvement Champion at The Brain Tumour Charity, shares her experience attending the All Party Parliamentary Group on Cancer
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We respond to new NHS waiting times for suspected brain cancer
NHS data shows waiting time targets for suspected brain cancer in England were missed for the fifth time in last six months.
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Open letter from NHS, charity and community leaders to people with a weakened immune system
In May, we joined together with the NHS and many other charity leaders to co-sign the open letter below, encouraging people with a weakened immune system to continue to book in or visit a walk-in centre for their COVID-19 vaccines including a Spring booster dose.
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A day in the life of a Clinical Nurse Specialist
Today, on National Cancer CNS Day, we’re celebrating the amazing people who help those affected by a brain tumour. Vicky Hurwitz, a Neuro-oncology Nurse Consultant based at King’s College Hospital in London spoke to us about what a day in the life of a CNS often looks like.